Guys,
Aside from following a rigid diet,, I recently did a ten day juice fast and in conjunction with my PT and unique stretching methods I learned....my condition has disappeared. The fast works wonders...it rids your body of toxins and allows your muscles to heal and loosen up. I feel the main reason for my problem has been severe tightness in my abdominals resulting in tightness throughout the pelvic floor. Since January when this started, I have literally stretched my way out of this. Funny things is....I have been working most recently with a PT and stretching guru that are not familiar with CPPS....and that's a good thing. They do their own evaluation from a muscular perspective and go from there. There's no doubt in my mind that this whole disorder begins in the mind (anxiety, compulsiveness, stress) and ends in the muscles. What I learned is that this is not specific to one muscle group but to our whole muscular system. I listed below the websites for both the PT I am working with in NYC and the stretching person whom is based in FL.
Lou Gross-Stretching (Nice guy-will take the time to talk with you over the phone)
http://www.backfixbodywork.com/Fixing_A ... s_Pt_5.htm
Dr. Tatz-PT
http://bodytuningus.nj-web-0506.uplinke ... yles01.htm
Feeling 100% Better
Feeling 100% Better
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Please describe what you did in more detail. It sounds like something others may want to try, but you give no information that can help them. I'm not sure what a "juice fast" is.Aside from following a rigid diet,, I recently did a ten day juice fast and in conjunction with my PT and unique stretching methods I learned....my condition has disappeared.
Mike
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
And what unique stretchs are you doing can you give some more detail on what there are? And how long have you been dealing with chronic prostatitis / chronic pelvic pain syndrome length of time that is? And if you pt is not familiar with chronic prostatitis / chronic pelvic pain syndrome just what type of treatment does she do on you?
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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Astrotitan
- Experienced
- Posts: 115
- Joined: Sun Oct 30, 2005 8:05 am
- Location: Australia
Stretching does help, diet helps, lots of things can help, you have to investigate what they are. Its not the same for everybody, it is indeed a multifaceted problem.
In my case, it emanated from a back problem which caused muscles to spasm. I got some PT on my back. Did the stretches as suggested in the all knowing book. Also took mineral supplements, especially magnesium, did core muscle exercises and accepted that its all in the mind and tried not to think about it too much (very hard to do but doable). Staying off a chair becoming more mobile going away at a camp for 1 week has also helped.
I am currently at the 99% improvement mark. Stress does not bring any symptoms on, a severe flu did not aggravate things, if this is some kind of litmus test.
Tom
In my case, it emanated from a back problem which caused muscles to spasm. I got some PT on my back. Did the stretches as suggested in the all knowing book. Also took mineral supplements, especially magnesium, did core muscle exercises and accepted that its all in the mind and tried not to think about it too much (very hard to do but doable). Staying off a chair becoming more mobile going away at a camp for 1 week has also helped.
I am currently at the 99% improvement mark. Stress does not bring any symptoms on, a severe flu did not aggravate things, if this is some kind of litmus test.
Tom
Age 43: Onset June 2005, Initially: perineal pain, discomfort in penis, very sensitive, sometimes burning. Red around the urethra on penis. Increased urination during night, problems with stream, sometimes constant urge to urinate. Exercise and moving around and laying down helps. Sitting down and squatting makes it worse. Improved to about 85-95%. Symptoms usually mild pain near belly button and slight urge to urinate.
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Dj Smitty
- Veteran
- Posts: 164
- Joined: Tue Sep 27, 2005 12:59 am
- Location: London, Ontario, Canada
- Contact:
I feel great these days too...it's not totally gone. I still get mild pains in my perineum which can last for several days or only hours, then disappear for no reason. My urinating is much better but still inconsistent. But compared to the summer and early fall, I'm a new man. 
Age:23 | Onset Age:22 | Symptoms:Urinary hesitancy, moderate frequency, urgency and retention, slight perinneum, rectal and leg pain, frequent abdominal/bladder pain. Red/white spotty irritation on penis | Helped By:hot baths or showers, walking and moving around, pain medications | Worsened By: sitting for a long time, holding urine too long. I'd say I'm about 75% better naturally so far.
Guys,
The stretches I have done involve the full body. All of the muscles have to be stretched in order to keep the fascia from being bunched up in the trunk. There is no doubt in my mind that this involves the mind more than anything else. I posted elsewhere the names of two people I am currently working with...a PT in NYC that does not focus on any condition in particular and a stretching guru in FL. If anyone needs the info...I will repost. Secondly, I recently put this out of mind and I have been feeling 100% better. I find it interesting that everyone here has a different methodology about how to improve your condition. However, it is also interesting that in light of the fact that this is definitely not a "prostate" issue, several of you continue to treat it as if it is and haven't gotten any positive results. Again, it's a muscle/mental issue. That's why so many people have gotten "prostatitis" took antibiotics and never had symptoms again......they forgot about it once the doctor told them it was nothing to be concerned about. We, on the other hand, continue to allow this to affect us mentally...hence the lingering symptoms.
In regard to fasting/detox. please look up the info on the web or buy a book. There is too much to explain. Although, once you quite down the body through fasting, you will feel better. The key is to continue following a healthy diet and stretching routing afterwards.
Peace
The stretches I have done involve the full body. All of the muscles have to be stretched in order to keep the fascia from being bunched up in the trunk. There is no doubt in my mind that this involves the mind more than anything else. I posted elsewhere the names of two people I am currently working with...a PT in NYC that does not focus on any condition in particular and a stretching guru in FL. If anyone needs the info...I will repost. Secondly, I recently put this out of mind and I have been feeling 100% better. I find it interesting that everyone here has a different methodology about how to improve your condition. However, it is also interesting that in light of the fact that this is definitely not a "prostate" issue, several of you continue to treat it as if it is and haven't gotten any positive results. Again, it's a muscle/mental issue. That's why so many people have gotten "prostatitis" took antibiotics and never had symptoms again......they forgot about it once the doctor told them it was nothing to be concerned about. We, on the other hand, continue to allow this to affect us mentally...hence the lingering symptoms.
In regard to fasting/detox. please look up the info on the web or buy a book. There is too much to explain. Although, once you quite down the body through fasting, you will feel better. The key is to continue following a healthy diet and stretching routing afterwards.
Peace
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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jonestpauper
- New Member
- Posts: 14
- Joined: Fri Jan 30, 2004 1:09 am
- Location: Utah
Not for me...
Previously Posted: "However, it is also interesting that in light of the fact that this is definitely not a "prostate" issue, several of you continue to treat it as if it is and haven't gotten any positive results".
I'm definitely not in this category. I also have to watch what I eat.
My problem started as an E-coli infection. It went through my bladder, prostate, urethra and has now made a mess of my pelvic muscles and perineal area and nerves.
I've seen well over 10 urologists, 3 neurologists, and 4 physical therapists.
I'm still suffering, but I'm hangin in there no matter what.
I'm definitely not in this category. I also have to watch what I eat.
My problem started as an E-coli infection. It went through my bladder, prostate, urethra and has now made a mess of my pelvic muscles and perineal area and nerves.
I've seen well over 10 urologists, 3 neurologists, and 4 physical therapists.
I'm still suffering, but I'm hangin in there no matter what.
Awaiting The Cure!
Our bodies are built to withstand infection regardless of where it occurs. Don't believe that you cannot overcome an infection due to the location of it. You need to work with a top notch nutrionist that will put you on a diet that will reduce inflamation and promote new tissue/cell growth. Ask about fasting/detox, use of probiotics and digestive enzymes. I guarantee with a positive attitude and good diet you can overcome this brother!
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Hey.. Are you still feeling better? What is this juice fast about? I kind of believe that us with prostatitis need to clean our bodies out and that would probably help a lot of us..
Age 21.. | Symptoms: Extreme discomfort in bladder, and lower abdomen.. To the point that I can't sit still, and sleep, can't do anything.. The only that will help is getting into the bath... Urinary frequency, Urinary hesitancy, sometimes taking a few minutes to get just a little bit out.. Sometimes lower back pain when I lay down at night.. Never have the golf ball feeling everybody talks about, and never have a problem sitting down.. Helps: Hot baths, Xanax (but makes me extremely tired), stretching (it seems like only sometimes), pain killers (ex: Percocet, but if I take them, they end up making me worse the next days following, probably due to the urinary retention they cause).. Makes worse: Stress is the main main thing, caffeine and spicy foods too, but not really a whole whole lot.. only a moderate amount..
It is probably the famous Master Cleanse Lemonade fast.
http://www.ehow.com/how_12683_lemonade-fast.html
http://www.amazon.com/gp/product/096392 ... e&n=283155
I tried it without success.
http://www.ehow.com/how_12683_lemonade-fast.html
http://www.amazon.com/gp/product/096392 ... e&n=283155
I tried it without success.
Age:46 | Onset Age: 43 | Symptoms: Burning | Helped By: Sleep/Ultram | Worsened By: As the day goes by
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robertpagen
- Old Hand
- Posts: 316
- Joined: Thu Mar 18, 2004 4:51 pm
- Location: Beijing, China
Cost
Cost is an important issue for many men who have suffered this ailment as it has often left them in a difficult financial situation. For this reason ML please clarify how much these services are costing you, individually and cumulatively. Thank You
I remain well and wish you all the same,
Robert
I remain well and wish you all the same,
Robert
Age: 43 | Onset Age: 17 | Symptoms: previously: constant urgency, premature ejaculation, burning at tip of penis, pelvic ache current: semi annual flares. | Helped By: PT, yoga, stretch, keeping warm(long johns) boxer briefs, regular sleep routine | Worsened By: cystoscopy, antibiotics (fluoroquinolones) alcohol, coffee, stress, masturbation, cold
the cost depends on whether or not your insurance will pick up the PT? Mine runs about $180 per visit. My nutionist cost me $270 for a one time visit. If you live in the NYC area...please go see Dr. Fred Bisci for nutritional advice regarding your condition...he is top notch and world renowned....he treats everything and he can work wonders for you if you follow his diet.
He is located in Staten Island...718-979-7950
He is located in Staten Island...718-979-7950
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
I found cutting milk out of my diet reduced my symptoms. Just a 2 cent tip.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
Intolerant to dairy??
I don't get a stomach ache from wheat buy my muscles will react shortly thereafter.
I am intolerant to wheat.
I don't get a stomach ache from wheat buy my muscles will react shortly thereafter.
I am intolerant to wheat.
Last edited by Richie on Tue Apr 11, 2006 11:55 pm, edited 1 time in total.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
That's the intersting thing. I dont' get a stomach ache from the dairy, but I find that my rectal muscles are less likely to ache in the evenings if I avoid milk.
Its very possible that this is all just in my head, but I don't care. I'm sticking with the restriction for now.
Anyways, I am symptom free most days anyway.
Its very possible that this is all just in my head, but I don't care. I'm sticking with the restriction for now.
Anyways, I am symptom free most days anyway.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.