UCPPS - Prostatitis, Interstitial Cystitis Forum

Hi all,

I am about to make an appointment with a GP in order to get a referral to a urologist in order to rule out any major problem, but would like to see if anyone here might have an idea of what may have happened to me.

Back in mid 2007, I was 19 and it was a stressful time for myself. I was engaging in too much sexual activity in the form of masturbation. It was compulsive in that it would be at least 4+ hours in some days. I'd do this again a few days later and I would always try and clench my BC/PC muscle to prevent ejaculation although could not always to so. I then starting actually squeezing my penis just prior to ejaculation with my hands to try and prevent the actual ejaculation so I could make it last as long as possible. I would occasionally keep squeezing even when I began ejaculation but did not do this often.

Soon after this I had a lot of dribbling of prostatic fluid during normal day to day activity. Over time I stopped this and I was able to abstain for about 2 weeks allowing my body to heal, and felt my head was slowly becoming clearer. I noticed about this time that when I used the toilet during bowel movement, I would expel what looked like semen from the penis. This only started happening I believe after I squeezed my penis during ejaculation. This would not/does not always happen however, only if I abstain for some period. I also noticed what I now believe to be enlarged arteries, 2 on the right side of the shaft and one on the left side that also runs under the penis a bit. These enlarged arteries and an enlarged dorsal vein are still with me today.

With regards to erections they are nowhere near as strong or as pleasurable they once were. When standing I can get an erection however the erection will only be a half erection or 50 % quality. The strong contractions of whatever muscle it is producing erections that I used to get don't happen anymore. I can feel my body trying to get an erection but it never can. When standing if I fiddle with my penis it usually gets a bit hard/rubbery, when before it used to remain really soft. After ejaculation, the dorsal vein remains engorged for a long time and blood remains in the penis for a while before it reaches the proper flaccid size. It's as if it's a bit lumpy and needs time now when before it didn't at all.

When lying down I can get an erection, but again only maybe 60%, not full length and not having pleasurable sensations. Even stroking my penis is not pleasurable anymore. It's a different feeling, sort of a deeper sensation that I get rather than on the penis.

I have stopped my sexual activity dramatically and can deal with stress much more maturely now, I've had periods where I've abstained for 60 days and 40 days, even now at the time of writing I have abstained for around 12 days. Things are not so bad because I can still get an erection and ejaculate etc, but I know it's not in a normal state if anything because I still have the symptoms of leaking of prostate fluid/semen during bowel movements occasionally, the enlarged arteries + dorsal vein and tinier veins across the surface of the penis. None of these were present before as well as the ED.

I think I may have developed trigger points in the muscles close to the penis or that deal with the functioning of the penis. As I say, my mental state is fine, I didn't even worry about this much except now that I'm finishing off uni and have some time to think, I should deal with this. Please let me know what you guys think or if anyone has some experience with this I'd appreciate it.

Thanks

Wel, you don't have CP/CPPS for starters. That said, you do show signs of obsessive-compulsive behaviour and a visit to a psychologist/psychiatrist could be useful. The uro will tell you that you are normal.

Hi,

I'm pretty sure there is a malfunction of some muscles controlling my penis, as at times I can have trouble starting urination/weak flow. Today also, I needed to urinate but had to hold it in for about 40-45mins. After urination, I noticed a considerably enlarged dorsal vein. There is definitely some disturbance within the muscles somewhere. If I'm not mistaken as well, there is an essay in the latest version of 'A headache in the pelvis', about compulsive sexual behaviour causing trigger points in the muscles controlling the penis.

I know my penis isn't functioning normal, and I also know I probably don't have any threatening disease but I'm pretty sure I must have set up trigger points that are causing a dysfunctional operation of the penis. Would you say this is possible?

I'd say you are possibly on the road to CP/CPPS. Hypervigilance to the state of your genitals, and the expression of tension/anxiety in holding spasms that prevent voiding are all suggestive. I'd still seek help from a psychologist at this stage though, or perhaps a psychiatrist. You could be relieved of most of this behaviour at this stage with cognitive work and psychoactive medications, before pain develops.

I can see where you are coming from, but the fact is I've had all these problems since 2007 after the period of compulsive sexual activity, and actually not worried about it much since then, thinking that over time everything would return to normal. However I now realise that these problems are not going away and after doing some research (now that I have more time) realised that I may have irritated some muscles down there back in 07 that won't go back to their natural relaxed state unless I undertake physical therapy. I really only researched into this thing properly until recently, and in my first post just listed most of the symptoms in my penis since 2007.

At that time (07), I really was focused on overcoming my compulsive sexual activity and to live normally and have been successful. I wasn't really worried about the state of my penis.

For example around 2 years ago I looked down at my penis and notices the enlarged dorsal arteries. I never looked at it again really seriously until just recently and noticed the enlarged arteries and dorsal vein still there and know that something must be wrong internally. I know the way I wrote it might seem obsessive but I just wanted to list all the changes that I have experienced.

Is there any harm in trying to find a physio that can do some internal work?

No, no harm.

Decreased erection quality is something that many of us experience with the exception that we have pelvic pain in addition. My symptoms started with something of that sort (daily excessive masturbation), and cost me my erection quality and a lot of pain.

Mark might disagree with that, but I think it is possible you have injured your pelvic pain and that your symptoms are only sexual with no pain.

I personally think that pelvic dysfunction could take MANY forms and thus leads to many different symptoms. I have seen people on other websites who have gotten similar symptoms by injuring their pelvic muscles. The thing is: if they don't have pain, they are unlikely to come to this site or think about their condition as being CPPS. At the end of the day, however, they come to very similar conclusions: they realize that it is in part a muscular issue.

This might sound controversial, but I remember the days (10 years ago) when people were still highly suspicious of claims of CPPS-induced ED.

I suggest the following: learn about the stretches that people recommend here and follow these recommendations and tell us whether your EQ gets better.

PPP I completely agree with your assessment of bed88. He appears to be focused on the engorged dorsal vein of his penis, but I too deal with erectile difficulty. NO morning erections, penis reaches only about 40 - 50 % tumescence, but I also experience the pain on the left side of my pelvis. Also as bed88 has experienced the sensitivity of the penis is markedly decreased; when masturbating it's like stroking my thumb. Yet alone penetrating my wife is impossible right now. Does anyone know what works? I am trying the internal and external trigger point therapies for 2 months now. I'd love to hear from some of the other men out there.

I would like to ask a question for those of you who suffer from erectile dysfunction as a result of chronic pelvic pain syndrome. I have been dealing with this now for a year. I have marked decreased sensitivity, inability to maintain and get erections. This part of my relationship with my wife has been so important and now to lose it is truly devastating. I have tried Cialis and Viagra without consistent results. Has any of you ever considered or had penile implants to permanently treat the erectile dysfunction. This may seem a bit extreme to some, but I am the one living with the anguish and depression of erectile dysfunction. I would appreciate any feedback.

Thanks