Inflamed Prostate - Like Hearing a Bad Song Over and Over...
- bellowbellow
- Intermediate Member

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Inflamed Prostate - Like Hearing a Bad Song Over and Over...
I recently had an intake exam at a hospital Urology Clinic, where they seem to have progressed in their understanding of chronic prostatitis / chronic pelvic pain syndrome to the point that they are utilizing a number of alternative treatments including parts of the SP..... However, every time I go for an examination, the urologist tells me that my prostate is inflamed.... during a recent exam, I was pleased that the Dr. was probing around for tight spots and trigger points (or so it seemed) but then I heard those same magic words (it's inflamed!) again from yet another uro, though this time he said it appears to be more tender on the left side... he also said, after extracting prostatic fluid, that the fluid does not contain what it should contain... I never know what to make of these comments, particularly the inflamed comment, which seems to have no connection to how symptomatic I am at the time... Perhaps one of you more experienced folks can help me make sense of these latest comments and whether or not they are meaningful in any way... Thanks.
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
It's possible that you do have an inflamed prostate, and it's worth asking him exactly what he meant, but from the sound of it your doctor is not up to date with his understanding of CPPS.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.
Not medical advice. Consult your doctor.
Not medical advice. Consult your doctor.
The urologist upon looking at your EPS,(expressed prostatic secretion may have not seen any WBC's, white blood cells) in your fluid, which indicates inflammation. You need to ask your Uro if this was the case. If it is, it may have thrown him a curveball, which will put you in the group of Men who have symptoms of a sensitive or tender prostate but with no WBC's in your fluid. In the end, it's the same thing, something is making your prostate irritated., via tight pelvic muscles, tension, anxiety and diet. Hope this helps, but you need to ask the urologist the question.
Regards, Carl...
Regards, Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Inflammation of the prostate is a normal part of pelvic myoneuropathy or CPPS. It is not specially noteworthy. Most urologists are not aware of the latest thinking in this area. Once other pathologies are ruled out, urologists are not much help. If your uro gives you a CP/CPPS diagnosis, thank him/her and cancel future appointments, unless you want to try alpha blockers. Pain meds and other meds (Elavil, Neurontin etc), and even alpha blockers for that matter, can be obtained through your family doctor. Or go straight to stretching, trigger point release, relaxing and other conservative therapies.
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- bellowbellow
- Intermediate Member

- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Thank-you very much for the responses and, as always, good advice... I tend to agree that, given all the tests I've had ruling out anything sinister, inflammation or not, my best route to recovery (what ever that looks like... I forget) is to continue stretching, relaxing and tp release.... As a psoriasis sufferer, I used to think the ignorance of the medical profession in treating psoriasis as some sort of one-dimensional rash was staggering... now that I have chronic prostatitis / chronic pelvic pain syndrome (my psoriasis has been successfully controlled through diet), I keep encountering a level of pervasive, archaic ignorance from uros that leaves me fluctuating between anger and disbelief.....
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
My first Uro with this stuff left a kidney stone in my ureter for 6 months because he was sure the extreme penis pain was from my prostate that really really needed his knife. In fact, the second Uro who removed the stone stopped the pain. Thank God I'd been here long enough to know I had to run screaming from the first guy.
In the last year I've had to endure extreme pain for weeks until I could convince my doc I needed pain meds. I've had a GI tell me that "that food allergy stuff is really controversial" when discussing my colitis. I had a testosterone test in November that was really high and no one questioned it, even though I'm old and have no muscle tone left. I finally had to pay $4000 to see a specialist outside my insurance to get a proper set of tests that proves I actually have low testosterone, which should have been obvious. Whoops, I started ranting. I can go on and on with stories of obvious lack of common sense and medical decisions that anyone on the internet can prove are wildly wrong. My last year has been a total nightmare due to my medical care as much as my disease. I used to respect doctors.
In the last year I've had to endure extreme pain for weeks until I could convince my doc I needed pain meds. I've had a GI tell me that "that food allergy stuff is really controversial" when discussing my colitis. I had a testosterone test in November that was really high and no one questioned it, even though I'm old and have no muscle tone left. I finally had to pay $4000 to see a specialist outside my insurance to get a proper set of tests that proves I actually have low testosterone, which should have been obvious. Whoops, I started ranting. I can go on and on with stories of obvious lack of common sense and medical decisions that anyone on the internet can prove are wildly wrong. My last year has been a total nightmare due to my medical care as much as my disease. I used to respect doctors.
I am not a doctor too!
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Clay wrote:My first Uro with this stuff left a kidney stone in my ureter for 6 months because he was sure the extreme penis pain was from my prostate that really really needed his knife. In fact, the second Uro who removed the stone stopped the pain. Thank God I'd been here long enough to know I had to run screaming from the first guy.
I hear where you are coming from. I know it's a little off topic, but I have had two kidney stone episodes and both where they wouldn't come out on their own. The second one was visible on and off with X-rays and when they finally went into pull it out they couldn't find it so told me I must have something else. I then peed it out the next day....... and promptly took the stone back to the doc for analysis!
Age: 41 | Onset Age: 30 Symptoms Initially: Urine frequency, Rectal Pain, Bladder Pain, Penile Pain, Numb Inner Thigh Pain, Constipation, Fever. Symptoms now: None | Helped By: Resolution of phimosis /Elavil, Stretches. Worsened By: Stress Stress Stress!
Bottom line is once more possible serious issues are ruled out, there is nothing further your urologist can do. Isn't that actually very empowering that you can contribute to healing your self and get better with the tools that are offered here. That you can take a healthy supplement like prota-q, alpha blockers that your regular doctor can prescribe, do your stretches, take hot relaxing baths. Learn to do your own internal work after you see a qualified PT in pelvic floor dysfunction. Exercise, eat a balanced meal and take control of your anxiety by having quiet time to your self. Keep the darn TV off when you get home. If you have kids, after they go to sleep, put on some relaxing punk rock!!!(kidding) and go into a quiet mode and put a yoga mat down and stretch and breathe and relax. Go into a hot bath with a candle on and deep breath and try to concentrate on sensations and not thoughts. Talk to your Wife and get involved in her and by all means, stay away from the TV. I can't say enough about that. Read a interesting book, sit on your patio and listen to the wind etc. I know it sounds a little cheesy, but it works a lot of the time for me.
Regards, Carl...
Regards, Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
It is empowering to find I may be able to fix a lot of things by just changing my eating habits. Cutting out grains, dairy, eggs and soy hasn't been easy by any stretch, but at least it's something I can do to help myself.
I'd far rather be dependent on my own ability to relax, stretch, etc than to be dependent on doctors!
I'd far rather be dependent on my own ability to relax, stretch, etc than to be dependent on doctors!
I am not a doctor too!
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.

