Wierd Symptom - Hydrodistension

bti20 · Post by **bti20** » Mon Jan 20, 2003 5:27 pm

This is a really odd one - I'd love to know the explanation.

My pain is diminished if I really need to urinate. Is this a nerve-stream thing? Obviously needing to urinate isn't the nicest feeling in the world but its better than the pain of CPPS. I'm inclined to hang on for as long as possible before I go.

Post by **webslave** » Mon Jan 20, 2003 5:45 pm

This is the same effect people with IC get from hydrodistension.

bti20 · Post by **bti20** » Mon Jan 20, 2003 6:13 pm

What's hydrodistension, Webmaster? Many thanks. Ben

Post by **webslave** » Mon Jan 20, 2003 8:39 pm

About Hydrodistentions
Glomerulations
Because some patients have noted an improvement in symptoms after the bladder distention done to diagnose IC, the procedure is often thought of as a treatment in itself. Bladder distension involves filling the bladder with water (while the patient is under general anesthesia) and letting it expand to a degree that is too painful to achieve while the patient is awake. Often the bladder lining bleeds. Researchers are not sure why distention helps, but some believe that the procedure may increase bladder capacity and interfere with the pain signals transmitted by nerves in the bladder.

La Rock et al. (4) report that 20% of patients experience short term symptomatic relief of three months or less. Almost all IC patients experience a significant, temporary worsening of pain, urgency and frequency for a few days after the distention. (Your doctor can prescribe pain medication to help you through this.) After the post-distention pain wears off, some patients find their symptoms gradually return to pre-distention levels but experience no real improvement. For others, the symptoms continue to improve and stabilize at a more comfortable level than pre-distention.

The degree of improvement and length of time this improvement lasts can vary widely among individuals-- days to months. It is also impossible to predict who will and who will not respond. Because this involves the risks of general anesthesia, the merits and drawbacks should be carefully evaluated and discussed with your doctor.

Ralph · Post by **Ralph** » Mon Jan 20, 2003 11:08 pm

I'm not sure holding back is the best thing. I think there is controversy when it comes to bladder training in men as compared to women. I could be wrong. Need to hear from a specialist about this. I also had great relief immediately after a cysto and distending the bladder.

Post by **webslave** » Mon Jan 20, 2003 11:50 pm

I too had a lot of relief after making my bladder almost burst before an ultrasound of the area. They make you drink >2 liters of water in 20 minutes or something and then hold it, hold it ... :eek:

The relief lasted a few days (not a true hydrodistension).

Don't try this at home, kiddies!

Ralph · Post by **Ralph** » Tue Jan 21, 2003 12:04 am

Sorry about that.

The women we scan are always dancing around in the waiting room before their ultrasound.

latte · Post by **latte** » Tue Jan 21, 2003 4:17 pm

I also had significant relief after a cysto for about 24 hours. I wondered about the same issue, why would this make me feel better. I did read that when the bladder is full it lifts up a bit in the pelvis which would put less pressure on the prostate. That may be why we have felt better after bladder filling. Not sure, just a thought.

Post by **webslave** » Tue Jan 21, 2003 6:05 pm

Unlikely. During the ultrasound the technician puts quite a lot of pressure on the bladder and prostate with the scanner. Given that the bladder is already distended with urine, this would actually put more pressure on the prostate, not less.

akia · Post by **akia** » Tue Feb 18, 2003 6:33 pm

i found that after my cystoscopy I had perfect relief from my symptoms for a few days. I was hoping that it would be the end of the problem. It soon came back.

Although I do find that when I'm drinking a lot of fluids I have to pee more and have more relief between.

gunde · Post by **gunde** » Tue Feb 18, 2003 8:22 pm

My pain increase when I need to go. During urination it burns, and that burning sensation lasts a couple of minutes afterwards. I believe that if the urine is darker I feel more pain. This is something I've found odd since there's never been any indication of bacteria in my urine. But if my bladder is damaged and the urine acts as an irritant then its not so odd. One other possibility is that when the bladder gets full it puts more pressure on the prostate. But that won't explain why I feel more pain when the urine is darker.

akia · Post by **akia** » Wed Feb 19, 2003 2:41 pm

gunde: I'm the same way. I have more discomfort when my urine is darker. I try to drink as much fluid as I can per day and this helps keep it clear.

I don't know why but it seems to help

UCPPS - Prostatitis, Interstitial Cystitis Forum

UCPPS - Prostatitis, Interstitial Cystitis Forum

Wierd Symptom - Hydrodistension

Wierd Symptom - Hydrodistension

re: cyto relief