Tingling in Feet?

Male pelvic pain, prostatitis, IC
extreme3
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Tingling in Feet?

Post by extreme3 »

Just wanted to pass on observation along to other folks on this board and see if anyone could relate:

My chronic prostatitis / chronic pelvic pain syndrome has been doing fairly well lately but I am noticing a mild pins and needles feeling in my feet, especially when sitting for long periods of time. I'm not on any meds currently so it can't be coming from any side effects. It's almost as if my feet are perpetually asleep to some degree.

Anyone have any ideas?
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
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Jay
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Re: Tingling in Feet?

Post by Jay »

I have heard of guys experiencing cross-talk pain in their feet, particularly on the bottoms. Having said that, if your feet constantly feel asleep, you might want to make a precautionary visit to the doctor. Would be a good idea to rule out blood flow issues or any peripheral neuropathy type stuff.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
kidoairaku
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Re: Tingling in Feet?

Post by kidoairaku »

Yeah, I think that before I had started taking my alpha blocker, which has helped my symptoms, my feet were more tingly than usual. This would happen especially when I went into a hot bath. It was weird but I doubt it's anything serious.
Age: 24. Onset: May 2007. | Symptoms: OFTEN -- Urine frequency, waxing/waning perineum discomfort (aching), abdomen pain/cramp w/ pressure, painful ejaculations, loose stools; OCCASIONALLY -- cloudy urine, IBS flareups, nocturia; RARELY -- night sweats, blood in urine, passing small dark brown stones. Helps: Alpha blocker, hot baths, relaxing abdomen and pelvic muslces, sitting or laying down. Besides my alpha blocker prescription, I have yet to see a therapist for this. I hope that with treatment I will be able to rid myself of this.
kls269
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Re: Tingling in Feet?

Post by kls269 »

First post. I have been dealing with pelvic pain since Nov 2009. About 5 months ago I started getting tingling on the bottoms of my feet. I was just wondering if anybody has also had this nerve symptom and particularly if anyone has had success with getting rid of this aspect of your situation?

This definitely is a long road. I went from totally active and care free to being aware of my body 24-7. The good news is that I went from being in debilitating pain for several months to living pretty normally--just with the constant pain/tingling/discomfort.

I also start law school on Monday and hope I can manage everything.
26 yo. Pain since 11/2009. Doing much, much better than the initial few months where I was in EXCRUCIATING pain 24-7. Still have irritation, burning, tingling, and/or pain in pelvis and feet.

Things that help: yoga/stretching, internal trigger point stretches, good posture, thinking positively/not obsessing, amitriptyline (maybe), warm baths (sometimes), and literally doing everything possible to live normally and productively. I also think a night of drinking can relax the body and provide a nice temporary escape.
Things that don't help: obsessing, catastrophic thinking, most doctors, antibiotics
Things I find irrelevant (for me): food/drink, antibiotics, deep breathing.
BrettP
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Re: Tingling in Feet?

Post by BrettP »

The only time I get that is when my foot is asleep which is normal. Thigh pain frequently though. Do you guys know what nerve causes the foot tingling? I wonder if related to thigh sensitivity.
Good to go!
Sherradin
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Re: Tingling in Feet?

Post by Sherradin »

When my CPP was at its worst my feet burned and my teeth burnt. I was told it was the up regulation of my nervous system from the constant pain and anxiety over my situation. When Tim Sawyer pressed on my psoas when all my foot pain had settled I got a burn in one foot. He felt it was the sensitization of the nerves. Meditation, yoga, Lyrica and total body trigger point work has helped me calm all this down.

I also now get pins and needles in my feet if I sit for too long..it may be related to my spinal surgery?????
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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Re: Tingling in Feet?

Post by DMcU »

Yes Sherradin I too get strange neuropathic pains all down my legs and into my feet. And like you, it was my psoas that was one of the major symptom creators. I had 5 trigger points in it at one stage, and this was after treating it the previous week. As much as chronic prostatitis / chronic pelvic pain syndrome is a constant cycle of pain we have to have a constant cycle of treatment.

I find that one way of helping these neuropathic sensations and pains is to keep your nerves preoccupied with good and nice sensations. How I do this is -
  • Walk and move as much as I can
  • Heat pack when sitting down in the evening and occasionally the massaging foot spa
  • Sit back as far as possible so not as much pressure is put on the bottoms of your thighs and behind which can reduce blood flow to the legs and worsen these probs
  • Heating Muscle cream - I don't find that it's fantastic at helping with muscle tension but the fact is that it preoccupies the nerves with the sensation of heat and takes away or overpowers other less favourable sensations.
  • Try to enjoy things and to do things you particularly enjoy - eat well, really taste the food, keep well clothed and warm (again, heat I find, helps me ignore the pain), drink herbal teas and keep trying new ones, diversify, use this as a chance to explore what health is and what it means to you - it doesn't have to be a drudgery. By steeping ourselves in positive feelings we can overpower the negative ones.
Keep it up soldiers!!!

DMcU
Age: 25 Onset: 23. | Symptoms: Burning in urethra, urinary frequency/urgency, 'golf ball' in butt syndrome, muscle tension form pelvis to calves, constipation, IBS, testicular pain/inflam, bladder pain when nearly full, difficulty relaxing muscles (coccygeal, levator ani etc.), pain and muscles tension in anus/perineum. Helped by: quercetin, relaxation, baths, heat packs applied to perineum. Worsened by: Stress, driving, sitting, jogging, caffeine etc.
kls269
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Re: Tingling in Feet?

Post by kls269 »

DMcU wrote:Yes Sherradin I too get strange neuropathic pains all down my legs and into my feet. And like you, it was my psoas that was one of the major symptom creators. I had 5 trigger points in it at one stage, and this was after treating it the previous week. As much as chronic prostatitis / chronic pelvic pain syndrome is a constant cycle of pain we have to have a constant cycle of treatment.

I find that one way of helping these neuropathic sensations and pains is to keep your nerves preoccupied with good and nice sensations. How I do this is -
  • Walk and move as much as I can
  • Heat pack when sitting down in the evening and occasionally the massaging foot spa
  • Sit back as far as possible so not as much pressure is put on the bottoms of your thighs and behind which can reduce blood flow to the legs and worsen these probs
  • Heating Muscle cream - I don't find that it's fantastic at helping with muscle tension but the fact is that it preoccupies the nerves with the sensation of heat and takes away or overpowers other less favourable sensations.
  • Try to enjoy things and to do things you particularly enjoy - eat well, really taste the food, keep well clothed and warm (again, heat I find, helps me ignore the pain), drink herbal teas and keep trying new ones, diversify, use this as a chance to explore what health is and what it means to you - it doesn't have to be a drudgery. By steeping ourselves in positive feelings we can overpower the negative ones.
Keep it up soldiers!!!

DMcU
This is exactly the mentality I strive for. Thank you everyone for your responses--for some reason it's comforting to know that others have had the feet tingling sensation as sometimes I get paranoid that it's going to start spreading to my entire body. It's also interesting about the teeth tingling--I also get this. What's more, each of these tingles feels identical to the point I almost cannot differentiate where it's even coming from. Both of my PTs found this perplexing, but it must be that they're all the same nerve or set of nerves. Craziness! I am currently taking 10mg Elavil each night, but definitely want to mention Lyrica as another option. My doctor (Kaufman, who I am not crazy about) in NYC said that it takes about 3 months on Elavil before you can responsibly assess its value.

I also like the concept that since this is a chronic condition with constant pain, we must combat it with constant treatment. I sometimes fear I won't have time to properly care for myself in this manner, but essentially have to make it a priority nonetheless.

If anyone else has treatment remedies that have helped with the feet tingling, please share!
26 yo. Pain since 11/2009. Doing much, much better than the initial few months where I was in EXCRUCIATING pain 24-7. Still have irritation, burning, tingling, and/or pain in pelvis and feet.

Things that help: yoga/stretching, internal trigger point stretches, good posture, thinking positively/not obsessing, amitriptyline (maybe), warm baths (sometimes), and literally doing everything possible to live normally and productively. I also think a night of drinking can relax the body and provide a nice temporary escape.
Things that don't help: obsessing, catastrophic thinking, most doctors, antibiotics
Things I find irrelevant (for me): food/drink, antibiotics, deep breathing.
extreme3
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Re: Tingling in Feet?

Post by extreme3 »

I try to wear sandals, no socks whenever possible - that helps quite a bit. Not focusing on it helps too (which is easier to do if it doesn't hurt so much).
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
kls269
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Re: Tingling in Feet?

Post by kls269 »

extreme3 wrote:I try to wear sandals, no socks whenever possible - that helps quite a bit. Not focusing on it helps too (which is easier to do if it doesn't hurt so much).
I just looked at your previous posts and I feel like we have almost the exact same history, and now, perspective on all this. I was wondering if, looking back at it, the thera-seat was a beneficial purchase? I am getting ready to start law school and know I am going to be on my ass all the time so was contemplating getting a good seat cushion of some sort.

I, too, have the tightest hips, abductors, quads, etc., and am convinced this plays a major role. I hope to continue incorporating yoga into my life, keeping at it at least 3-4x/week.

Thanks again everyone.
26 yo. Pain since 11/2009. Doing much, much better than the initial few months where I was in EXCRUCIATING pain 24-7. Still have irritation, burning, tingling, and/or pain in pelvis and feet.

Things that help: yoga/stretching, internal trigger point stretches, good posture, thinking positively/not obsessing, amitriptyline (maybe), warm baths (sometimes), and literally doing everything possible to live normally and productively. I also think a night of drinking can relax the body and provide a nice temporary escape.
Things that don't help: obsessing, catastrophic thinking, most doctors, antibiotics
Things I find irrelevant (for me): food/drink, antibiotics, deep breathing.
extreme3
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Re: Tingling in Feet?

Post by extreme3 »

kls269,

The thera-seat was pretty much useless. While it relieved the pressure in the perineum area, it increased pressure in the other sitting areas which equalled a complete wash for me as far as pain relief. I've tried a gel seat as well which did nothing for me either. In short, I wouldn't recommend investing in any of these.

I started going to a PT a few months back which was a HUGE help. His examination revealed I was severely tight throughout the hips and pelvis. While he didn't manipulate TPs, he instructed me on a number of stretches that really provided relief after doing them regularly day after day. I highly recommend the pigeon pose stretch which seems to hit the right spots for me. My pelvic pain is almost gone - just have the neuropathic pain at the bottom of my feet (which is relieved when I'm not sitting).

Let me know if I can give you any other tips and best of luck to you.
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
Sherradin
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Re: Tingling in Feet?

Post by Sherradin »

I would definitely try a cushion. I used one at work. I don't care what people think and I carry it too and from my car in the morning for the drive to work and back. Hard cafe seats give me pain later after I go to the bathroom.

Reading your posts kls269 you use the work fear a lot. That is how it is in the beginning because it is so frightening and no-one seems to be able to explain why it is happening. One of the best investments I made in the beginning was for the first time in my life getting counselling from a pain management specialist. They gave me a book called "Manage your pain" written by some Australian pain doctors and I also read Jon Kabbit Zinns "Full Catastrophic Living". Both of these books give you good tools for mentally dealing with what is happening. There are two chapters in the J K Zinn book directly about meditation and pain that for me were brilliant.

It was crucial in me turning my attitude to this thing around. You must try to find a way of not being so scared..I am having a flare at the moment and I am doing the usual catastrophic thinking but this time the tools I was given are saying "you know you have been here before and really improved..Dr Wise said he had terrible flares but no has NO pain he sat for hours with us at the course drink fruit juice and was fine".

The funny thing is the counselling taught me so much about myself. I don't judge people now. The yoga has also done something to my mind that I think "oh well I am in pain today. This is how it is but I am going to enjoy the day". Previously the pain would have me in a funk of anger and bitterness thinking why wasn't I perfect.

I am sure the calmer you become with an attitude of acceptance to what is happening right now the more the pain will melt away. It is just a frustratingly slow process.
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
kls269
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Re: Tingling in Feet?

Post by kls269 »

Hi all,

Just checking back in. I am still dealing with the damn feet tingling. Ordinarily it's mostly just a nuisance, but sometimes the discomfort borders on legitimate pain. Anyway, for anyone else who has had this symptom and has any other advice to share (not already in the forum), I would appreciate it. I do a lot of stretching and yoga, but since starting law school I obviously do a lot of sitting and sometimes do not have time for sufficient exercise.

Thanks!
26 yo. Pain since 11/2009. Doing much, much better than the initial few months where I was in EXCRUCIATING pain 24-7. Still have irritation, burning, tingling, and/or pain in pelvis and feet.

Things that help: yoga/stretching, internal trigger point stretches, good posture, thinking positively/not obsessing, amitriptyline (maybe), warm baths (sometimes), and literally doing everything possible to live normally and productively. I also think a night of drinking can relax the body and provide a nice temporary escape.
Things that don't help: obsessing, catastrophic thinking, most doctors, antibiotics
Things I find irrelevant (for me): food/drink, antibiotics, deep breathing.
Sherradin
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Re: Tingling in Feet?

Post by Sherradin »

I have a return of the pain in my feet and legs but I know now it is from my back. I think when my L5S1 fracture broke away when my twins were small and I was lifting like a fool..then after the surgery I have a weakened spot. I went back to yoga and got better No pelvic pain no pain ...then as I got off the meds I was fine BUT because I am a compulsive personality I bend deeper and deeper in yoga to get more flexible and sit all day ..its coming from my back I know that now. I have put myself back on Lyrica to control the sciatic pain which in the morning is awful..but after years of pelvic pain well you know at least I dont have to wee too. But I am getting cross talk as the pain is centralizing up my legs to my butt..physio is doing trigger point and says the sitting is the aggravator but I love being back at work after 11 years. Back in FX like a duck to water again. So I am using Endone and breaking my days at work up laying facedown at lunchtime in the meditation room and using an ergo chair to restore the lordosis in my back.

Sciatica is so painful...my left calf is screaming at me no wonder they call Endone Hillbilly heroin it takes the pain away and gives respite. But now I am on a big program. I stagger around the block in the morning to loosen my back then so I can stand to make the kids sandwiches for school laying down occasionally then.Lyrica and off to work Endone at work and physio and swimming and I am trying Feldenkrais as well...pacing it up as I get better. NO MORE DEEP FORWARD BENDING FOR ME with all my disc issues who am I kidding..I don't want to stir up my pudendal nerve the break has been so liberating.

But still doing the stretches the physio agreed to and meditating once a day even if it's the middle of the night when my legs throbbing. You just gotta hang in there.

kls269 try doing some gentle stretches like laying face down on your stomach and lifting up on your elbows..It makes space for the discs in your back and stop the deep forward bending i.e. head to knee poses it maybe crushing discs and referring the pain to your feet. Only based on my experience.
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
superuse
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Re: Tingling in Feet?

Post by superuse »

Do a search on "feet" "foot" "toe" etc.

For the person with the throbbing pain and flares it is from what you said, most in pelvic pain are compulsive, usually exercisers. You are irritating all the nerves with the yoga and stuff , especially deep forward bending---- super especially if it is with legs locked.

For the guy in law school look at my signature at the bottom. It has been the same for over 2-3 years.

Get well

--jjf
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -

The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
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