Prostatitis going on 2 months. My story, your advice.

Male pelvic pain, prostatitis, IC
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cam3roni
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Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Hi all,

I am new to this forum but I wanted to share my story in hopes of getting advice from all other sufferers out there.
I want to start by outlining the series of treatments/ events that have lead up to my current status. I am 25 and in otherwise good health.

I think my case is a little unique from some of the other cases I have read, in that I was diagnosed with an STD only 5 days prior to the onset of my prostate problems. Whether or not that infection is still the cause of my troubles, I don't know. Anyway.

June 18: High risk unprotected sexual intercourse with a girl I just met that night.
June 30: Start noticing burning on urination.
July 2: Milky discharge from penis.
July 3: Visit doctor, test for STDs (including urethral swab, ouch!), prescribes 7 days Doxicycline to clear up possible Chlamydia.
July 5: Call from doctor confirming Chlamydia infection, advised to continue on with Doxi.
July 8-9: Start noticing an ache in what I initially thought was my testicles.
July 9: Discharge and burning with urination seem to have cleared up.
July 9: Ask doctor about testicle ache, claims Doxi may not have worked, puts me on 1000mg of Azythromycine.
July 12: Call GP back up and tell him I still have ache in testes.
July 13: I visit GP. GP does inspection of testicles and I have no pain there. I come to realize the pain is coming from deeper in my pubic region. That night I did some research and figured out the pain was coming from my prostate, and was somewhat radiating to my testes which is what initially made me think testicles.
July 15: I have an emergency appointment with a different GP from same practice. I explain the events leading up to this point so far, and that I think I have an inflammation of prostate. He claims that the infection must be gone after those 2 rounds of antibiotics. Does a DRE and suspects some inflammation. Prescribes 10 days Cipro. Gives me a urologist referral to be safe.
July 15-18: Symptoms: Constant numb ache in perineum/ pubic region, discomfort on ejaculation, weak urine steam, trouble starting urination.
July 19: I see urologist. I describe events leading up to current moment. Tell him I see no difference with Cipro. Puts me back on Doxi.
July 19 -August 4: Continue taking Doxi, no noticable improvement, symptoms remain. Ejaculation isn't painful though, just not as forceful in its "exit".
August 5: See a different urologist at same institution. Seems unsure of a solution to the issue. Mentions that I may have possible guilt from the STD and that could be causing my prostatitis. I felt no guilt whatsoever. I was single and contacted her about the STD and she got tested. He advises to continue on Doxi as it can take weeks to have effect. Order a PCR test done on my urine after a thorough milking of prostate.
August 5 - 18: Still no improvement on Doxi, symptoms persist. During this time my PCR test came back positive for Chlamydia. I am not sure of accuracy of test. Test may have picked up dead Chlam DNA on exit from Urethra. PCR test showed Chlam sensativity to all applicable antibiotics.
August 18: I see original urologist who initially prescribed Doxi. He is unsure why Doxi did not work. Entertains idea of possible urethral stricture from the Chlamydia. Puts me on levofloxacin.
August 18 - 28: I am currently still on the levofloxacin. I noticed some initial improvement with perineum ache, but urinary weakness still remained. Also seemed to have a shift in pain to more of the pubic region. Pain in perineum returned within last few days.

Sorry for the detailed history of my current condition, but I think it is important.

I would like to detail some of my current theories as to why I am still experiencing issues:
  1. Urethral stricture occurred. Urine is being pushed back into prostate causing inflammation/ swelling from irritation. Also would account for urinary issues. Although likelihood of developing a stricture from this short a time frame is low, unless already predisposed.

  2. Chlamydia infection is still in prostate, antibiotics have not been able to reach high enough concentrations to eradicate the infection in all parts of prostate. I know this forums does not like this idea, but I think it is a strong possibility still.

  3. Prostate did get infected. Infection cured, but body is still trying to fight off an infection that doesn't exist. Or residual inflammation from possible initial infection.

  4. Somehow the chlamydia infection set off a series of events that led to me developing a chronic muscle tightness in that area. I know this is the favorite among the forums, although I have never had any issues with tightness down there before, to my knowledge.
Those are my top 4 potential causes for my pain. I can go on and on with other potential causes but these seem to be my top 4.
When I pick up something in weird way off ground, I sometimes get a shooting ache that seems to go through one of my testes, as I know that whole region is one giant nerve, I think this is to be expected, nonetheless I make note of it.

I have masturbated everyday since starting the levo at exactly one hour after taking it, to hopefully increase effectiveness. Masturbation is painless at this point in time, seems to temporarily relieve pain as well, maybe the increased bloodflow? I also go in my hot tub every day, it feels better while I'm in there but once I am out, its back. I eat raw garlic everyday, try and stretch every day, been taking saw palmetto, NAC and avoiding any liquid but water. Still no difference.

Anyway, this is my story so far. Any advice would be appreciated. And if anyone has a similar story, I'd love to hear it. This condition really sucks man. Sometimes life hands you a shit sandwich, and you just got to sit there and eat it.

I also vow to try and update this post with any changes in my condition, hopefully to help other guys in the future. Thanks!
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by webslave »

Chlamydia has triggered CPPS. It happens. The bug is gone (PCR is not reliable indicator of current infection).

Have a cystoscopy via uro to look for any structural issues, just to be safe.

Explore ways to test the muscle spasm status of your pelvic floor.

Welcome to the forum :smile:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by geeza »

Fella I’ve had my issues going on 2 months now, one thing we can both be positive about is discovering this forum early on.

You can read my story in my thread, slightly different to you but similar as in symptoms evolving over a short period of time.

I’m limited as I live in Japan, but I’ve been doing stretches 2-3 times a day, drinking plenty of water to detox the system regularly, Chinese medicine for my nervous system, nettle tcm for my prostate and benzos right now to settle my system.

Things are better but still up and down. I know it’s easy to stress out mainly due to the pain is there, in/by our John Thomas!!!

Keep sharing your story as it helps us.
Age: 38 | Onset Age: 38 | Symptoms: 1st stage: Frequent Urination 2 Stage: Frequent Urination, testicle pain, penis pain, pain behind and above penis, tensing muscles behind penis Current stage: Pain in base and above penis | Helped By: Chinese medicine for nervous system, stretching, belly breathing, benzodiazepines | Worsened By: Sitting, Ejaculation, Doctors that don’t have a clue and don’t wanna admit they don’t| Other comments:
cam3roni
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Geeza,

Sorry for your pain. I could only imagine being in a foreign country whilst this was happening. Thanks for your reply. And i will keep this post updated.
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Thanks for the reply webslave,

What is the connection between CPPS and chlamydia infection? Could you elaborate on the connection between bacterial infection and muscle tightness? Or a link to a post explaining it? Thank you so much
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by webslave »

An infection like chlamydia can cause a guarding response in the pelvic muscles and this can lead to CPPS.

The link you need to study is this one:
https://ucpps.men/chro ... condition/
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cam3roni
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

I see a lot about the relationship between stds and this condition. I wonder what role a urethral swab plays in the onset of CPPS. Considering the pain involved, and the region its involved in, i dont think its crazy to think a urethral swab could trigger CPPS.
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by webslave »

Any noxious stimulus can act as a trigger, and yes, a urethral swab is painful. However, I doubt whether it's enough to provoke the syndrome.
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Hey webslave, or anyone knowledgeable for that matter, quick question.
Can treatment be different based on the cause? ie: chlamydia infection vs long time stress build up. Another way of putting the question is, should I be focusing on different parts of the pelvic region?

Thanks guy!
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by webslave »

Once the syndrome is established, the treatment is the same, or should I say "treatments". Where we differ is that one treatment will help more than others, depending on the individual patient's genetic makeup.

There is also the UPOINT theory that posits different treatments based on a phenotyping of the patients:
  • Urinary: A post void residual measured by ultrasound
  • Psychosocial: Ask about clinical depression and catastrophizing (helplessness and hopelessness about the condition)
  • Organ specific: Pain improvement with bladder emptying, tenderness of the prostate
  • Infection: Culture for mycoplasma and ureasplasma, culture of urine and (in men) expressed prostatic secretions or a post-prostate massage urine
  • Neurologic/Systemic: Ask about pain outside the pelvis and a diagnosis of other pain syndromes
  • Tenderness: Palpate the abdominal and pelvic skeletal muscles (via rectum or vagina) and check for spasm and trigger points
More at https://ucpps.men/1/upoint.html/
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Thats a helpful tool. Although I didn't do a great job of fitting into its categories... I dont experience any tenderness or muscle spasms, anywhere in my pelvic region..just an numbing ache behind scrotum/ perineum.. I will keep researching though.
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

Hey guys,

Hope all is well. Little update, just started pt. Been doing stretches, internal massage, and trying to relax. Feeling better, still got work to do though!

I have one concern though, and its perplexing to me. It seems that no matter the time of night, if I wake up, I will have an erection. This started the same time I initially had symptoms. I worry that I may be having erections for long periods of time during sleep which will impede my progress. Any ideas as to why I never fail to awake with an erection, no matter the time of night? This never happened before. Thanks!
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by webslave »

Inflammation in the genital tract can cause erections. That's how the so-called aphrodisiac "Spanish Fly" (which contains the chemical cantharidin, derived from a beetle) works, by irritating the urethra.
Cantharidin's prowess as an irritant had to be known by anyone who ever encountered the beetles. It has been used externally as a way to remove warts, moles, and tattoos. Ingestion, and even digestion, does not diminish its ability to irritate. As it makes its way out of the body, it irritates the lining of the urethra. In women, the irritation is externally unnoticeable. In men, it causes a great deal of swelling in the area. This translates into a long-lasting erection. Most likely, it is not a pleasant erection, but that didn't stop people in antiquity from giving small doses of cantharidin to bridegrooms, or taking a dose themselves in preparation for a special night.
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Re: Prostatitis going on 2 months. My story, your advice.

Post by geeza »

Cam3roni, awesome news you are getting better!!! Keep it up!! You say you are doing interval massage? With the wand?
Age: 38 | Onset Age: 38 | Symptoms: 1st stage: Frequent Urination 2 Stage: Frequent Urination, testicle pain, penis pain, pain behind and above penis, tensing muscles behind penis Current stage: Pain in base and above penis | Helped By: Chinese medicine for nervous system, stretching, belly breathing, benzodiazepines | Worsened By: Sitting, Ejaculation, Doctors that don’t have a clue and don’t wanna admit they don’t| Other comments:
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Re: Prostatitis going on 2 months. My story, your advice.

Post by cam3roni »

geeza wrote: Thu Sep 13, 2018 11:38 am Cam3roni, awesome news you are getting better!!! Keep it up!! You say you are doing interval massage? With the wand?
Hey Geeza,
I am using the thera wand. I got it off amazon, i basically just take 5 min every night to try and release tension in the area. Mainly the 9 oclock and 3 oclock areas in the rectum. I've been stretching 3 times a day. I've also been placing a hot water bottle bag under my perineum when i sit to try and relax the muscles, even when I'm driving to work ill fill it up and sit on it while driving to work.
Age: 27 | Onset Age:25 | Symptoms: ache in left groin, weaker urine stream, weaker ejaculation force | Helped By:Uknown | Worsened By:Unknown | Other comments:
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