Tarlov Cysts
-
kenn101
- Intermediate Member
- Posts: 88
- Joined: Fri Jan 28, 2005 6:31 pm
- Location: Canada
Tarlov Cysts
I happened to to see something on Tarlov Cysts at NORD. Does anyone know the differences between our symptoms and those of someone afflicted with Tarlov Cysts?
I HAVE NO MEDICAL TRAINING JUST CPPS
Age:48 | Onset Age: 39 | Symptoms:mod to extreme Pain in testicle (both), right epididymis, lower back lower right and centre abdomen. Urination frequency and urgence, decreased or no urine stream, ED, night time incontinence after riding in a vehicles or too much movement. | Helped By: eating ice frequency by Elavil, urine stream by Hytrin or Flomax. Pain control Methadone and Hydromorphone but more so by Triamcinolone epidurals. | Worsened By: Too much movement, SSRI's, Hot baths or showers. eating warm or too much food,DMSO treatments. Frequency by caffeine, stress or SSRI's.
Age:48 | Onset Age: 39 | Symptoms:mod to extreme Pain in testicle (both), right epididymis, lower back lower right and centre abdomen. Urination frequency and urgence, decreased or no urine stream, ED, night time incontinence after riding in a vehicles or too much movement. | Helped By: eating ice frequency by Elavil, urine stream by Hytrin or Flomax. Pain control Methadone and Hydromorphone but more so by Triamcinolone epidurals. | Worsened By: Too much movement, SSRI's, Hot baths or showers. eating warm or too much food,DMSO treatments. Frequency by caffeine, stress or SSRI's.
-
webslave
- Maintenance
- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
From http://www.tarlovcyst.net/introduction.htm
Common symptoms include pain in the low back, buttocks and hips. The thighs, legs and feet may or may not be involved.3 Symptoms can be opposite-sided. Tarlov cysts can also cause pain and dysfunction in the organs of elimination and reproduction, hypoesthesia, paresthesias, and pain in the thigh from lack of blood supply (neurogenic claudication).4 The postures of sitting, standing, walking, and bending are typically painful, and reclining flat on the side is usually the only posture that offers relief.
Pain from Tarlov cysts is similar to pain from herniated lumbar discs and some gynecological disorders. A person who has a Tarlov cyst and any Tarlov cyst symptom needs evaluation by a specialist who has the expertise to determine if the symptoms are from a Tarlov cyst or another cause. However, it is the rare specialist who is familiar with the symptomology and recent advances in Tarlov cyst treatment.
....
Different Tarlov cyst sufferers respond differently to various postures and activities, and there is no typical onset or rate of progression of the disease. Some experience severe pain at onset, but the symptoms are mild at onset in other cases. Difficulty sitting is perhaps the most common disability. Frequent change in position and frequently lying down to rest are the measures required by most patients to get relief from loow back and, often, leg pain.
Many persons with Tarlov cysts report that they are able to exceed their usual postural or activity limits for a time, but they then "pay for it" by experiencing a delayed flare. For example, after exceeding their quota earlier in the day, they will later in the day experience pain that is so severe that, even with narcotic pain medication, they cannot sleep. Flares can last for days, weeks, and even months
Good News! The great ProstaQ is BACK at last! You must try it.
| HAS THIS SITE HELPED YOU? Say Thanks by donating. Keep the Forum alive on the Internet! PayPal link at end of page ↓ Contact me at support at ucpps.men |  |