Hello Everyone - Probable Prostatitis

[Gav]

Hello Folks,

I have no diagnosis, but I am sure a lot of you have that in common. It seems I have some form of prostatitis. Here is my story so far....

I had a kidney stone that wouldn't budge and was causing me some severe kidney and bladder pains back in October 2006 (last year). I had to have a ureteroscopy (operation where a instrument inserted into my penis into my bladder and kidney) to remove the stone. The actual operation didn't find a stone, but I peed one out the next day when I was home. For 5-6 days after this I had all the symptoms of a UTI that went untreated and cleared up. I was at this time using an alpha blocker called tamsulosin. I stopped using the tamsulosin when all cleared up and within five days experienced pains in my pelvic area, which turned into more frequent urination, mild fever, perineum pain, and a lot of dull rectal pain which makes it tough to sit and constipation. I have no burning Urine, no real pain when urinating (apart from the pain increasing in my rectum...prostate being pushed back?). I don't have painful ejaculations or any pain associated with them.

I went to see my GP who said it was just my body recovering from the operation and I got the same explanation from my specialist who gave me some ciprofloxacin (500mg twice a day) just in case I had some prostate inflammation. I got a letter from my specialist about 2 days later recommending I take the level of Cipro down to 250mg after two weeks on them and he asked me to stop the tamsulosin immediately as he thought it was not helping. After about 6 days after I started the Ciprofloxacin I made a FULL recovery and stayed that way until about 4 days AFTER I lowered the dose of Cipro to 250mg. My symptoms were then up and down and my GP recommended upping my dosage back to 500mg and said I should never have lowered it in the first place.

Unfortunately this didn't work and I was up and down with symptoms (particularly my rectal pains) and in the end I saw my specialist again who recommended I come off the Cipro completely. I did this and my symptoms heightened so I went to my GP who actually did a rectal prostate examination and thinks it it s textbook case of prostatitis (most likely bacterial). He prescribed me Doxycline (100mg twice a day) and I have been on these now for about 10 days. After 4 days or so my symptoms had nearly all gone, but now the rectal pain has returned and doesn't appear to be leaving. I am presuming the rectal pain is my prostate pushing on the back of my rectum.

I am pretty lost and now think I probably should get back on the tamsulosin with the Doxycycline as their could be some back flow of the urine on my prostate causing some inflammation. After all, I got to a FULL recovery for over a week after I was on 500mg ciprofloxacin with tamsulosin (which I stopped a few day before a full recovery) and it may well be the lack of tamsulosin alongside the antibiotic that has been missing since....

I have rattled on enough...What are your opinions? Does this sound like a bacterial case to you? It is odd that it the symptoms came a week or so after my ureteroscopy and also my reaction to Ciprofloxacin initially seemed to be pretty good. Also, why does it seem that the rectal pains are the worst ones I am getting?

Also, I am from the UK, 30 years old and have Ulcerative Colitis too (in remission for 3 years since I altered my diet and lifestyle alongside medication).

I look forward to healing where I can.

Take care all,

Gav

[webslave]

No, it doesn't sound like bacterial prostatitis to me. The early reaction to Cipro is pretty common and misleads a lot of people into believing they have an infection. See https://ucpps.men/antibiotics-are-anti-inflammatory-agents

What does a real case of chronic bacterial prostatitis sound like?
viewtopic.php?p=20222#20222

Your ulcerative colitis and recent trauma to the g-u tract is more important, and has led to a myoneuropathy, IMO.
https://ucpps.men/pelvi ... pathy.html

There is a recent study showing how IBS can trigger bladder inflammation via neural cross-talk. See our News forum.

[Clay]

Welcome, Gav. I think you can find real help here.

I had a kidney stone extracted in November. Fun stuff, eh? I think it took me about 6 weeks to really get past it, but then I have Chronic Fatigue so everything is harder. My stone was referring pain to my penis, which was really confusing.

I also have lymphocytic colitis, and I'm curious what you've done with your diet. I believe Webslave has some experience with colon problems, too. I'm currently on a simple paleolithic diet and rice. I feel like my bowel problems have left me sort of obsessed with that area and possibly led to my trigger points in nearby muscles.

My main chronic prostatitis / chronic pelvic pain syndrome symptoms now are rectal and coccyx pain. I'm getting internal physical therapy. When she finds a trigger point she mentions that there's another one. I don't have to be told. I feel it the minute she touchs it. There's no doubt I have CPPS.

I went through Cipro and a urologist who was certain I needed prostate surgery. I'm off the alpha blockers now and my prostate is fine. He was so wrong it's scary.

Get Headache in the Pelvis, start a relaxation program, start stretching, find a physical therapist. It won't hurt, and it may well work better than the standard medical advice you're getting.

[Gav]

Wow Thanks guys for the very quick responses.

Webslave, apologies if it simply stated it in your link and I have missed it but would someone with myoneuropathy show actual physical signs of prostate inflammation, or just the symptoms similar to that in prostate inflammation? I have always had issues with worrying about using the toilet since I was younger so may be a prime candidate for tensing the muscles of my pelvic floor subconsciously?! This was a real problem while I had the kidney stone last year, holding on before needing the toilet was an issue.

Clay, the diet that helped me immensely with my Ulcerative Colitis was the Specific Carbohydrate Diet (http://www.scdiet.org) although I had to modify it a bit as the nuts on the diet played havoc in my GI Tract.

Thanks for the posts. As soon as I saw this website earlier I ordered the headache in the pelvis book. Any accredited quercetin product would be something I would look into also I think, but at present I am going to give the doxycycline a chance first.

Gav

[webslave]

...would someone with myoneuropathy show actual physical signs of prostate inflammation, or just the symptoms similar to that in prostate inflammation?

Both, or either. chronic prostatitis / chronic pelvic pain syndrome categories IIIa and IIIb both fall into this group.

I have always had issues with worrying about using the toilet since I was younger so may be a prime candidate for tensing the muscles of my pelvic floor subconsciously?!

Absolutely!

I am going to give the doxycycline a chance first.

You've only had this a short while, so yes, give doxy a fair run, but I'm not hopeful on that front.

[Gav]

Hi Webslave,

I am unsure as to whether Pelvic Myoneuropathy and chronic prostatitis / chronic pelvic pain syndrome are the same thing from the description in the link you posted. Are they indeed the same thing?

What I am still clinging to (falsely perhaps) is that my symptoms did suddenly kick in over a matter of a day or two a week and a bit after my Ureteroscopy thus meaning perhaps it is bacterial and the antibiotics may take affect still.....

I worry that I would find the route of physical therapist and pelvic floor muscle testing difficult to come across in the UK if I do go down that route to be honest. I guess this worry is natural and I just have to come to terms with it.

This has hit me at the worst possible time as I am about to move up to Scotland (from England) for a new job having left my old job at the end of December thinking this would clear up easily, yet have had to postpone the new move it as some days I find it very difficult to get out of bed because of the rectal pain.

I take it that webslave and Clay, you both use Quercetin? I am thinking this is something I should invest in sooner rather than later, after I have given my current anti biotic a good run. What is your advice?

Also, how long did it take you both to find your symptoms manageable, if you have reached that stage?

Thanks in advance.

Gav

[webslave]

I am unsure as to whether Pelvic Myoneuropathy and chronic prostatitis / chronic pelvic pain syndrome are the same thing from the description in the link you posted. Are they indeed the same thing?

Yes, they are.

What I am still clinging to (falsely perhaps) is that my symptoms did suddenly kick in over a matter of a day or two a week and a bit after my Ureteroscopy thus meaning perhaps it is bacterial and the antibiotics may take affect still.....

CPPS/PM can kick in suddenly.

This has hit me at the worst possible time as I am about to move up to Scotland (from England) for a new job having left my old job at the end of December thinking this would clear up easily, yet have had to postpone the new move it as some days I find it very difficult to get out of bed because of the rectal pain.

Change = stress. It is not surprising it hit you now.

I take it that webslave and Clay, you both use Quercetin?

I don't use any medications or phytotherapy any longer.

I am thinking this is something I should invest in sooner rather than later, after I have given my current anti biotic a good run. What is your advice?

When you feel you've given the antibiotic a good run, get your free bottle of Quercetin.

Also, how long did it take you both to find your symptoms manageable, if you have reached that stage?

It took me years, but I knew nothing in those days. You could get a grip on this quite quickly.

[Clay]

I think the any accredited quercetin product helps some, but not like taking aspirin for a headache. It doesn't prevent or remove the all the pain.

[Gav]

Just a quick update. My symptoms have gone mad over the last day or so with pain immense in the rectum and perineum and pain recurring in the bladder and penis. I also seem to have a fever and feel sick whenever I try to sleep and pain killers are not doing anything much at all. My doctor has asked me to go to hospital right now, not sure if I will get admitted or not, but I will be having tests and closer examinations than so far.

Not a good time right now.

[GP2]

Ber in mind Gav that when this strikes most of us in the early days the pain is wild & the body sort of doesnt know how to react in a way. My worst days back in 2005 where the fire in my pelvis spread over my stomach, legs, chest was daunting to say the least.

Hang in there mate!

[Richard.N]

Hang in there mate!

Seconded. The very early days are the worst - we've all been there.

[GP2]

So is your recent flare-up still under control Richard? What helped - sorry if you have said!

[Gav]

Thanks guys. I was sent home after being given a rectal examination and an emergency appointment will be set up with my specialist, but I doubt much will come of this. They said they would have kept me in, but there was nothing they could do (I am getting used to hearing this).

It felt like someone has stuck a knife up my arse all the way through the night. It doesn't feel as bad now, although it still feels as if my bum has been sewn up, other pains continue. Oh joy.