My current situation is that after 6 months of being in this CPPS hell, I am slowly working my way out of it, but I am still not fully well, so I would appreciate your advice as to if my symptoms are common to pelvic myoneuropathy or something else is going on.
History:
1. It all started after a stressful couple of weeks where I was tense and wasn't sleeping very well for some other reasons, and then suddenly, after masturbation, I developed a pain in the urethra (about where the glans meet the rest of penis) that wouldn't subside no matter what. At the worst, it was a bad burning feeling, like something was clamping me at that site, and it was 24x7 and totally unrelated to urination. Urination was not painful at all, as a matter of fact have never had burning pain while urinating, but my urine flow slowed significantly.
2. Pain was so bad, I couldn't even touch the underside of my penis. It felt like it was broken, but there was no external sign of inflammation, redness nor anything.
3. No discharge - ever, EPS - Clean, Urethral swab - Clean, Several Urinalysis - clean. No external signs, not even redness on the meatus. Uroflow test - not very good, with Qmax at 14 , Qave at 7 and significant residue. At that point, Dr suggests Cytoscopy to rule out things. Cystoscopy - completely clean - he says as normal as it gets. At that point Dr. suggests nerve related...
4. I went like this for a couple of weeks, and got rid of this by taking (by pure chance) valium 10mg and getting a good night sleep. The symptom subsided a lot, and I was on the right path. No masturbation, no sex for 10 days, and I was symptom free. Started taking B vitamins, de-stressing and getting some rest and urine flow came back. But after having sex for a couple of straight days / or masturbation, it would flare right back.
5. Then recently I discovered this forum and site.
Where I am at now:
1. Taking Vit C, Multivitamin with Complex B, Omega 3 and Quercetin.
2. Have cut out caffeine, and any stimulants (which gives me more anxiety), and still have one or two beers which do not seem to affect me one way or another.
3. Read A HEADACHE IN THE PELVIS and started to avoid the clenching of the pelvic muscles that I would inadvertently do when tense. Also trying to relax more, although not easy all the time.
4. I think I am 90% pain free. Will get sometimes a tightness feeling in the site, but don't feel pain per say lately (Think any accredited quercetin product has helped on this).
5. Urine flow is back to normal or better, most of the time. Sometimes I can pee three feet away from the toilet with good strength, sometimes, if I have been tense, not so great.
6. Lingering symptom is that at ejaculation, sometimes I still get a strange feeling at the site in the urethra. Sometimes like a spasm (like it can't decide what to do or the ejaculation spasms are out of sync), sometimes like a sore feeling on the ejaculation movement and sometimes like if the semen was passing through a tight place or something was gripping the urethra tightly. It is odd to describe for sure, but it is not something I used to have. When I get this feeling, 2 out of 3 times I know that I will have a flare, and it's time to take a break from sex or reach for the valium.
7. Obviously this has led me to cut down severely on my sex life to about once every three to five days, unless I got a flare, and then it's 10 days with no activity whatsoever.
Couple of questions:
1. Does this sound familiar? Specially odd to me is the discomfort at the urethra at ejaculation and would like to know if this is something that others have experienced and how can that be explained from a muscle problem perspective.
2. How do you know when you are completely cured and can go back to your regular sex life (which was daily masturbation or sex with wife). I sure miss that! it has me quite a bit depressed and it is affecting my family life...
3. How long can you go on Quercetin? I have read three months, six months and indefinitely on some other posts.
Thanks guys.
