UCPPS - Prostatitis, Interstitial Cystitis Forum

Webslave you rude man ;-)

I am replying to you with regards to another discussion we had. I sent you a private message asking you to not publish it on this forum. You did it anyway:

Nearly 2 years later, and I recently received the following private message from fjt and although he does not want ...

I've met (in person) 3 people who went to this guy and ALL 3 of them came back worse than before. Be careful of this kind of thing. It can go horribly wrong.

I agree just say you have coccydynia due to a fall or something.

I've found making my own pillows is the best way to go. I tried lots of different types of foam rubber etc. Just get a piece and cut a hole in the middle. Experiment with it until you get it the way you want it. Its cheap and it ...

This was the last of that kinda thing for me too. No more Urologists and GPs. Forgive them for they know not what they do. PT and relaxation are the ONLY things that have made a difference so far. It just seems like its a very very slow ride to recovery. Will have to be patient.

Dankie wel

I spoke to Dr Wise and he recommended that I do not continue with this PT. It was said in certain context though so do not consider this general advice for someone in my situation.

I have found moment to moment relaxation to be EXTREMELY useful during this flare. Just trying to keep my pelvic floor ...

Ok so I've managed to make some good progress using relaxation. The burning sensation has almost cleared up completely. The other symptoms remain but I can deal with them. However, I went back for some more PT today for the first time since the beginning of last week(I was in too much pain since ...

Easier said than done

I've not been able to get down the stairs for the last 2 weeks (this happens often). Makes living a life slightly difficult. Simple things like going out to get groceries becomes a real big deal.

Perhaps when I am 50% - 100% better I will agree with you. Perhaps not. Who ...

Thanks guys. I think the last 2 posts make a sound argument. Its hard to think that way when you are in this much pain though. The burning in my testicle has subsided a bit today and I'm generally feeling a slightly better. Lets hope it continues. If I can get back to where I was 2 weeks ago I will ...

Yeah the guy in Rome. One of the other patients at Song's clinic also went to that guy. He was also worse off afterwards.

I dont think its nerve damage since I dont have any numbness anywhere. I've had this checked out. The treatment was a very stressful experience so maybe the whole thing just ...

It was Dr Song. I think you've probably heard of this guy: http://www.prostatitiscure.com. I had chlamydia that I could not get rid of via oral antibiotics. I thought this was the cause of my symptoms (and so did the other doctors I saw). He got rid of it but I am much worse now than before.

Dit ...

I've recently started PT (internal and external) and had some good progress for about a month. Then about a week ago it hit me again like a ton of bricks. Symptoms are really bad now and don't seem to be settling down at all. The symptoms are as follows: tightness and pain in the rectum (left side ...

My story is so very similar!! New job in diffirent city, girlfriend left me, chronic prostatitis / chronic pelvic pain syndrome got 500% worse. I've since become so ill that I've had to leave my "new" job.

My thoughts are with you. Hang in there!!

1. Nobody knows they will get that many injections. They are good at "hiding" the facts. They promise you a "cure" and have so-called ex-patients to back them up

2. I had Chlamydia which I could not get rid of using conventional methods. Dr Songs treatment eradicated the chlamydia successfully ...

I've been for treatment with him and I didn't get any better. In my oppinion he offers more than he can deliver. Be careful!!!

Just about all his procedures can be painful. The most painful, however, are the injections into the prostate (actually into the tissue surrounding the prostate). Usually you have about 30 of these. It SUCKS!!!! Oh and it doesnt seem to work because none of the guys I met there got any better ...