Very uncomfortable day today.
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Tracflog
- New Member
- Posts: 11
- Joined: Thu Sep 21, 2006 5:32 pm
Very uncomfortable day today.
Today for some reason has been really bad for me, as far as the pain goes. I can't even describe what the pain feels like. I'm sitting here now trying to concentrate the location of the pain and I just can't do it. It clearly hurts worse while I'm sitting. Its like someone is sticking some kind of electric probe up my ass and torchering me. I mean everyday for the last 3 years I've had to deal with this crap. I never have any days where I say "Wow I feel great today." Then I have to have one of these wonderful days where the discomfort makes me wanna cry. I'm curious to know if anyone else experiences a full body melt down like I do. It seems like the pain will kick in and just like dominos , a chain reaction will start in my body that makes me feel like crap. I'm trying to beat this like a man, with no help from doctors or anyone else. I think I need to make some kind of change before I go insane. Thanks for listening troopers.
Age: 30 | Onset Age:26 | Symptoms:Primary symptom is pain in the area of the perineum. Do not have frequent urination. Do not have golf ball feeling. Sometimes feel as though I have urine in the area of the perineum where if I try to urinate I can sometimes alleviate the pain. Pain can be described as sort of a burning/tightness discomfort. Usually do not feel that great when the pain is at its worse. Have seemingly also developed an acid reflux problem over the past couple years. | Helped By: Warm water, although dont seem to get much from other sources of heat, like heating pads. For some reason drinking alcohol seems to make my pain better. Not ejaculating for extended periods of time helps, but the longer I go without ejaculating, the worse its going to be once I do. Tried prosta-q and Q-Urol, both didn't do anything for me. Have been on multiple antibiotics, all of which did not help. Have tried pain killers, worthless. Elavil for a while, didn't seem to help either. | Worsened By: Sitting in certain chairs. Driving for an extended period of time. Ejaculation. Walking sometimes makes it seem worse. Basically moving around at all kinda bothers me.
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carld
- Retired Mod
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- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
Trying to do this own your own with out seing a urologist to first confirm that you don't have any other medical conditions out side of pelvic myoneuropathy is something you may re-consider. Not to be talking out of my ass, ( no pun intended) because this whole wretched thing is new to me, but from what I have learned, CP/CPPS for any "Man" takes a great deal of time and help from other's like a qualified PT who understands pelvic muscle internal work and a Urologist who understand that CP/CPPS is caused for a lot of us by stress and needs to be treated outside the " box". Do your self a favor brother and if you want to get better you have to start by seing a Urologist and get a cystoscopy done after you have your EPS done on your prostate. ( expressed prostatic secretion) done to see if you are inflamed or not. Then go from there. I'm not a doctor and I'm in no way qualified to give you any medical advice Take care
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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scotsman
- Retired Mod
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- Joined: Mon Aug 18, 2003 4:26 pm
- Location: Scotland, UK
Tracflog - have you started doing any stretching or relaxation?
What treatment have you already undertaken? (apologies if you have already posted this).
Richard.
What treatment have you already undertaken? (apologies if you have already posted this).
Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Clay
- Veteran
- Posts: 168
- Joined: Mon Sep 25, 2006 3:46 am
- Location: Redmond WA, USA
I can't imagine getting through this without pain meds. I don't want to imagine it.
I get panic attacks from visiting doctors, but I've found ways to deal with that because the pain is worse than a panic attack.
We talk about everything personal here, man. Is money the reason you don't go to doctors? There must be a reason.
I get panic attacks from visiting doctors, but I've found ways to deal with that because the pain is worse than a panic attack.
We talk about everything personal here, man. Is money the reason you don't go to doctors? There must be a reason.
I am not a doctor too!
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
Age 64, sudden onset 5/06 during bout of flu, colitis, lung and liver problems. Pain in penis, then moved to rectum. No urinary symptoms. Use Lyrica, Elavil, paxil, Xanax, morphine, vicodin, relaxation, pads for sitting, 100+ PT sessions. Sensitive to gluten, milk protein, soy. I have CFS, anxiety, GERD, Barrett's, colitis, kidney stones, one of which referred pain to penis.
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Tracflog
- New Member
- Posts: 11
- Joined: Thu Sep 21, 2006 5:32 pm
This is my current doctor situation. Last time I went to the urologist was about 6 months ago. He said just give it some time so I said fine, Ill wait 6 months and see what happens. This is after he gave me some Bactrim, Cipro, and Doxy, also have been given pain medication, Ibuprofen and Naproxen. None of that seems to help me much. So I had an appointment to go back last week and when I got there they said I needed to update my refferal so now I had to make an appointment with my general practioner, which I have next week, before I can go back to the urologist. I havent had any of the tests that people seem to get for this, like a cystoscopy or a DRE. All of I had is a quick anal exam by a doctor and numerous urinalysis which always come back negative. Can the urologist give a cystoscope or do you have to go to a hospital to have it done? If you so id like to ask to have this done before I go back to the urologist.
Age: 30 | Onset Age:26 | Symptoms:Primary symptom is pain in the area of the perineum. Do not have frequent urination. Do not have golf ball feeling. Sometimes feel as though I have urine in the area of the perineum where if I try to urinate I can sometimes alleviate the pain. Pain can be described as sort of a burning/tightness discomfort. Usually do not feel that great when the pain is at its worse. Have seemingly also developed an acid reflux problem over the past couple years. | Helped By: Warm water, although dont seem to get much from other sources of heat, like heating pads. For some reason drinking alcohol seems to make my pain better. Not ejaculating for extended periods of time helps, but the longer I go without ejaculating, the worse its going to be once I do. Tried prosta-q and Q-Urol, both didn't do anything for me. Have been on multiple antibiotics, all of which did not help. Have tried pain killers, worthless. Elavil for a while, didn't seem to help either. | Worsened By: Sitting in certain chairs. Driving for an extended period of time. Ejaculation. Walking sometimes makes it seem worse. Basically moving around at all kinda bothers me.
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carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
Your urologist can give you the cystoscopy right there in the office(flexable type).
So when your urologist checked you that would of been your DRE ( digital rectal exam) and checked your prostate? Did your uro give you any details of the exam you were given?
Its standard for uros to throw antibiotics because of the anti-inflammatory effects it has for some people, but this is fruitless in most cases.
So when your urologist checked you that would of been your DRE ( digital rectal exam) and checked your prostate? Did your uro give you any details of the exam you were given?
Its standard for uros to throw antibiotics because of the anti-inflammatory effects it has for some people, but this is fruitless in most cases.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Howden
- Intermediate Member
- Posts: 90
- Joined: Thu Jan 12, 2006 2:17 pm
- Location: Toronto
Tracflog: I don't know where you are located, but if you can find a clinic specializing in prostatitis (as I did) you will probably get all the tests you can possibly need. You might get the same from a hospital based urologist, but that approach never helped me. If we knew your state, province or whatever, someone might be able to point you in the right direction and to the right urologist. It's worth a try.
Age: 71; age at onset: 65; symptoms: initially rectal spasms; currently anal pain, pereneal pain, buttock pain; all pain on the right side; early diagnosis: chronic non bacterial prostatitis; treatments 4 long courses of antibiotics, accupuncture, naturopathy; current treatments: gabapentin, terasozin, Celeza, PT.
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Richie
- Senior Veteran
- Posts: 298
- Joined: Wed Sep 29, 2004 1:27 am
- Location: SW Florida
Newbe be stuff
Read this. Get started stretching, check your diet, etc. If you are still in the "chasing doctors/antibiotic" stage you need to do some homework.
Don't sweat it, we were all there. It does get better.
https://ucpps.men/#
Don't sweat it, we were all there. It does get better.
https://ucpps.men/#
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
I agree. Read the information on the pelvic myopathy theory, and look in the the pelvic tension concept, then= start applying the concepts. They worked for me and my brother. You can do that at no cost to you while you pursue medical options with your doctors.
I just flew 8 hours yesterday across the USA and then spent 3 days driving around cities and I feel fine. Three years ago, I was in your shoes. So you can get past this with a careful and attentive approach.
I just flew 8 hours yesterday across the USA and then spent 3 days driving around cities and I feel fine. Three years ago, I was in your shoes. So you can get past this with a careful and attentive approach.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.