HELLO FOLKS.

[dandyman]

Been doing a lot of post reading in here and I have read the Stanford book. I've had the pelvic pain for almost four years and I'm 67 years old.
I've tried some exercises but I guess that's not enough. My pain is mostly when setting and cushions with a split in the middle doesn't help.
I've called my insurance about the Stanford/Wise-Anderson Protocol but can't get a straight answer on what they will cover. The only comfy chair is the toilet seat.

Just before I fall asleep in my chair the pain goes away proving there must be something to this relaxation theory.

[scotsman]

Welcome to the forum Dandy

Perhaps worth buying a relaxation CD and doing half an hour of that a couple times a day.

RIchard.

[dandyman]

Thank you for the reply. I did buy the Headache in the Pelvis book. I even showed it to my urologist who seems un-Impressed. Maybe I need a new one. I live n western IL. BUT HAVE NOT BEEN ABLE TO FIND A TRIGGER POINT THERAPY CLINIC.

Was the Stanford therapy disk the one you are recommending?

[scotsman]

.... I even showed it to my uroliogist who seems un-Impressed.....[/b]

That tends to be a very common reaction as most uro's are ignorant to chronic prostatitis / chronic pelvic pain syndrome as a condition. This is slowly changing but only a few Uro's are up to speed.

Was the Stanford theropy disk the one you are recomending?

Whilst the Stanford CD's are very good, they aren't sold in isolation and you need to purchase consultation with them as well which can be expensive (all relative of course).

I'd suggest that you purchase some CD's of Amazon to try first. Here are some suggestions.

Experience Yoga Nidra: Guided deep relaxation

Awakened Mind System

I'd also get this book: The Relaxation & Stress Reduction Workbook.

Regards
Richard.

[scoobysnacks]

None of my uros have been excited by the book. The last one though was willing to admit this was a muscular issue, and will work with me in my limited use of Ativan as I treat myself. At this point thats his only limited role. I tell him how I'm feeling, showing him I dont abuse the Ativan, let him know from time to time I'm improving and we move forward.

Study this board, study the book and find someone skilled in trigger points of the pelvic floor. I will caution I saw two PTs prior to Tim Sawyer and both said I didn't have any issues. However, after my visits with Tim it was discovered I was, in his words, "one jacked up dude" from years of soccer, bodybuilding, unnatural holding patterns of the abdomen and probably stress of law school and work. My point is not all PTs are created equal.

For me going to SP was worth its weight in gold. I continue to make progress. I'm to the point now where internal work helps rather than flares me up, this is a relatively new occurrence. One I should probably post about.

Regards,

Ss

[Clay]

To find a physical therapist, you might try

http://www.pelvicpain.org/providers/find_provider.aspx

It's the International Pelvic Pain Society. Be sure to click on "Find Provider" and not "Search Site".

I found a local person who referred me to my PT. My PT swears there are no men in the area who will do internal trigger points. She specializes in women's issues, but she is very skilled and easy to work with.

[dandyman]

thanks for the replies folks. I don't know what direction I'm going to go yet. Dr. Wise asked me to call him in my last email so maybe I should do that. :x

[scoobysnacks]

thanks for the replies folks. I don't know what direction I'm going to go yet. Dr. Wise asked me to call him in my last email so maybe I should do that. :x

That is a great start, he will answer your questions and put you at ease to some extent.

The hardest part in this IS GETTING STARTED, once I got started I was fine.

Let us know if you need help devising a plan.

Regards,

Ss

[damien6]

Hello,

I don't want to crash into someone elses page. This is my second time on the site. There was just a show on TV (Australia) about cronic pain, how that becomes the disease and not an indicator of a problem. That its difficult to get into people's minds that just resting won't make it go away like normal pain. I know I have that problem, I just want to go to bed a lot and hate exerting myself as it seems to create anxiety, more pain/discomfort yadda.

I haven't read very much on this site, or very much on this area yet, as I find it stressfull to confront this. But of course life isn't pleasant at the mo as this thing dominates. Find it very difficult to get up and running on this issue.

Yours,
Damien

[Clay]

Damien, I understand completely. Next time I want a disease that is fixed by taking pills! It's hard enough to be betrayed by my body at my age, I imagine it's much harder at yours.

At least we do live in an age where there is enough information available to get ourselves better, and we've found a terrific starting place here!

[damien6]

Haha how true Clay.

First time I read something about this on the internet it said, "Well guys the info on this area isn't clear so you've got to take control of this yourself", I thought you've got to be kidding! Leave that stuff to the Doctors and just give me the results. Oh well at least this issue is being taken serioulsy. My Urologist the first time I saw him wasn't very helpful, "Yes, its common, not very much we can do, here's some pills *wink of the eye*". I guess thats no suprise from whats just been said about Uros unfortunatley.

It feels good to be getting on top of this at last.

Thanks, Damien

[GP2]

I haven't read very much on this site, or very much on this area yet, as I find it stressfull to confront this. But of course life isn't pleasant at the mo as this thing dominates. Find it very difficult to get up and running on this issue.

I took a Year at least to accept the condition. I think its harder to accept this condition than to actually treat it. As Scooby says though once you get going and good habits become established improvements will inevitabely come..

[damien6]

Thanks I'm making progess at the moment so thats good.

Damien