Hey all,
As I've mentioned a few times, I've been going to the PT Marilyn Freedman, who is very good.
She found a few trigger points that just wouldn't loosen (even with her PT, with hot Baths, stretching, and Valium). So she sent me to a local acupuncturist who specializes in CPPS. (He doesn't do the looking at the tongue mumbo-jumbo, the incense-and-candles bit; he sticks the needles into your TPs, because that seems to loosen them better than fingers do.)
Anyway, this guy had me stop stretching for 48 hours after I went to him. I noticed that my frequency symptoms abated. When I started my stretching again, the symptoms returned. And cycle this happened again, when I went to the guy a second time.
Now, I know people on here think that flare-ups are good -- sort of like messages from the body that say: "You're onto something; keep at it."
But I wonder... if baths and external massage and valium make me feel better, and stretches make me feel worse, shouldn't I just cut out the stretches?
If it ain't broke..... (acupuncture and stretching)
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darin
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If it ain't broke..... (acupuncture and stretching)
Age: 36 | Onset Age: 35 | Symptoms: urinary urge/frequency; some pain in perimeum and left testicle | Helped By: PT, Stretches, Hot Baths, Valium | Worsened By: Stress, unknown reasons
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webslave
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I'd say do what's making you feel good, but if you hit a plateau and stop improving, re-incorporate stretches.
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scoobysnacks
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I would agree with webslave here. You sometimes have to do what is intuitive with this.
SS
SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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carld
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That's interesting Darin. Where were the pins placed?
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I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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darin
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the pins were placed along what he called the "bladder meridian": my TPs are in by buttocks and my back (the quatratus lumborum) and around my stomach.
I'll let you know how it goes; I'm seeing him again tomorow
I'll let you know how it goes; I'm seeing him again tomorow
Age: 36 | Onset Age: 35 | Symptoms: urinary urge/frequency; some pain in perimeum and left testicle | Helped By: PT, Stretches, Hot Baths, Valium | Worsened By: Stress, unknown reasons
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GP2
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Darin is the treatment expensive?
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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darin
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The treatment is 150 an hour, but my insurance covers 70 percent of the first ten visits (hopefully all I'll need).
Age: 36 | Onset Age: 35 | Symptoms: urinary urge/frequency; some pain in perimeum and left testicle | Helped By: PT, Stretches, Hot Baths, Valium | Worsened By: Stress, unknown reasons