Hi group,
I used to think if I work on my intimacy issues i.e. boundaries, moderation, etc I will eventually be ready to re-enter another relationship. but the truth is I have a lot of anxiety (performance) about sex being a chronic prostatitis / chronic pelvic pain syndrome victim.
I could honestly say it's ruined my life - caused me to withdraw from people, become bitter, resentful , and frustrated. I was treated for Generalized Anxiety Disorder (GAD) but I have little patience for CBT residents and their quick fix approach ! I am presently seeking a humanistic approach to deal with my real and existential conflicts (nobody understands me !) Attend 12 step group regularly and that has been wonderful.
I'm not going to procrastinate any more I'm ordering the books and taking back control of my life with the help from this list .. I don't want to be a victim anymore !
thanks for letting me share this.
CPPS and Intimacy issues
CPPS and Intimacy issues
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Glad to hear you are taking steps to improve your life. Please remember you are not a victim of CP/CPPS, your anxiety is the key factor behind many of the symptoms you are going through. It's amazing what a tight pelvic floor can do to a Man. Read A HEADACHE IN THE PELVIS #4. Find a PT that can do a pelvic floor exam and read the many posts here to get you going in the right direction.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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DJ Solution
- New Member
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- Joined: Fri Jan 12, 2007 2:49 pm
I also had anxiety about intimacy and this prevented me from wanting to get involved with anyone because I had a fear of rejection. I was fortunate to find someone who could understand my situation and this has greatly reduced my anxiety about performance issues. I also know that there are people that are less understanding but I would encourage you not to give up in terms of searching for someone that can relate to you and your situation. PT and stretching has helped me tremendously in the intimacy department and its definitely worth your full effort. Good luck and let us know how we can help you.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
I've had the same sort of issues surrounding intimacy. I've basically temporarily abandoned the pursuit of a significant other so I can focus on healing myself mentally and physically. I guess there is a fear of rejection in there too. I found myself several times in my head attempting to explain to a new girlfriend why I wouldn't want to have sex "you see I have myofascial restriction in my pelvic floor and.. uh" haha.
I do miss relationships and the like. I miss being in that normal realm. It's been a while since I've been interested in someone, actually. I feel kind of asexual at the moment. I've come to accept that taking a break is a good option, at least until I'm feeling a little better. The healing process for this is slow though, but it won't last forever. That's what keeps me going.
There are plenty of other ways to be intimate with people and satisfy that desire, I've found.
Are you going to Physical Therapy and all that jazz?
Oh, and you aren't a victim. I used to think that way, and it prevented me from taking action against this condition. I think it was Dr. Wise who suggested to look at this as a class in the college of life. A rare opportunity indeed.
I do miss relationships and the like. I miss being in that normal realm. It's been a while since I've been interested in someone, actually. I feel kind of asexual at the moment. I've come to accept that taking a break is a good option, at least until I'm feeling a little better. The healing process for this is slow though, but it won't last forever. That's what keeps me going.
There are plenty of other ways to be intimate with people and satisfy that desire, I've found.
Are you going to Physical Therapy and all that jazz?
Oh, and you aren't a victim. I used to think that way, and it prevented me from taking action against this condition. I think it was Dr. Wise who suggested to look at this as a class in the college of life. A rare opportunity indeed.
I'm not a doctor, yet.
Age: 19 | Onset Age: 17 | Symptoms: Various waning uncomfortable sensations, urgency and frequency. Also this mean anal fissure that doesn't want to heal up. | Helped By: Stanford/Wise-Anderson Protocol, chilling out, fun, relaxation, stretches. | Worsened By: Too much effort, exercise, ejaculation, uncomfortable situations.
Age: 19 | Onset Age: 17 | Symptoms: Various waning uncomfortable sensations, urgency and frequency. Also this mean anal fissure that doesn't want to heal up. | Helped By: Stanford/Wise-Anderson Protocol, chilling out, fun, relaxation, stretches. | Worsened By: Too much effort, exercise, ejaculation, uncomfortable situations.
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scoobysnacks
- Retired Mod
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Fellas,
I met my wife when my symptoms were at their worst.
To be honest, that euphoria of love got me through some really tough times of pain and unknowing.
It helped me to not fixate on this crap. And it wasn't going away at the time or getting any better, so hell I had sex like a champ. Did it help, not the pelvic pain, but it did help me not get into a depressed state.
After about 4 mos I told her how it affected me, and we downgraded the frequency of sex, but upgraded the romantic and quality aspect of it.
Just my two cents.
Regards,
Ss
I met my wife when my symptoms were at their worst.
To be honest, that euphoria of love got me through some really tough times of pain and unknowing.
It helped me to not fixate on this crap. And it wasn't going away at the time or getting any better, so hell I had sex like a champ. Did it help, not the pelvic pain, but it did help me not get into a depressed state.
After about 4 mos I told her how it affected me, and we downgraded the frequency of sex, but upgraded the romantic and quality aspect of it.
Just my two cents.
Regards,
Ss
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
You're getting excellent advice... find someone who understands your anxiety and is empathic to your struggles with CPPS... don't try to hide your struggles or worries.... if it's the right person for you, she will understand and you will have a partner in your efforts and determination to become healthier in mind and body.... if not, it wasn't meant to be.....move on.....
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.