Blood vessels

Male pelvic pain, prostatitis, IC
bti20

Blood vessels

Post by bti20 »

Hello all.

On my penis and scrotum I have various raised and prominent blood vessels that are very tender to the touch. [What a chat up line :roll: ]Contact with any of these blood vessels triggers a mini-prostatitis feeling: its the same 'shade' of pain but without the intensity. To me, this is the ONLY window onto what is causing my CPPS. Without these blood vessels and their reproduction of chronic prostatitis / chronic pelvic pain syndrome pain, there would be no external manifestations of the pain at all.

What is most interesting to me is that my chronic prostatitis / chronic pelvic pain syndrome was caused (I am assuming) when I damaged a blood vessel on the underside of my foreskin in the process of trying to get rid of a wart. As I did this, a little blood vessel swelled up in the skin very angrily and I felt a really unpleasant pain: the pain was somehow nowhere and everywhere on my penis at the same time. Well, after this event I gradually developed over the course of a day the agony of a first flare-up of 'prostatitis'. Although my whole groin was in pieces I soon noticed that these prominent blood vessels were not only sensitive to the touch but they were also TRIGGERS of prostatitis pain. I could wake up in the morning feeling OK and then just TOUCH LIGHTLY the prominent blood vesssel on my scrotum and then chronic prostatitis / chronic pelvic pain syndrome would be up and running shortly afterwards.

Of course, there may be nerves entwined with these blood vessels which is what is drawing them so closely to the chronic prostatitis / chronic pelvic pain syndrome pain-process. However, given the onset of my pain and an instinctive feeling I have, I reckon chronic prostatitis / chronic pelvic pain syndrome has something to do with these blood vessels: and I'm talking causation not symptoms. Any thoughts/sympathies?
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webslave
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Post by webslave »

Ben, you've told your story more than once here. I think your history is very unusual and not many men will be able to say "That's my story too".
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alprost
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Post by alprost »

Ben,

Have you read much in relation to Vulvodynia in females? I read these articles the other week and they made me think of your case, not really in relation to the blood vessel issue, but more in relation to the sensitivity of your genital region.

http://www.obgyn.net/bibliography/glazer.htm

Al.
This is not Medical advice - Consult your Doctor!

Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.

****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!

Please read:
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J Dimitrakov
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Post by J Dimitrakov »

webmaster wrote:Ben, you've told your story more than once here. I think your history is very unusual and not many men will be able to say "That's my story too".
It is obviously one of the many faces of neuropathic pain triggered by a known stimulus.
This communication provides general information, and is not a substitute for face-to-face medical care. A doctor-patient relationship should not be assumed by the reader.
Jordan Dimitrakov, M.D., Ph.D.
bti20

Post by bti20 »

Very interesting, thanks alprost. Dr Glazer even cites mollusca contagiosum - "the lesions are usually small (1-2 millimeters), smooth, domed bumps with a central dimple covered by transparent skin" - as a possible cause of vulvadynia: this is exactly what I had. He says that the treatment for this viral infection is "opening the lesion with a small blade or needle and removing the core by scraping (local anesthetic is used)". Unfortunately the stupid *!**^!! :mad: [choose your own insult here] at the GUM clinic told me to do this at home MYSELF!: 15 months of intense pelvic pain have followed. Maybe I should sue her. My dad thinks I 'went too far'. I guess he's right.

Anyway, Dr Glazer says "at least one source notes that lesions can become red and sore when the virus triggers an immune response".

What would such an immune response mean in my case, Dr D? How could it involve blood vessels? Or do you think that I just damaged a nerve?

Sorry, these are not very public spirited questions. Thanks for feedback chaps.
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Post by webslave »

J Dimitrakov wrote:
webmaster wrote:Ben, you've told your story more than once here. I think your history is very unusual and not many men will be able to say "That's my story too".
It is obviously one of the many faces of neuropathic pain triggered by a known stimulus.
I think we told Ben that the first time around, but he seems unsatisfied with that explanation.
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bti20

Post by bti20 »

Yes: I'm unhappy with an explanation which sounds like a description of what I already know. I know that I have neuropathic pain with a trigger: I'm asking WHY. My trigger isn't eating fish, playing cards or whatever else. Its touching BLOOD VESSELS. Saying that I have a trigger for neuropathic pain does not enlighten me very much. Not that I'm after anything else other than suggestions and ideas. This is a great newsgroup. I hope I'm not becoming a bore, although I thought these were interesting (unanswered) questions.
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Post by webslave »

bti20 wrote:My trigger ... is touching BLOOD VESSELS.
It's worth looking into "vasculitis" in this regard. Start here:
http://vasculitis.med.jhu.edu/
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