Mark invited me to post my experience with mindbody healing on chronicprostatitis. I have posted on pudendalhope.info and got pretty much ostracized for my anti PNE surgery views.
I suffered from CPPS since 2002. I fell on a wet marble floor and had pain since.
Following is a short summary of my journey:
- Wise-Anderson protocol
- 100 sessions of pelvic floor physical therapy
- MRN Neurography "confirming" PNE
- Received a PNE diagnosis by 5 different physicians
- 6 pudendal nerve blocks and Botox
- Sarno
- 2 PNE surgeries
- I had to quit work
But now I am symptoms free. The following is a summary of my journey in the last 2 years. I discontinued all medication and I am back at work full time.
My recovery started with an odd incident. In 2012, I met some old friends that I had not seen for 30 years. It was incredibly emotional and I had the surprise of experiencing my CPPS simply vanish after years of continuous pain.
Why would emotions make the pain go away?
I started asking people for what triggered their CPPS. It seems that often there was some unremarkable physical incident but also a strong emotional upset in the mix.
I then searched for emotions and chronic pain.
Emotions are stored in what is called the implicit memory. You cannot recall them. It is hidden from you. You do get some manifestations of it when you blush or stutter for example. Or it is the part of your brain that will make you steer your car away from danger without you actively thinking about it.
The amygdala is part of the limbic system that is linked to emotions. The amygdala functions to control fear responses (fight, flight, and especially the freeze response that is key in chronic pain), the secretion of hormones, and the formation of emotional memories. The concept of the amygdala as an important contributor to chronic pain and its emotional component is still emerging.
Back in 2006, I read Sarno's book, "The Mindbody Prescription". I tried everything that was in the book. I was not successful at all. It did nothing for the pain. There was the cryptic instruction to "think psychologically whenever you are distracted by the pain". I did not have a clear vision of what that meant. I just thought (like 99% of people) that it meant to "not think physical". Since 2006 however, there has been advances in our understanding of mindbody syndromes. There are more resources. It seems that emotions play a key role in chronic pain. For me it finally clicked when I understood that thinking psychologically means to reconnect with your emotions. Sarno was inspired by the seminal work of Dr. Franz Alexander, a Hungarian psychologist.
Emotions are real. They are not just a concept. You can measure an emotion by monitoring the galvanic skin response on the body. There is some theory behind the mindbody connection or more precisely the emotion-chronic pain link including fMRI studies.
http://www.3dinformatics.com/pain.pdf
http://www.medicalnewstoday.com/articles/247328.php
http://www.psychologytoday.com/blog/day ... d/17055162
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1813416
But don't get obsessed with the science. Are the symptoms an expression of anxiety, a distraction from repressed emotions, a dysregulation of the amygdala, or something different? It is irrelevant. The process is far more complex than we can understand based on our imperfect knowledge of the brain.
Two of the scientists that made an impression on me are Dr.Robert Scaer and Dr. Candace Pert. Dr. Scaer, an MD that was at the head of a trauma unit in Colorado, studied whiplash and could not comprehend that people suffered terribly from low speed parking fender benders. Dr.Scaer suffered from chronic neck pain himself. He is the author of many papers.
http://www.traumasoma.com/excerpt3.html
Dr. Scaer studied tribal societies that have very choreographed and intense ceremonies where members release freely their emotions and do not suffer from trauma or chronic pain.
Dr. Candace Pert (a brilliant scientist that discovered the opiate receptor and that was robbed of a Nobel prize) wrote "Molecules Of Emotion: The Science Between Mind-Body Medicine". She wrote:
This Pert interview is a good introduction.I’ve come to believe that virtually all illness, if not psychosomatic in foundation, has a definite psychosomatic component. Emotions and bodily sensations are intricately intertwined in a bidirectional network in which each can alter the other. Usually this process takes place at an unconscious level, but it can also surface into consciousness under certain conditions, or be brought into consciousness by intention
It is impossible to understand what happens in the implicit memory or amygdala. There are semi-intelligent processes that take place like the fight/flight/freeze response that is not always logical. The amygdala is also involved in sexual-arousal and that is not completely logical either. When and why the chronic pain is far from being understood. We do know that the fight/flight response is based on previously recorded emotions. Some speculate that chronic pain is a response from emotions badly processed because of trauma. Animals in the wild release trauma instinctively and physically. We don't. We just repress those feelings.
Have a look at the famous polar bear video releasing his emotions:
http://youtu.be/Vr7lsIXazp8?t=15m5s
If you look at the polar bear shaking in the video, you realize that there is a strong mind-body connection. The bear shakes physically to release an emotional trauma. Emotions create a body reaction. But we humans don't shake like this bear. Unconsciously we counteract the natural body reaction by freezing and tensing our muscles. We store that energy by being stiff. The tension stays in the body and creates pain.
In short you have to reconnect with a lifetime of repressed negative emotions. By definition they are repressed so you do not know what they are, you can only guess. What we are feeling on the surface is irrelevant. What is relevant is what we are NOT feeling and are repressing from our consciousness. We can be happy and fulfilled people but below the surface (and 100% unconsciously) we may be repressing our fear of aging or death for example.
The following video was a great source of inspiration for me and a good introduction to negative emotions as a culprit of chronic pain. The video is made by Dr. Eric B. Robins MD, a board certified urologist and surgeon that practices at Kaiser Permanente Medical Center in Torrance California. He is a believer in the mind-body connection and cured his own back pain.
Pay close attention to what Dr. Robins says
- He suffered from debilitating back pain after joining a practice as a young doctor
- He realized that the pain was not physical
- He tried to use meditation to transcend the pain but was not successful
- He had all along compulsive thoughts about his wife not being smart enough
- He had an epiphany and realized that he was terrorized by the prospect of a divorce like his parents. Once he reconnected with that negative emotion (fear), he resolved his back pain.




