First of all, I would like to say that I am totally relieved to have found this forum related to this disturbing ailment.
I have unknowingly suffered from chronic prostatitis / chronic pelvic pain syndrome for many years, although the symptoms have always been mild and manageable. I have also struggled with anxiety and depression for the the last 8 years or so which I am learning is probably closely related to my CPPS.
My symptoms in the last months have progressed and I recently saw a doctor for assumed bacterial prostatitis. Going through the motions I have been on antibiotics for the last 2 weeks (two more to go) and don't have a lot of hope in them. I just purchased the book "A pain in the pelvis" and plan to start reading it soon to get some insight.
My most disturbing symptom is the feeling that there is urine in the urethra. I fear at times that I may becoming incontinent, but I have as of yet to have any actual urine leakage. It is more of a sensation. Is that a common symptom of CPPS?
Anyway, I am still learning about this disorder and any help is appreciated. I would like to go to the Stanford Clinic, but the cost is a bit out of my means.
many thanks,
I'm new and have some questions
I'm new and have some questions
Age:32 Onset: 1991 (mild symptoms) 2006(moderate symptoms)
Re: I'm new and have some questions
Hello. I'm new here too but I have a few suggestions that may help.
First, put your age, symptoms, what makes better, what makes worse etc. in your signature so that people will have a better idea of your case.
Obviously, if you can figure out what caused your symptoms to flare it may be helpful. For many of us this is a sudden change in sexual activity, increase in stress, change in diet, etc.
Try to relax. Getting stressed and clenching your pelvis all day won't help. If you've had mild symptoms for years I'm sure eventually this flare will subside.
It might be worthwhile to get some quercetin and see if that helps, unless you are taking a quinolone. I think there may be an interaction with those two.
MW
First, put your age, symptoms, what makes better, what makes worse etc. in your signature so that people will have a better idea of your case.
Obviously, if you can figure out what caused your symptoms to flare it may be helpful. For many of us this is a sudden change in sexual activity, increase in stress, change in diet, etc.
Try to relax. Getting stressed and clenching your pelvis all day won't help. If you've had mild symptoms for years I'm sure eventually this flare will subside.
It might be worthwhile to get some quercetin and see if that helps, unless you are taking a quinolone. I think there may be an interaction with those two.
MW
Age: 32 | Symptoms: Twingy pain/muscle spasms in groin area (gone), tingling sensation at tip of penis (has resolved as of now), urinary frequency (resolved as of now), thicker/decreased amount of semen (resolved as of now). Makes better: Stretching, Relaxing pelvic muscles, moment to moment relaxation, not sitting with legs crossed, Elavil, quercetin. Makes worse: Sitting, stress, more than one orgasm/day, constipation, manual labour
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
A feeling of urine in the urethra might occur. Personally, I get a feeling like there is a beebee (or a small stone) in my urethra about 1 centimeter into the urethra. There is, of course, nothing actually there.
Such afferent sensations, in my opinion, come from the prostate and the bladder neck. Both me and my twin brother get that beebee sensation sometimes. I recently experienced it two weeks ago.
Such afferent sensations, in my opinion, come from the prostate and the bladder neck. Both me and my twin brother get that beebee sensation sometimes. I recently experienced it two weeks ago.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
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webslave
- Maintenance
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- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
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One of the common symptoms of our disorder is mild leakage after urination. It doesn't really help to stand and shake the penis after urination either. Not everyone gets this symptom.
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Dj Smitty
- Veteran
- Posts: 164
- Joined: Tue Sep 27, 2005 12:59 am
- Location: London, Ontario, Canada
- Contact:
wow, you described exactly what I get about half the time I urinate these days. Sometimes, during a flare I suppose or just a bad day or two, that feeling is always there, but will slowly disappear after urination.LightningTree wrote:A feeling of urine in the urethra might occur. Personally, I get a feeling like there is a beebee (or a small stone) in my urethra about 1 centimeter into the urethra. There is, of course, nothing actually there.
Such afferent sensations, in my opinion, come from the prostate and the bladder neck. Both me and my twin brother get that beebee sensation sometimes. I recently experienced it two weeks ago.
It's very uncomfortable because it feels like you have to go pee again, even though you've just emptied at least 8 or 9 ounces in my case. Sometimes it feels as if something is actually stuck in there and a pebble or stone is the exact word. I've learned to just ignore it because it does not last once the muscles have recovered after a few minutes from urinating. My urologist or GP could not explain this sensation and since it is but a minor annoyance, I just don't think about it much.
Age:23 | Onset Age:22 | Symptoms:Urinary hesitancy, moderate frequency, urgency and retention, slight perinneum, rectal and leg pain, frequent abdominal/bladder pain. Red/white spotty irritation on penis | Helped By:hot baths or showers, walking and moving around, pain medications | Worsened By: sitting for a long time, holding urine too long. I'd say I'm about 75% better naturally so far.
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Dj Smitty
- Veteran
- Posts: 164
- Joined: Tue Sep 27, 2005 12:59 am
- Location: London, Ontario, Canada
- Contact:
Re: I'm new and have some questions
Hey mate, I'll respond to you directly since I know exactly where you're coming from. The best thing is not to worry....this really isn't a big deal and it should get better over time. This was a constant nightmare for me for a month or two....my peeing was not forceful and it always felt as if I had urine 'stuck" in my urethra.accipiter wrote:First of all, I would like to say that I am totally relieved to have found this forum related to this disturbing ailment.
I have unknowingly suffered from chronic prostatitis / chronic pelvic pain syndrome for many years, although the symptoms have always been mild and manageable. I have also struggled with anxiety and depression for the the last 8 years or so which I am learning is probably closely related to my CPPS.
My symptoms in the last months have progressed and I recently saw a doctor for assumed bacterial prostatitis. Going through the motions I have been on antibiotics for the last 2 weeks (two more to go) and don't have a lot of hope in them. I just purchased the book "A pain in the pelvis" and plan to start reading it soon to get some insight.
My most disturbing symptom is the feeling that there is urine in the urethra. I fear at times that I may becoming incontinent, but I have as of yet to have any actual urine leakage. It is more of a sensation. Is that a common symptom of CPPS?
Anyway, I am still learning about this disorder and any help is appreciated. I would like to go to the Stanford Clinic, but the cost is a bit out of my means.
many thanks,
Are you peeing ok....like forcefully and emptying at least 8 ounces of urine? if you are, it's likely just an annoying sensation and if you do leak out a bit of urine, not a big deal. You might want to try sitting down on the toilet for 5 minutes to make sure everything gets out...or if it's really bad, pee then sit in a warm bath for a few minutes. I find that always helps. Or if you have to stand, do your best NOT to clench your pelvic muscles while peeing and let your stomach stick out.....and then give your willy a shake or two for a few minutes. But I found that if you keep pushing and spurting out little bits of urine, it just gets worse.
Drink lots of water too so your bladder gets a good workout and distends properly. You might have to go pee a lot more, but I found that also helps. I think you'll find that asking your doctor about this particular issue will get a lot of blank stares.
Age:23 | Onset Age:22 | Symptoms:Urinary hesitancy, moderate frequency, urgency and retention, slight perinneum, rectal and leg pain, frequent abdominal/bladder pain. Red/white spotty irritation on penis | Helped By:hot baths or showers, walking and moving around, pain medications | Worsened By: sitting for a long time, holding urine too long. I'd say I'm about 75% better naturally so far.
Re: I'm new and have some questions
Having anxiety and depression is common for people with our illness.accipiter wrote: I have also struggled with anxiety and depression for the the last 8 years or so which I am learning is probably closely related to my CPPS.
My most disturbing symptom is the feeling that there is urine in the urethra. I fear at times that I may becoming incontinent, but I have as of yet to have any actual urine leakage. It is more of a sensation. Is that a common symptom of CPPS?
As for your question about urine in the urethra, that's also common. On occasion I also experienced that feeling, just not as much as I used to.
Age:37 | Onset Age: 34 | Symptoms: Pain on Right Leg, Fireball, Urethral and Testicular Pain, Urgency, Bladder lost control, Lower and Upper abdominal Pain, Perineum Pain, Nausea, ED, Pain during arousal, Ejaculation Pain, Lower Back Pain , Fatigue, Short term memory loss, anxiety, bowel pseudo-obstruction/IBS, bloating, unable to pass gas, intestinal burning sensations. | Helped By: Stanford/Wise-Anderson Protocol, Elavil, Valium, Stretching, Skin Rolls, Donut Cushion, External Trigger point | Worsened By: Sit for more than an hour, Caffiene, Sex, Bowel movement, Symptoms come without warning.
accipiter,
I don't have much to add since urinary symptoms aren't my worst (I do urinate A LOT, have occasional leakage, and very rarely have a stinging pain in my urethra), but I'm glad you joined the forum. Read up as much as you can. I think you'll find that the site decreases your anxiety about the condition, especially as you learn more about it. I don't know your case like your doctors do, but if you have CPPS, know this: chronic prostatitis / chronic pelvic pain syndrome can be beaten. Learn as much as you can from this site: there is so much information, contributed by Webslave and the combined power of the masses on these forums.
Also, I'll save you a year's worth of doubt and uncertainty about one issue right now: the mind-body connection is CRUCIAL in CPPS. Doing a quick search on psychology and emotional states on this site should support that notion. It's a concept that most of us take lightly for a long time, convinced that if we just stretch enough, get the right therapy, and take the right supplements we can get 100% better. But to dismiss how your stress and anxiety affect you would be folly. As Dr. Wise has pointed out before, solving chronic prostatitis / chronic pelvic pain syndrome is a multi-disciplinary task. You must solve the entire person, not just their trigger points.
I for one am a much better person both emotionally and spiritually for having gotten CPPS. I look at things differently now, and not necessarily in a bad way. I've learned a lot about myself, and understand more now why things happen.
Anyhow, good luck. I hope you find what you are looking for here. Add your data to your signature as suggested above, and make sure to share your story completely at all times so people can weigh in. Other members get as much out of reading your posts as you get from their answers. It's a symbiotic thing. Well, some people like seeing emoticons more than others... so do what you can. Here, for the light-bulb fetish folks...
Mike
I don't have much to add since urinary symptoms aren't my worst (I do urinate A LOT, have occasional leakage, and very rarely have a stinging pain in my urethra), but I'm glad you joined the forum. Read up as much as you can. I think you'll find that the site decreases your anxiety about the condition, especially as you learn more about it. I don't know your case like your doctors do, but if you have CPPS, know this: chronic prostatitis / chronic pelvic pain syndrome can be beaten. Learn as much as you can from this site: there is so much information, contributed by Webslave and the combined power of the masses on these forums.
Also, I'll save you a year's worth of doubt and uncertainty about one issue right now: the mind-body connection is CRUCIAL in CPPS. Doing a quick search on psychology and emotional states on this site should support that notion. It's a concept that most of us take lightly for a long time, convinced that if we just stretch enough, get the right therapy, and take the right supplements we can get 100% better. But to dismiss how your stress and anxiety affect you would be folly. As Dr. Wise has pointed out before, solving chronic prostatitis / chronic pelvic pain syndrome is a multi-disciplinary task. You must solve the entire person, not just their trigger points.
I for one am a much better person both emotionally and spiritually for having gotten CPPS. I look at things differently now, and not necessarily in a bad way. I've learned a lot about myself, and understand more now why things happen.
Anyhow, good luck. I hope you find what you are looking for here. Add your data to your signature as suggested above, and make sure to share your story completely at all times so people can weigh in. Other members get as much out of reading your posts as you get from their answers. It's a symbiotic thing. Well, some people like seeing emoticons more than others... so do what you can. Here, for the light-bulb fetish folks...
Mike
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation