Possible breakthroughs

Male pelvic pain, prostatitis, IC
kevin
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Possible breakthroughs

Post by kevin »

Two very significant things have happened recently related to my condition. I think I might be very close to solving this 3-year riddle once and for all. I will post again this weekend when I get more time, but just so I can decide whether to make a Dr.'s appt before the weekend, here are a few brief questions. I would tremendously appreciate anyone's input.

-Can air/gas get trapped in/around the urinary tract?
-Could this cause weird kidney symptoms (e.g. bubbles in urine, tightness in kidney area, strange liquidy sounds)?
-Could it also cause pelvic pain/urinary symptoms, if it is located lower?
-Could Sudafed or Cymbalta affect the presence/location of this air?
-Could this air/gas travel upward, and end up causing a pneumomediastinum?

This of course all sounds off the wall, but this really seems to be coming together. I hate to be so brief. More to come.

Kevin
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
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Post by webslave »

If you are getting bubbles in your urine it may be a fistula.

http://www.urologyhealth.org/adult/inde ... 3&topic=35
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kevin
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Post by kevin »

Thanks Webslave. An additional note: urine and blood tests were completely normal, despite kidney symptoms.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
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Post by webslave »

Just note that bubbles in urine are not the same as frothy urine in the bowl. The urine will be sputtery on exit if there is possibly a fistula. Urinating under water (bath?) may be the best way to see if you have air in the urine.
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kevin
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Post by kevin »

Thanks. I tried urinating under water, but didn't see any actual bubbles (but maybe really small ones). Anyway, here's what has happened in the past 3 weeks:

-Lots of bubbles in my urine. (Big bubbles, not really froth.)
-I feel pressure and cramps in my side, going up to my kidney area,
which is very tight.
-I have been very thirsty.
-Lots of liquidy gurgling sounds emanating from flanks.
-After putting my pants on after urinating I sometimes accidentally "squirt" some extra urine out.
-A doctor I saw said he feels gas in my abdomen.
-Urine and blood tests are normal (though albumin level slightly elevated).
-Pelvic symptoms are up.

Some background:
-Last year I had an idiopathic pneumomediastinum (no perforations were
found in my chest). In the hours before the pneumomediastinum occurred
my pelvic pain symptoms remarkably disappeared.
-Before the onset of my current symptoms I was taking Cymbalta, and my
pelvic pain symptoms went away. But two days into the Cymbalta, I had what felt like a small pneumomediastinum.

That's why I think this involves gas escaping from my pelvis and going into other parts of my body.

My urologist had me schedule a CT scan.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
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Post by webslave »

If you see no bubbles under water while urinating, then there is no gas in your urine. Bubbles in the bowl are a different matter (protein in urine --> possible kidney disease).

A pneumomediastinum can be very serious and I think it may have upset you and led you to believe that there are gases all over the place, but that is probably not true.

There is a good write-up here:
http://www.emedicine.com/ped/topic1832.htm
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air in urine

Post by gifford »

This is the first time I have seen bladder fistula mentioned anywhere on this site.
Are the symptoms similar to CPPS?
I will have to check peeing in the the bath.
When I pee in a glass it looks like the head on a beer.
Thanks.
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Post by kpbos »

Did u say that cymbalta took away your pelvic pain symptoms? Has anyone else had this kind of success with cymbalta?
Age:33 | Onset Age: 21 | Symptoms: Penile/rectal/testicular pain, urgency/frequency, constipation | Helped By: Relaxation, PT, eating healthy, just started some acupuncture-seems to be helping | Worsened By: stress/anxiety, poor diet
kevin
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Post by kevin »

Yes. For me, I think it's taking any beta-adrenergic agonist. Cymbalta is not one per se, but has a similar effect by increasing the amount of the neurotransmitter norepinephrine. (Note: this relieves urinary frequency more than pain. I don't think that its antidepressant properties help me.) I'll elaborate on this eventually.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

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Post by londoner »

Today I went to see my GP over frothy in-the-bowl urine. She tested me for proteins, ketones, sugar, PH, infection etc. (that's a helluva clever test if it works) and all showed up normal. She told me that frothy urine can be quite normal and often just a sign of dehydration in hot weather.
Age: 44 | Onset Age:41 | Symptoms: abdominal pain and discomfort, urinary frequency, low libido | Helped By: quercetin, diazepam, neurontin, Elavil | Worsened By: sex, alcohol, caffeine
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cymbalta

Post by gifford »

kevin814
Cymbalta was one of the things suggested to me by Mayo Clinic when I went there but no one ever prescribed it to me nor told me the proper dose.
I may ask my GP to if I can try it.
What is the dosage of cymbalta that you are taking ?
Thanks much,
gifford
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Post by kevin »

Hi gifford,

I don't have the bottle around so I can't tell you for sure. I think it was a regular therapeutic dose.

I'm curious why that drug specifically was prescribed to you. It can be used as a painkiller and anti-depressant, but for me I think the action was different.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
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cymbalta

Post by gifford »

kevin814
I have seen a lot of MD's. But I think it was an MD at the Mayo pain clinic.. He did not say why I should take it but just recommended I try it for my CPPS.
I assumed that it was as an antidepressant and pain.
What did/does it do for you?
gifford
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kevin
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Post by kevin »

My chief complaint is frequent urination. There are beta-adrenergic receptors in the bladder that, when activated, inhibit contraction of the bladder and thus relax the need to urinate. Cymbalta helps stimulate these. But this is just a theory of why it works for me; there could be other mechanisms.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
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Post by winding_road »

I hope you read this and give me your opinion. I wrote about this a while ago and received no reply. I am not here to pretend that this issue is essential in understanding chronic prostatitis / chronic pelvic pain syndrome or MY CPPS. However it is an important aspect that I would really like to understand. And it is related to the GAS issue.

I have TP in my stomach and other places. When I use something like the Theracane by pressing on the "rubber like" areas that hurt, I end up virtually EVERY TIME the massage is successful by frequent flatus and belch. This also happen with stretching. And when this happen, I suddenly feel better, muscles relaxed, and start feeling my body better, including a decrease a bit in the INsensitivity in my crotch.

It is curious enough that even though sometimes I do not feel any gases in my stomach, and are not able to produce any gas evacuation, the Trigger points in my stomach will always be bale to produce this.

Now I notice you talk about gases, but clearly you seem to be talking about gases that are trapped inside which might be different from what I talking, but might be very well related. I just hope somebody will take a look and tell me what they think. Kevin do you have something similar ? [/b]
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