Light Therapy
Light Therapy
Not directly related to chronic prostatitis / chronic pelvic pain syndrome symptoms - and probably only limited to those of us living in dank, dark climates - but I've just got hold of a light box to see if I can improve my mood during the rest of the winter.
Historically, my chronic prostatitis / chronic pelvic pain syndrome has been at its worst during the winter, so I'm hoping to benefit from light therapy to cope better.
Anyone had experience of light boxes?
Historically, my chronic prostatitis / chronic pelvic pain syndrome has been at its worst during the winter, so I'm hoping to benefit from light therapy to cope better.
Anyone had experience of light boxes?
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Re: Light Therapy
Looks like you need to come back out to Santa Monica, CaliforniaRichard.N wrote:Not directly related to chronic prostatitis / chronic pelvic pain syndrome symptoms - and probably only limited to those of us living in dank, dark climates - but I've just got hold of a light box to see if I can improve my mood during the rest of the winter.
Historically, my chronic prostatitis / chronic pelvic pain syndrome has been at its worst during the winter, so I'm hoping to benefit from light therapy to cope better.
Anyone had experience of light boxes?
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Looks like you need to come back out to Santa Monica, California Very Happy Cheers Richard, don't get sunburned on that thing...
I've just been in Fuerteventura, Spain for two weeks - one of which was a complete washout: overcast and drizzle. Not what would expect from an island off the west coast of Africa!
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Glad you got to get away. How were your symptoms while on vacation?
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
My wife has me under a light box daily. I started a few weeks ago when my colitis went nuts. My colitis is improving. My rectal pain isn't, but then I can't go the PT with colitis.
I've no idea if the light helps. So many things change over the course of weeks - diets, different supplements, drugs, daily stress.
I've no idea if the light helps. So many things change over the course of weeks - diets, different supplements, drugs, daily stress.
I am not a doctor too!
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Bit of a tangent but I've actually been wondering recently whether this board is overly biased with Brits and scots in particular.
There seems to be about 6 or more scots guys who post regularly out of a pool of what, maybe 50 guys who write regular updates here.
To me that seems a pretty high percentage based on a country with a total male population of ~2m. Compare that to say Australia with a male population of ~10m and I've seen maybe 1 or 2 guys here ever.
Also it's interesting that one of the few physios in Europe is based in Scotland where he evolved independently of Stanford, presumably because he came across many cases to ply his trade.
I doubt if this really tells us anything other than dark damp weather, and perhaps copious amounts of alcohol, generally poor diet and seasonal depression are contributory factors.
I've just recently emigrated to sunnier climes were I hope to try and follow a more healthy lifestyle, we'll see what effect this has.
Cheers.
There seems to be about 6 or more scots guys who post regularly out of a pool of what, maybe 50 guys who write regular updates here.
To me that seems a pretty high percentage based on a country with a total male population of ~2m. Compare that to say Australia with a male population of ~10m and I've seen maybe 1 or 2 guys here ever.
Also it's interesting that one of the few physios in Europe is based in Scotland where he evolved independently of Stanford, presumably because he came across many cases to ply his trade.
I doubt if this really tells us anything other than dark damp weather, and perhaps copious amounts of alcohol, generally poor diet and seasonal depression are contributory factors.
I've just recently emigrated to sunnier climes were I hope to try and follow a more healthy lifestyle, we'll see what effect this has.
Cheers.
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
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It is climate-related. Muscles are tenser in colder climates.
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Er...a bit rubbish. I was pissed off because it rained for the first half of the holiday, plus I couldn't resist drinking. Also I freaked out a bit one evening on Tramadol. So not a great success. The penultimate day I was so relaxed as the weather was great and I just sat in it all day = symptoms much better.carld wrote:Glad you got to get away. How were your symptoms while on vacation?
It'll be interesting to see if you think it affects you over time, Clay. Curiously, the 'depression score sheet' that came with the light box lists "Physical symptoms such as...having to urinate frequently" as an option. I hadn't realised that frequency is associated with SAD, but I suppose that some people do urinate more frequently in the cold due to muscle tension. No mention of pelvic pain though!Clay wrote:I've no idea if the light helps.
Yeah - difficult not to notice that. Not sure about the poor diet observation though - we're not all eating turkey twizzlersGinty wrote:this board is overly biased with Brits and scots in particular.
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Following on from Mark's link (thanks Mark):
"Higher education and a longer time in sunlight were associated with a decreased likelihood of chronic prostatitis-like symptoms."
http://tinyurl.com/3888rz
"Higher education and a longer time in sunlight were associated with a decreased likelihood of chronic prostatitis-like symptoms."
http://tinyurl.com/3888rz
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
That's pretty cool, and I buy the lack of sunlight as the causal factor more so than the temperature.
I know and agree from experience that colder temperatures do exacerbate symptoms but I'm not sure I believe that this is what caused them - after all in these cold/dark countries people tend to stay indoors where it is warm anyway.
Seems more likely to me that the lack of sunlight triggers off chemical processes in the brain which lead to things like depression, anxiety and CPPS.
I know and agree from experience that colder temperatures do exacerbate symptoms but I'm not sure I believe that this is what caused them - after all in these cold/dark countries people tend to stay indoors where it is warm anyway.
Seems more likely to me that the lack of sunlight triggers off chemical processes in the brain which lead to things like depression, anxiety and CPPS.
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
I think that cold and lack of sunlight are part of the glorious synergy of factors that induce and/or perpetuate and/or exacerbate CPPS.
I wonder how the forum's stats are looking? Don't they usually peak in the northern hemisphere's winter?
I wonder how the forum's stats are looking? Don't they usually peak in the northern hemisphere's winter?
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
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Yep, in summer we have a fall-off in posting, like clockwork.
About the higher education thing: I presume people with lower education are more likely to have chronic prostatitis / chronic pelvic pain syndrome because of the tendency for anxiety disorders, which are very common in men with CP/CPPS/pelvic myoneuropathy, to disrupt the often stressful endeavour of tertiary education. Any other theories?
About the higher education thing: I presume people with lower education are more likely to have chronic prostatitis / chronic pelvic pain syndrome because of the tendency for anxiety disorders, which are very common in men with CP/CPPS/pelvic myoneuropathy, to disrupt the often stressful endeavour of tertiary education. Any other theories?
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Agreed there's probably an influence from both.
However I was thinking about this some more and multiple sclerosis also has a very high incedence in Scotland and I believe that studies have been done on this which directly correlate the rate to incedence to the distance from the equator where further away = worse.
This disease has parallels with chronic prostatitis / chronic pelvic pain syndrome in that it is some sort of neurological disorder of which no-one knows the cause or cure. Also from personal experience I have seen that it is a disorder where the state of mind plays a huge role.
Anyway the mother of a friend of mine has had this affliction for 10+ years and she has done very well with it, you almost would not know to meet her. The first thing that strikes you is her positive attitude towards it but more than that she claims that taking regular vitamin D has been a key factor; the rational behind this being that it counteracts the lack of sunlight.
So you are obviously now trying the light box thing, but has anyone ever tried taking vitamin D for this and/or should we start?
Finally just another cheery anecdote to end with is that the male teenage suicide rate in Scotland is one of the highest in the world and I wonder if chronic prostatitis / chronic pelvic pain syndrome is a causal factor in this or if they are related by a shared cause?
However I was thinking about this some more and multiple sclerosis also has a very high incedence in Scotland and I believe that studies have been done on this which directly correlate the rate to incedence to the distance from the equator where further away = worse.
This disease has parallels with chronic prostatitis / chronic pelvic pain syndrome in that it is some sort of neurological disorder of which no-one knows the cause or cure. Also from personal experience I have seen that it is a disorder where the state of mind plays a huge role.
Anyway the mother of a friend of mine has had this affliction for 10+ years and she has done very well with it, you almost would not know to meet her. The first thing that strikes you is her positive attitude towards it but more than that she claims that taking regular vitamin D has been a key factor; the rational behind this being that it counteracts the lack of sunlight.
So you are obviously now trying the light box thing, but has anyone ever tried taking vitamin D for this and/or should we start?
Finally just another cheery anecdote to end with is that the male teenage suicide rate in Scotland is one of the highest in the world and I wonder if chronic prostatitis / chronic pelvic pain syndrome is a causal factor in this or if they are related by a shared cause?
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
To me lack of higher education (because of either poverty or lack of academic ability) on a general scale will correlate with poorer diet, increased consumption of alcohol, drugs and tobacco and therefore poorer health.About the higher education thing: I presume people with lower education are more likely to have chronic prostatitis / chronic pelvic pain syndrome because of the tendency for anxiety disorders, which are very common in men with CP/CPPS/pelvic myoneuropathy, to disrupt the often stressful endeavour of tertiary education. Any other theories?
This combined with the increased likelihood of depression due to poverty and perhaps dissatisfaction with ones position in life are probably all influences.
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
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Yes, quite, but that would account for lack of advanced education in the general population, not specifically our population. What is it about us that would mean we generally have lower educational levels (this is just in general, since many men posting here have advanced degrees or professional degrees). As a group, I do not think poor diet, drugs, tobacco, alcohol or poverty are factors. But anxiety certainly is.Ginty wrote:To me lack of higher education (because of either poverty or lack of academic ability) on a general scale will correlate with poorer diet, increased consumption of alcohol, drugs and tobacco and therefore poorer health. This combined with the increased likelihood of depression due to poverty and perhaps dissatisfaction with ones position in life are probably all influences.
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