Gluten free snacks
Gluten free snacks
Ok I'm seeing some real benefits to strictly following a gluten (not just wheat) free diet. Hard work sometimes but unless its the occasional valium I take symptoms have been very manageable as a possible result.
I'm ok in the evenings - potatoes, rice, home made sauces with rice flour to thicken, cider instead of beer, no bread or pasta.
BUT in the day lunchtime snacks are more difficult!
Any advice GF dudes?
I'm ok in the evenings - potatoes, rice, home made sauces with rice flour to thicken, cider instead of beer, no bread or pasta.
BUT in the day lunchtime snacks are more difficult!
Any advice GF dudes?
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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There are a lot of GF flours you can use to make cookies, pancakes, bread etc
GF bread is available from Whole Foods and many other health stores.
You can make rather nice rice pancakes:
120g white rice flour, ½ tsp baking soda, 2 tblsps sugar, 2 eggs with little water (total 712 cals) Mix ingredients and add water till slightly runny. Makes about 4 pancakes, use low heat on pan. If using a s/steel pan (which I recommend, non-stick is toxic), wipe with oil before each pancake.

GF bread is available from Whole Foods and many other health stores.
You can make rather nice rice pancakes:
120g white rice flour, ½ tsp baking soda, 2 tblsps sugar, 2 eggs with little water (total 712 cals) Mix ingredients and add water till slightly runny. Makes about 4 pancakes, use low heat on pan. If using a s/steel pan (which I recommend, non-stick is toxic), wipe with oil before each pancake.

Last edited by webslave on Tue Jan 23, 2007 12:55 am, edited 1 time in total.
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I used a GF Diet when I was initially diagnosed with Ulcerative Colitis. The best place to go (as you are in the UK) is Tesco as they have a massive "free from" section where you can get gluten free snacks. Also, I believe Sainsburys have a gluten free brochure you can get from their website which lists all foods they have in store that are gluten free. They, like Tesco have a "free from" section, although it's never as big as Tesco.
Age: 41 | Onset Age: 30 Symptoms Initially: Urine frequency, Rectal Pain, Bladder Pain, Penile Pain, Numb Inner Thigh Pain, Constipation, Fever. Symptoms now: None | Helped By: Resolution of phimosis /Elavil, Stretches. Worsened By: Stress Stress Stress!
I don't know how available they are outside north america, but I'm going to try Lara Bars. They snack bars are made from fruit and nuts and nothing else, or so I'm told. I've found some decent rice flour cookies and can't wait to try those pancakes. Other than than, it's fruit and raw nuts.
The key for me has been leftovers. Last night's dinner is tomorrow's lunch. I'm off dairy, gluten, corn, legumes/soy, nightshades/tomato/potato, coffee, additives, most sugar since New Year's. It's taking a lot of time to shop, prep, cook, clean up.
The key for me has been leftovers. Last night's dinner is tomorrow's lunch. I'm off dairy, gluten, corn, legumes/soy, nightshades/tomato/potato, coffee, additives, most sugar since New Year's. It's taking a lot of time to shop, prep, cook, clean up.
I am not a doctor too!
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Thanks guys. Pancakes look yummy Mark!
Pain free today pretty much. Could the GF diet have such a dramatic effect - occasional "mistakes" up until 3 days back where I've definitely not touched gluten or wheat?
We'll see - its probably too early to tell...
Pain free today pretty much. Could the GF diet have such a dramatic effect - occasional "mistakes" up until 3 days back where I've definitely not touched gluten or wheat?
We'll see - its probably too early to tell...
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
Ok I had a bit of a wheat/gluten binge on the weekend and my past symptoms have come back really strong (stomach upset, tingling hands & skin, tiredness). Could it be that as I wean myself off wheat / gluten the tolerance levels of my body decline? I read this somewhere on the forum.
Onions also make my perineum pain worse. I also think I'm lactose intolerant!
Onions also make my perineum pain worse. I also think I'm lactose intolerant!
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Once mast cells have proliferated in your genitourinary tract, due to the neurological stimulation (see research showing that mast cells increase near nerve endings that are chronically stimulated in other animals), they can react to circulating food antigen-antibody immune complexes as well.
"Food allergies are usually due to the protein component of the offending food. For some reason some of the food protein is absorbed from the intestine intact, instead of being digested as most proteins are. Once the intact protein is in the blood stream, it is recognised as a foreign protein to the body, or in other words as an antigen. The body produces antibodies (usually immunoglobulin E) to this antigen, and the immunoglobulin binds the antigen to form an antigen-antibody complex.
This antigen-antibody complex travels around the body and stimulates certain cells, called mast cells, to burst open and to release substances which mediate an allergic reaction"
"Food allergies are usually due to the protein component of the offending food. For some reason some of the food protein is absorbed from the intestine intact, instead of being digested as most proteins are. Once the intact protein is in the blood stream, it is recognised as a foreign protein to the body, or in other words as an antigen. The body produces antibodies (usually immunoglobulin E) to this antigen, and the immunoglobulin binds the antigen to form an antigen-antibody complex.
This antigen-antibody complex travels around the body and stimulates certain cells, called mast cells, to burst open and to release substances which mediate an allergic reaction"
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Ok thanks but wouldn't that mean that if over time the neurological wind-up reversed and the nerves became less stimulated which in turn reduced the production of mast cells (through the SP for example) wouldn't dietary issues in relation to chronic prostatitis / chronic pelvic pain syndrome cease (or become less of) a problem?
Wouldn't there be no mast cells for the antigen-antibody complex to react with?
Or are we as sufferers more prone to mast cell production now indefinitely?
Obviously wheat for example plays people up in other areas i.e the stomach but that's not what you are saying is it Mark? In terms of dealing with chronic prostatitis / chronic pelvic pain syndrome gluten / wheat avoidance becomes necessary for life period?
Wouldn't there be no mast cells for the antigen-antibody complex to react with?
Or are we as sufferers more prone to mast cell production now indefinitely?
Obviously wheat for example plays people up in other areas i.e the stomach but that's not what you are saying is it Mark? In terms of dealing with chronic prostatitis / chronic pelvic pain syndrome gluten / wheat avoidance becomes necessary for life period?
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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My understanding is that mast cells, once there, are there for good. I'm open to correction on this by an expert in the area. This may be one of the key reasons why pelvic myoneuropathy/CPPS is reversible to a large extent (99% people often say), but not 100%. In my own case, the continued reactivity of these mast cells has meant a permanent change in my diet.
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Re: life cycle of mast cells. This is from an ancient study. Feel free to correct me with new data:
http://jcs.biologists.org/cgi/reprint/2/1/33.pdfBlenkinsopp wrote:As the mast cells in rats appear to increase in number at a rate much slower than the rate of increase in body weight, probably a small proportion of them divide and the others survive as long as the animals. It is unlikely that they have a turnover (which implies an orderly process of discard and replacement). Similar conclusions were reached in a study of mast cells in mice (Blenkinsopp, 1967).
Last edited by webslave on Tue Jan 30, 2007 3:40 pm, edited 1 time in total.
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From Blood, 15 August 2005, Vol. 106, No. 4, pp. 1330-1336.Christine Möller et al wrote:One characteristic feature of mast cells is their longevity.... Mast cells are long-lived multifunctional effector cells of the immune system ...
Stem cell factor promotes mast cell survival via inactivation of OXO3a-mediated transcriptional induction and MEK-regulated phosphorylation of the proapoptotic protein Bim
Authors: Christine Möller, Jessica Alfredsson, Maria Engström, Hanna Wootz, Zou Xiang, Johan Lennartsson, Jan-Ingvar Jönsson, and Gunnar Nilsson
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Interesting stuff. It seems like they dont increase over time or get out of control at least even if they do not disappear entirely. however many things can trigger mast cell production (i.e. exercise, temperature, diet). Aside from gluten and possibly exercise many men dont seem to complain of problems with other mast cell provocateurs. Particularly after becoming symptom free for years. Maybe gluten is a bigger provoker than other simulators? Maybe those who dont alter the state of their muscles / nerves continue to produce more mast cells but instead block them though other methods (stress relief, medication, anti-hists, dietary changes)?
Not to cause alarm and I may be very wrong but I have heard that mast cells can be linked to the development of cancer? who knows? Hopefully I am wrong but I'm not gonna worry about that now
Not to cause alarm and I may be very wrong but I have heard that mast cells can be linked to the development of cancer? who knows? Hopefully I am wrong but I'm not gonna worry about that now
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Don't confuse production with degranulation.GP2 wrote:many things can trigger mast cell production (I.e. exercise, temperature, diet).
Certainly for me, yes.Maybe gluten is a bigger provoker than other stimulators?
That's still in the realm of speculation, I think.Not to cause alarm and I may be very wrong but I have heard that mast cells can be linked to the development of cancer? who knows? Hopefully I am wrong but I'm not gonna worry about that now
http://www.sciencedaily.com/releases/20 ... 151021.htm
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Interesting stuff, if not exactly good news.
Surely this is an area where the pharma companies could get involved and actually provide something useful - a mastcell destroyer.
Surely this is an area where the pharma companies could get involved and actually provide something useful - a mastcell destroyer.
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
It seems to me that any thing that can or would target mastcells I would think can target healthy cells. Cells in general die off every day right? So is it proved that mastcells have a longer life than regular cells or healthy cells? or for that matter cancer cells? I would think that mast cells develop, degranulate and release the nasty stuff and die off. The problem is, the body remembers what was causing these mast cells to develop in the first place. That's maybe why we have to change our diets and life styles so they don't trigger the body to produce more mast cells??? Just a thought and I'm not a doctor or in any way qualified to make this statement, but I just can't conceptualize a cell that doesn't split and multiply. That a cell would just live for a long duration in the body??
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I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.




