Don't know if anyone will be interested in contributing to this or not.. however... a few months ago my son and I started taking guitar lessons together and I've noticed that when I practice guitar, my symptoms seem to dissipate considerably, sometimes completely, unfortunately only to return shortly after... it could be that my mind is completely focused on learning chords or it could be something else entirely... I have also noticed that the same phenomenon occurs when I'm lecturing to/ teaching a large group of people...
Anyway, I started wondering if others have experienced relief or a reduction in symptoms by engaging in an activity or doing something that seemingly has no connection to CPPS.... If you've had this type of experience and you want to share it, I think it would be interesting for all of us and perhaps we could even learn something along the way... some common denominators... that sort of thing...
Seemingly Unrelated Activities That Ease Symptoms
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bellowbellow
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Seemingly Unrelated Activities That Ease Symptoms
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
totally agree
If I engage in activities that I have to concentrate on, symptoms go away for a short time....
Age:36 | Onset Age: 36 | Symptoms:Urethral burning, "hot" feeling in genitals | Helped By: 3 asprin once a day, Xanax, hot baths, reducing stress, alcohol | Worsened By: Stress and anxiety
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otherwiseread
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Re: totally agree
exactly the same for me, if I'm fully engaged in something I forget about my pains and aches.. I play guitar too, but for some reason it has the opposite effect on me- I get pains just from looking at the guitar .. The good thing about it is that it's one of the few things I can do while standing uprebel1 wrote:If I engage in activities that I have to concentrate on, symptoms go away for a short time....
OK, too lazy to change my signature, but my sympoms have improved significantly, some went away competely. Old sig below.
Age: 27 | Onset Age: 23 | Symptoms: differ from year to year, anal/buttocks pain(especially when moving around/walking), burning when pee every once in a while, muscle tightness after peeing, sometimes but rarely burning after,, but no urgency , i pee about 4-5 times a day. Stomach bloating, hard to pass gas, occasional sharp pain in right side lower abs.
Helped By: alcohol(maybe i am wrong about this one,, helps some symtoms, possibly makes other symptoms worse), water, Beer always cures urethra pains/burning.
| Worsened By: showers, defecation, massage?, stress, winter, early spring, Snapple diet iced tea?.
Makes no difference: sitting(try putting something under back legs of your chair to tilt it slightly), masturbation(2-3 times a day usually),(update, now down to 1-2 times a day), used to ride bike without a seat on for 4 hours some days 3-4 days a week- no problem, spicy foods - no problem, 3-4 cups of black tea a day- no problem
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otherwiseread
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as for the unrelated things that take my mind off and make me relax - online computer games, talking on the phone, or just talking with people, watching something interesting on tv, drinking tea, eating snacks,,etc
OK, too lazy to change my signature, but my sympoms have improved significantly, some went away competely. Old sig below.
Age: 27 | Onset Age: 23 | Symptoms: differ from year to year, anal/buttocks pain(especially when moving around/walking), burning when pee every once in a while, muscle tightness after peeing, sometimes but rarely burning after,, but no urgency , i pee about 4-5 times a day. Stomach bloating, hard to pass gas, occasional sharp pain in right side lower abs.
Helped By: alcohol(maybe i am wrong about this one,, helps some symtoms, possibly makes other symptoms worse), water, Beer always cures urethra pains/burning.
| Worsened By: showers, defecation, massage?, stress, winter, early spring, Snapple diet iced tea?.
Makes no difference: sitting(try putting something under back legs of your chair to tilt it slightly), masturbation(2-3 times a day usually),(update, now down to 1-2 times a day), used to ride bike without a seat on for 4 hours some days 3-4 days a week- no problem, spicy foods - no problem, 3-4 cups of black tea a day- no problem
Yes, If I have some discomfort and go in and get a massage or play my drums at a gig, or play my piano my discomfort goes away. Further proving that joy and concentration away from our condition and treating our muscles will ease the symptoms. Enjoy life's wonders and push through and notice the symptoms melt away. Proof this is in large part a tension disorder... 
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Even on a bad day my symptoms are absent when I am practicing or teaching tai chi. What's unexpected about that is that I am focussed on my body when I am practicing. Of course, I'm also very relaxed. In most of us, I'm sure, cp is anxiety and tension related.
Age: 71; age at onset: 65; symptoms: initially rectal spasms; currently anal pain, pereneal pain, buttock pain; all pain on the right side; early diagnosis: chronic non bacterial prostatitis; treatments 4 long courses of antibiotics, accupuncture, naturopathy; current treatments: gabapentin, terasozin, Celeza, PT.
Re: totally agree
I experience the same thing. I have started a new job (stressful right there) and when I am up to my eyeballs trying to decipher something and I am feeling good about solving it, I have no symptoms. Also - being actively engaged with people I am comfortable with helps.rebel1 wrote:If I engage in activities that I have to concentrate on, symptoms go away for a short time....
Quiet times at night seem to be bad for me (alone with my mind).
Age: 31; age at onset: 18; symptoms: perineum pain, joint pain, pain in back, pain on left or right testicle, very bad fatigue, malaise, frequent/urgent urination (good stream though), weak/muted orgasms with symptoms getting worse after orgasm, anxiety, depression, 3 surgeries to repair bad strictures (urethrotomy and urethroplasties).
I get this sometimes to especially if real busy not sitting down, I'm no brain surgeon but I think its something to do with the brain muscle response e.g if I am doing certain things I will automatically clench my muscles but if I am doing other things e.g. just moving about office working in autopilot if you know what I mean???lol I will be perfectly fine.
Showing me if you have symptoms like this it is very much so muscle related, this condition is as much about breaking bad habits as treating the muscles
ie paradoxical relaxation meditation etc
My problem is though I need to lie down to fully relax, which isn't possible in a 9 to 5 job....maybe if I win the lottery mmmmm tomorrow
Showing me if you have symptoms like this it is very much so muscle related, this condition is as much about breaking bad habits as treating the muscles
ie paradoxical relaxation meditation etc
My problem is though I need to lie down to fully relax, which isn't possible in a 9 to 5 job....maybe if I win the lottery mmmmm tomorrow
Age:29 | Onset Age:19 | Symptoms: constant discomfort, dribbling | Helped By: Stanford/Wise-Anderson Protocol, jogging, taking it easy | Worsened By:
Unrelated Activities
Last summer I remodeled by daughter's bathroom. I mean, tearing down tile out of the shower, tearing off wallpaper, puting in a new bathtub, plumbing, electrical work, etc. That whole process took about 2-3 weeks. During that entire time I had little or no pain. I even conducted a experiment during that time frame. I masturbated everyday, sometimes 2x a day to see what would happen. I was able to achieve strong erections, where before I couldn't, no premature ejaculations, and no pain after ejaculation. After the bathroom was completed ALL OF MY SYMPTOMS RETURNED. I case of chronic prostatitis / chronic pelvic pain syndrome is completely anxiety/tension related.
Lukesky
Lukesky
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Re: Unrelated Activities
That absolutley shows that this disorder, if you are distracted in something you are into, will ease symptoms and make them go away. It's a mental connection between focusing on it and then causing the tension/pain/disconfort,LUTS cycle....lukesky wrote:Last summer I remodeled by daughter's bathroom. I mean, tearing down tile out of the shower, tearing off wallpaper, puting in a new bathtub, plumbing, electrical work, etc. That whole process took about 2-3 weeks. During that entire time I had little or no pain. I even conducted a experiment during that time frame. I masturbated everyday, sometimes 2x a day to see what would happen. I was able to achieve strong erections, where before I couldn't, no premature ejaculations, and no pain after ejaculation. After the bathroom was completed ALL OF MY SYMPTOMS RETURNED. I case of chronic prostatitis / chronic pelvic pain syndrome is completely anxiety/tension related.
Lukesky
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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bellowbellow
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Since my initial post, I've been getting into playing guitar in a big way... practicing about 1hr each night, sometimes more, and while I'm doing so, my symptoms are virtually gone... must be my brain focusing on trying to play chords... or perhaps I'm igniting certain parts of, and pathways in, my brain that short-circuit the pain.... I find it all pretty interesting....
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
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centralouchie
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Ever since reading "A Headache in the Pelvix" the symptoms have been on the decline for me. This evening is a minor flare-up, but given the amount of wine I tasted earlier today and the case of incredible zinfandel I got for $100, I consider it a fair trade.
Time to sit back with a good movie and relax...
Time to sit back with a good movie and relax...
Age: 41 | Onset Age: 41 (though maybe 14) | Symptoms: Urethral pain and burning | Helped By: Rest, Q-Urol, Exercise, Valium, and The Tennis Ball Trick | Worsened By: stress, long drives, arguments, my ex
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scoobysnacks
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well apparently for me its being outside building a landscaping wall out of this fabricated stones with the locking lip on them. Was outside both days doing this and had complete remission of my symptoms.
Got to think its the combination of exercise and not thinking about it AT ALL.
Sitting and excessive running still causes my worst problems.
Regards,
Ss
Got to think its the combination of exercise and not thinking about it AT ALL.
Sitting and excessive running still causes my worst problems.
Regards,
Ss
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
Bellow,
This is a interesting topic you brought up on this board and it has caused a lot of discussion there after I hope more people click on this post and read it. I know that a psychologist I am seeing has brought this up to me a few times about the mind body connection between pain and the mind. He has said that people with any chronic pain or chronic muscle problems has been shown with different research that when ones mind is busy with different activities that they do not think of problems as much. I know for me I have told him if my pain and problems would get better or just go away I would in return be more busy and active with different things he said in a perfect world that would be the case but more often then not that does not happen with chronic pain issue you need to learn how to live with pain. I know for me that is easier said then done and I have even said that to him and he has agreed with me on that note that living with problems and pain is indeed hard to do as well as getting ones life more active even though a person still has chronic pain issues but that is the objective. I know for me that has still been a problem and the results have been mixed with me and my life dealing with chronic pain and getting more out of life and not thinking about the chronic pelvic pain as much through out the day.
This is a interesting topic you brought up on this board and it has caused a lot of discussion there after I hope more people click on this post and read it. I know that a psychologist I am seeing has brought this up to me a few times about the mind body connection between pain and the mind. He has said that people with any chronic pain or chronic muscle problems has been shown with different research that when ones mind is busy with different activities that they do not think of problems as much. I know for me I have told him if my pain and problems would get better or just go away I would in return be more busy and active with different things he said in a perfect world that would be the case but more often then not that does not happen with chronic pain issue you need to learn how to live with pain. I know for me that is easier said then done and I have even said that to him and he has agreed with me on that note that living with problems and pain is indeed hard to do as well as getting ones life more active even though a person still has chronic pain issues but that is the objective. I know for me that has still been a problem and the results have been mixed with me and my life dealing with chronic pain and getting more out of life and not thinking about the chronic pelvic pain as much through out the day.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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otherwiseread
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yeah, actually I do love playing guitar too, one of the things that I can do without any discomfort.. you can play it while sitting, standing or laying on the couch :)) all the nights I had to stay at home not feeling like going out or doing anything.., at least i've gotten pretty good on the guitar over the last couple of years .. lolbellowbellow wrote:Since my initial post, I've been getting into playing guitar in a big way... practicing about 1hr each night, sometimes more, and while I'm doing so, my symptoms are virtually gone... must be my brain focusing on trying to play chords... or perhaps I'm igniting certain parts of, and pathways in, my brain that short-circuit the pain.... I find it all pretty interesting....
OK, too lazy to change my signature, but my sympoms have improved significantly, some went away competely. Old sig below.
Age: 27 | Onset Age: 23 | Symptoms: differ from year to year, anal/buttocks pain(especially when moving around/walking), burning when pee every once in a while, muscle tightness after peeing, sometimes but rarely burning after,, but no urgency , i pee about 4-5 times a day. Stomach bloating, hard to pass gas, occasional sharp pain in right side lower abs.
Helped By: alcohol(maybe i am wrong about this one,, helps some symtoms, possibly makes other symptoms worse), water, Beer always cures urethra pains/burning.
| Worsened By: showers, defecation, massage?, stress, winter, early spring, Snapple diet iced tea?.
Makes no difference: sitting(try putting something under back legs of your chair to tilt it slightly), masturbation(2-3 times a day usually),(update, now down to 1-2 times a day), used to ride bike without a seat on for 4 hours some days 3-4 days a week- no problem, spicy foods - no problem, 3-4 cups of black tea a day- no problem