UCPPS - Prostatitis, Interstitial Cystitis Forum

Hi folks!

I'm new here and thought I'd share with you my experience and maybe get some feedback and advice from you all who have more experience with this stuff than I sure do.

I'm almost 21 and I did have a bout with Prostatitis 5 years ago. One day I woke up and realized I couldn't pee.. Barely anything would come out. I don't remember it very much so I'm not sure if there was pain or any thing, but I don't think so...

Anyway, I started to have symptoms around the 9th of this month (March). At first I wrote it off as not drinking enough fluids cause I know that my bladder does get slightly irritated if I don't drink enough water and my pee gets more darker yellow and it burns slightly but it usually goes away after drinking more. Sadly, it didn't... I would get these little urges to pee just a few mins after going and not much would come out. I also noticed that when I would ejaculate it didn't come out with much force and not much came out of me at all really and afterwards I get this slight dull ache in my Perineum area.

I was getting this tingle/burning/itchy type of sensation that felt like it started as the tip of my penis and went into and up my urethra. I went to the doctor and got a Prostate Exam (oh fun.. ) the NP that saw me said she didn't feel like it was inflamed or boggy and went ahead to order a urine test. The test came back completely normal but told me to call back the next day if it didn't get any better. So the next day, still no improvement so I called and got prescribed Cipro 250mg twice a day. I took it for a few days but it felt like things had gotten worse. I was getting aches in my butt and lower back. I couldnt really sit completely flat on a chair cause it was make the burning/tingly feeling in my penis and groin intensify. I couldnt handle it any more so I went back and saw a different NP.

Her and I spoke and she did another prostate exam on me and this time when she pressed on it, it made my that unpleasant feeling in my penis really get going... it wasn't super painful or anything but didn't feel nice at all.. She told me she did feel a little bit of boggy and inflammation. She gave me a new script for Cipro which was for 500mg twice a day instead of 250mg. Told me if I wasn't better back last Thursday to let her know. Well... it seemed to have gotten better. So far I've only been on Cipro for about 2 weeks now.

The past few days the symptoms have gotten really better. I don't have that feeling of needing to go pee right after going. I don't seem to have any problems with my urine stream, starting it or stopping it.. etc... no issues. The pain that was in my back seems to have vanished too. I use to have pains in my rectum area and those have gotten better but not fully gone yet. I use to have pain in my testicles from just touching them but that is gone. I have no problem getting a erection or keeping it. My sex drive is as high as ever and I don't get that dull ache after orgasm either. Should I be jerking it or should I lay off for a bit? I heard that you can just make the prostate irritated again if you keep masturbating, but then I heard that its healthy for it if you have prostatitis so I don't know which to believe...

The only thing that is still there is the slow ejaculation and the amount. Yesterday there was a lot of it but today there wasn't much at all and it just doesn't shoot out like it use to... its slower and its frustrating. Honestly, over all my symptoms of Super mild.. I don't need to take any pain pills or anything like that other than my Cipro and this prostate health supplement called any accredited quercetin product that my Dad got me to try.

I honestly don't know if the Cipro is truly working since they found no bacteria in my urine or if its the anti-inflammatory properties that the antibiotics have that is making me feel better.

How long does Prostatitis that is treatable by Cipro usually take to clear up?

I really want this to go away so I'm hoping I just have the acute version of it and that is clearing up because having the Chronic type.. especially the CPPS type scares me to death since it's pretty much life long.

So yeah.. that's my story.

Would love to hear your thoughts, questions, opinions, stories.. etc..

Plz Share and Thanks!

You shouldn't take Cipro & any accredited quercetin product at the same time as there are contraindications with any accredited quercetin product that interferes with the antibiotics and stops them from working properly. Have you been taking both for the same amount of time or did you start one after the other? You seem to have had some great improvements over a short period of time while on the Cipro, which would indicate there may have been some kind of bacterial infection that wasn't picked up. But is your improvement down to the Cipro or Quercetin??

I've only been taking any accredited quercetin product for a couple of days now and I don't take them at the same times. I wait a few hours after taking my Cipro.

My improvements have been happening before I started the Quercetin

And yeah, I heard that some times the bacteria isn't found in your pee but in your sperm. Awhile back I did notice my cum was a tad on the yellow side which I read is signs of a infection in your prostate. I never had it tested though.

I do seem to be getting better bit by bit each day. My NP told me I need to take the meds till the symptoms are gone completely which could take another week or even a month. She diagnosed me as Acute Prostatitis just like I was a few years ago so hopefully this will go away too.

My hopes are high.

You seem to have had some great improvements over a short period of time while on the Cipro, which would indicate there may have been some kind of bacterial infection that wasn't picked up.

Unlikely. Probably this:
https://ucpps.men/antib ... ry-agents/

Awhile back I did notice my cum was a tad on the yellow side which I read is signs of a infection in your prostate

Sign of white blood cells (pus cells), can be result of neurogenic inflammation, not infection.

As for masturbation, a couple of times a week should be enough while your pelvis is trying to recover.

I really want this to go away so I'm hoping I just have the acute version of it and that is clearing up because having the Chronic type.. especially the CPPS type scares me to death since it's pretty much life long

The fact that this is the second time you've had it shows that you are prone to CPPS and you need to become more knowledgeable about it so that you can manage it in future.

Hi webslave.

Yeesh... I know you're being honest but that just crushed my hopes are possibly getting rid of this.

It's only been 2 weeks though so I'm going to give it another two before I decided to give up or try some thing else...

I still have yet to goto a Urologist so maybe that's my next step.

There is a small chance I am wrong and you do have true acute prostatitis, but as a young man and unless you are sexually active, the chances of having acute prostatitis twice in 5 years is extremely low.

So I'm guessing when the Antibiotics stop, all my symptoms will come back with a vengeance. I'm terrified of that.

Well, not with a vengeance, and they may not come back for a while if the anti-inflammatory effect has been strong enough. Saying to yourself that the symptoms will come back with a "vengeance" is what's called "catastrophizing", and it's associated with poorer CPPS outcomes long term, so that's the first thing you have to be aware of and work against.

Well that is some thing that I have really really bad problems with. I have a very bad anxiety disorder and its especially bad when it comes to my health. I believe it's called Hypocondria or some thing like that. I also have really bad depression to go along with all that. So I'm a mess and this sudden onset of symptoms isn't helping me stay calm in the slightest.

I do have an appointment to meet with a counsler and a Psychiatrist in a couple of weeks so I have plans to try and get all this mental mess fixed up soon.

I'm sure that will help out with this condition too.

I think so too.

Your anxiety disorder is most likely the culprit for developing this. Your Sympathetic Nervous System caused an overload up in the brain and brainstem and while you weren't looking, reprogrammed it to tense up and hurt as the norm (that's an oversimplification, but the general gist).
So yes, learn to manage and treat your anxiety and the CPPS stuff will probably abate.

You've probably spent at least 5 years developing this (since it started when you were 16) so it's probably not going to be solved overnight (although it's possible). Not trying to discourage you at all, but just prepare you that it takes time to reprogram deep-seated mental habits, worrying and anxiety that have become reflexes. You're already ahead of the game because you can easily admit that you have an anxiety condition. I was too stubborn to admit it for a while because I thought I was too tough, or that I had to be tough.

It really does take a paradigm shift in your mind to beat it, and it can be done. Over two years, I have gone from a LONG duration of utter hell, to about 98% better, with strange left over anxiety/pain flares that come with certain stress triggers. I'm now working on cleaning up that last bits of this condition. I still have days occasionally when I feel a little crappy, but nothing like before.

Don't think of "managing" it as a life-sentence (as I did for a while). Use of the word "managing" just means to change some habits going forward to ensure that you are protected from external things that cause a revved up SNS over too long of a time.

Sounds like your on the right path, just keep it up, you'll be fine.

Thanks Major!

Yeah, Anxiety causes many many things in our bodies. I found a really nice licensed clinical social worker who I believe is a good fit for me and it's a one on one type of therapy too. So that should help. I've noticed a lot of people especially older guys had that type of mentality that being tuff and not wanting to get help is the correct way to be and I guess people were raised differently back then. I was always taught and told that its never a bad thing to seek help when you need it. *shrugs*

I finished my last round of Antibiotics this past Monday and I for awhile my symptoms were just about completely gone...I could still feel some of it but just barely, some times not at all. I was 100% again and I felt like I actually beat this thing. But now I'm starting to go back to the way I was.. and it's really messing with my head. I have yet to see a Urologist but the PN I went to see said she'd refer me to one, so I guess I'll go ahead and try that and see what the Uro has to say.

Today my symptoms seem flared up. Still very minimal but enough to notice them again. I also had a huge fight with parents yesterday and it was a really bad and I also am starting a new job soon which I'm super nervous about and wondering how I'm going to handle working and dealing with this condition. I think that might have triggered the flare up? I dunno...

Honestly, if the symptoms were stay on the low side I could learn to live with it. I'm not strong when it comes to this stuff.

Finally went in to see a Urologist and.. just wow... I never want to see him again (even though I have another vist in 2 months.)

I explained to him my history and how I had problems back in 2012. He asked me about all the meds I took and my current symptoms (Which are very minimal as of right now) and overall just tried to get an idea of what has happens so far.

From what I took away from the visit, he seems to think I had bacterial prostatitis because I responded so well to the Antibiotics and also since my symptoms haven't really come back much at all. I was on two different types of antibiotics for about a whole month and he said that there shouldn't be any bacteria left. I brought up CPPS and the Pelvic muscle issues as possible causes to him and he shrugged it off saying some thing like it's mainly happens to females who give birth to several children or men who are athletic and run a lot. Said it's not well documented and doubts that it's what I have.

He suggested Flomax but I haven't ever had any issue of emptying my bladder since this whole thing started and still don't have an issue with it. I also don't wake up in the night to go pee like a lot of people seem to have either. He just said it'll take awhile longer for my Prostate to fully heal.. So I dunno...

I want to trust a guy who has way more knowledge than I do and is smarter than I will ever hope to be, but some thing just tells me there might be more going on..

He didn't even do ANY tests of me while he was there. I pee'd in a cup before I went into the room but I think that's standard for any one seeing a Uro..

Anyway, I didn't get a good impression of him and I might need to look for a different one. I just feel like I was rushed out of there and that my concerns were not given the right amount of attention. Maybe it's because I'm so young?

SoraStar wrote: Mon Apr 17, 2017 3:43 pm I brought up CPPS and the Pelvic muscle issues as possible causes to him and he shrugged it off saying some thing like it's mainly happens to females who give birth to several children or men who are athletic and run a lot. Said it's not well documented and doubts that it's what I have.

He's an idiot. Please leave his name here so members can avoid him.

Well I have some interesting news.

I was diagnosed with Interstitial Cystitis.