Fighting the need to urinate.

[roytheboy]

This is my 1st post.
If I fight the need to urinate, I am able to have an almost pain free time for up to 4 hours until the next cycle begins.
My symptoms have changed over the 5 years I have been a sufferer and indeed I seem to have a fairly unique condition. When I 1st contracted the condition I was under very little stress, however 8 months later I found myself under huge stress and if anything the condition improved. In the early days I had frequent trips to the toilet and often restricted flow now things are a bit better. The worst part of my condition is any sexual arousal less the 2 hours after I have urinated will cause a flair up. After 2 hours generally it's ok but not always. For the last month Ejaculation will definitely cause a flair up, this is not always the case though. Contrary to many posters, hot baths cause me to have a flair up.
I intend to visit a PE. I live in central Scotland and I believe SCOTSMAN uses a man in Edinburgh. If anyone can give me details I would be very pleased.

[webslave]

You don't mention what your doctors have said and what investigations they have done.

[CppsDad]

I don't think your case is that unique. I think many people report "opposites" when it comes to triggers. Some people experience flare ups at different times and for different reasons. The way your case started isn't that strange - many people get this condition due to causes other than stress. For many, stress only exacerbates things, but it isn't the sole cause. The fact that your condition improved at a time when you thought it should have gotten worse only highlights this fact; perhaps your condition wasn't fully locked in yet. In the beginning, many of us have confusing symptoms that aren't really in a stable pattern that we can make sense of.

I also want to note that there are times when I felt worse after hot baths too. I don't know if this was because the heat caused swelling, or because I only took the bath when I felt terrible (i.e. the flare up was building and therefore the effect of the bath seemed to make it worse when in fact the flare up was on it's way no matter what I did). I personally have never found hot baths to make anything better once the calming effect of the bath wore off. Nor did broccoli and certain extracts and all the other stuff that other web sites advocate. I like the hot baths because they are relaxing, and my pain seems to lessen in them for the time I am there. Nothing ever truly worked until I started stretching and doing self-massage and getting PT.

Michael

[roytheboy]

I have seen several urologists including one from Harley Street, where I had a cyst removed from my seminal duct. They though this would clear it up but of course it did not. Prior to this I took antibiotics and various drugs to increase flow but nothing worked.
I then had a course of 6 prostate massages and steroid injections -- No good!

What is surprising is that at no time did anyone explain that this could be a muscle condition. It is such a help to read on the forum that I'm not alone. All urologists would benefit from logging on here to see what is happening in the real world! How many sufferers are like I was, unaware and alone?

[scotsman]

I intend to visit a PE. I live in central Scotland and I believe SCOTSMAN uses a man in Edinburgh. If anyone can give me details I would be very pleased.

Bill Taylor
Taylor Physiotherepy
10 Comely Bank Avenue
Edinburgh
EH4 1EN

0131 332 8698.

You are probably best giving him a phone (he's always busy but they will take your number and he'll call back). Make sure you say you're a chronic prostatitis / chronic pelvic pain syndrome sufferer and specifically ask for Bill (he has a large practice with numerious physios).

Richard.