Enzymes.. a common thread

Male pelvic pain, prostatitis, IC
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easytiger
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Enzymes.. a common thread

Post by easytiger »

I have had chronic prostatitis / chronic pelvic pain syndrome for over two years now and have tried many supplements to help. I keep on coming back to how my first flair up happened - a heavy night on the booze.

On the basis that this condition is related to absorption (or lack of it) of food (as avoiding gluten was the most significant advance I made) I started to think that my pancreas was involved (linked to the alcohol trigger). Also, at the beginning of all this I had an endoscopic ultrasound of my pancreas which highlighted scarring in the pancreas (specialist said that as this was such a new technique that a norm had not been identified and as all the standard tests hadn't pointed to a problem with my pancreas then I should be mindful of it but that it wouldn't be a cause of the CPPS).

Anyway, in March 2006 I started taking pancreatin and for two months I found this greatly helped (however this could have been the laxative effect which caused looser bowel movements). At the same time I started taking Quercetin. A week ago I decided to give Wobenzym N a go as the pancreatin had run out (btw Wobenzym N has pancreatin in it too).

My experience of the Wobenzym N (only a week) is that it has started a reaction similar to when I was first given trimethoprim (after a week or so a very bad back and flatulence and then relief from pain which stopped when I stopped taking the AB).

I have started to look at similarities between the ingredients to all these pills and have found Papain and Bromelain feature in Wobenzym N and Quercetin (also Quercetin]).

So my theory of the week (and from experience I am as sceptical as the next sufferer) is that this is related to how our bodies absorb food which is strongly influenced by our pancreas (primary source of enzymes). So assist the pancreas and combat CPPS.

I am putting this out there to garner views and also to see if anyone else has explored this avenue (I guess this is most relevant to people that have controlled symptoms with Gluten avoidance).

What d'ya think guys? :?:
Age:36 | Onset Age:34 | Symptoms: Only an ache in the perineum if I avoid the worsened by items, otherwise severe pain and urinary issues | Helped By: No.1 is avoiding gluten, No.2 is a glass of red wine a night (currently avoiding this based on pancreas theory) | Worsened By: Gluten, strong alcohol, stimulants - caffeine etc, Aspartame, fizzy drinks, basically most thinks with artificial ingredients
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DavidB
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Post by DavidB »

Hi,

If you think there is scarring in the pancreas, you might want to try the enzyme serrapeptase - it supposedly dissolves all dead tissue (including scar tissue) in the body with no side-effects. serrapeptase.info is a good source of info.

| only started taking it myself 5 days ago so can't say if its been effective yet or not.

David
Age: 23 | Onset Age: 18 | Symptoms: Constant spasm/uncontrollable sustained contractions of PC muscles (bulbospongiosus/ischiocavernosus) | Helped By: L-arginine | Worsened By:
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easytiger
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Post by easytiger »

Interesting, as I started the Wob after reading the EricPeterman protocol I also ordered some Serrazyme (aka Serrapeptase Serratia Peptidase) from the same place that I got the Wob, so may be it's the Serrazyme that is causing the improvement that I am noticing and not the Wob.
Age:36 | Onset Age:34 | Symptoms: Only an ache in the perineum if I avoid the worsened by items, otherwise severe pain and urinary issues | Helped By: No.1 is avoiding gluten, No.2 is a glass of red wine a night (currently avoiding this based on pancreas theory) | Worsened By: Gluten, strong alcohol, stimulants - caffeine etc, Aspartame, fizzy drinks, basically most thinks with artificial ingredients
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Richie
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Enzymes

Post by Richie »

I have pretty serious Gluten problems as well and the alcohol effects you mention. I just wish there were an enzyme for gluten people to take like there is for milk (Lactaide?).

If you cannot digest Gluten due to intolerance I can certainly see an enzyme connection in there somewhere since there is nothing to break the Gluten down in your body.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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chewymix
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Post by chewymix »

Wobenzym and others have been discussed many times before at length - Please put Wobenzym into the search option and you'll see. There was a long thread in the success stories thats since been removed though.
Age: 32 | Onset Age: 26 | Symptoms: 'Pelvic' pain / Abdominal + Pelvic + Hamstring Tension | Helped By: Relaxation / Rest | Worsened By: Sitting / Tension
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easytiger
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Post by easytiger »

Ok. so here's the thing for me. It is definitely something to do with my stomach. Every time I take something new, be it enzymes, probiotics, vitamins/supplements, I go through a period of getting better. This normally lasts 3 days to a week depending on how 'aggressive' the thing is. If it makes my bowel movements looser then it normally has a greater effect and lasts for longer. Typically the improvement first appears as a return of my waking erections (they go down as soon as I pee), followed by lower back pain, followed by a good reduction in the discomfort. Usually after a week the improvements start reversing and by the end of the second week I am back to square one.

This all leads me to believe the supplement alters the way my body digests food and my body slowly adjusts to the change and eventually I return to my 'normal' state. The very first treatment I had (as mentioned in the above post) was antibiotics which gave me a very upset stomach and terrible foul smelling wind. This cleared up all symptoms (after having gone through the return of erection and back pain) until I finished the 4 week course and the pain returned. I feel this supports my theory that it is digestion related. Interestingly a year and a half after the start of my problem I tried the same antibiotics again for 3 months which did not give rise to the same side effects. Why? had my body changed the way it processed food? I don't know but I do know I'll not stop looking for an answer.

Oh and yes I had done searches on the forum for Wob etc and this was why I tried it. This is the benefit of this forum, it enables fellow sufferers to tell of their experiences to maybe help others. Whilst we are pooling our experiences we stand more of a chance of finding relief if not a cure. For one I discovered the Gluten link here which probably saved my life.

My next move is to start to see a nutritionist to see if they can offer any new avenues to explore.
Age:36 | Onset Age:34 | Symptoms: Only an ache in the perineum if I avoid the worsened by items, otherwise severe pain and urinary issues | Helped By: No.1 is avoiding gluten, No.2 is a glass of red wine a night (currently avoiding this based on pancreas theory) | Worsened By: Gluten, strong alcohol, stimulants - caffeine etc, Aspartame, fizzy drinks, basically most thinks with artificial ingredients
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Richie
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Antibiotics

Post by Richie »

The benefits of antibiotics as an initial anti inflammatory are well documented on this site, along with the fact that the benefit is temporary until your body adjusts to its use. Remember that antibiotics often kill off the natural flora in your stomach so I was helped by eating yoghurts (contain active bacteria cultures) but it took a while to stabilize.

Gluten problems were the major source for me. It takes a while to figure out EVERYTHING that has wheat in it, e.g. Malt used as a coloring in barbeque sauce, its endless. Pay attention to what causes you pain and flare ups, then get rid of it. Eg, wine has no gluten but it still affects me.

Focusing on the gluten and hard core stretching at least 3 times daily was the key for me. Any stretch causing flares is the RIGHT stretch, so keep at it.

Other things that helped was this article on food intolerance from Webslave.

http://gdx.net/home/assessments/allergy ... ypaper.pdf

I also take Cysto Protec which contains a lot of quercetin.

Keep on it. Your answers are here.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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