UCPPS - Prostatitis, Interstitial Cystitis Forum

I have heard talk of burnout of this condition around a certain age. I am 41 but physically pretty good shape.

Just curious who is the oldest with this condition on the board so I have some idea when it will be gone for good!!

Thanks.

Oh yea, this ducking hurricane thing does not help!

I've never heard of anyone in their later years having this problem (60s-70s). They usually have BPH or cancer, like my grandfather in his mid 60s. Still, it's not very comforting for me to know that it does or could perhaps burn out. I'm only 23 so if it tends to lessen approaching 50, well I'm in it for the long run.

My urologist specifically told me he rarely sees men over 60 or so come in complaining of prostate pain. I thought that was very interesting. I don't think life's stresses ever actually go away, there is always something, so I wonder what it is.

Maybe once that age is reached, they've had enough of the f'in doctor!

prisoner wrote:Maybe once that age is reached, they've had enough of the f'in doctor!

lol...quite possible, given their relative ineffectiveness dealing with this problem.

I just turned 45. I was 43 when it hit....I know there is another user on this forum who is 48. I think one reason we may not see too many people very old is the PC factor. A lot of men in their 50s and 60s are not into technology. Thus just dealing it without using the internet for information. A lot of the older men may be fully retired too....and not having to work I think defnitely helps this condition.

The older generation (60+) may also have a tendency to not talk about this sort of thing, or they were told a hundred times in the last 30 years that it was all in their head, or that they'd have to live with the pain, so now they just don't report it. Without the internet, I would have probably believed my doctor too. But now I'm wiser.

But I agree, not working would help me tremendously too.

Mike

Richie wrote:I have heard talk of burnout of this condition around a certain age.

That's a myth - there is evidence from a NIH study which shows that you have the same chance of being worse, slightly better or no change as the years progress.

That's the bad news. The good news is that if you can get access to a trained PT and follow the Stanford/Wise-Anderson Protocol, there is every chance you will experience a significant improvement in your condition. There is now good evidence for this from another NIH sposored study.

treynor33 wrote: A lot of the older men may be fully retired too....and not having to work I think defnitely helps this condition.

David Wise reports that his condition got much WORSE when he gave up work.

I am 55 and my chronic prostatitis / chronic pelvic pain syndrome got bad a age 51. I have had pelvic tension and some discomfort off and on since my 20s but it didn't really bother me much until age 51. I don't think it has much to do with age, more with stress. If you do the proper relaxation and stretches/PT you will probably get better no matter what the age. Dr. Wise also told me that it got worse when he retired because that was all he had to worry about. When I saw him last year he had no pain. The SP works, at least for most of us regardless of age.

There is absolutely no way that anyone could convince me that if I didn't work this would get worse. On weekends, days off and vacations it is hardly a thought. I can relax, sit on what I want, lay down, do anyting I need to at my own pace and time, no long meetings, finding bathrooms, etc. And the longer I am off the better it gets.

Now I know it wouldn't just magically disappear, but there is not 1 doubt in my mind it would not be as big an issue. The only time I worry or think about it a lot is at work. And I don't have to sit in front of a computer with my feet on the ground when I'm home on weekends and vacations. That is the most painful position for the majority of us IMO.

I dont think the key is not to work, I think its more to find a job that in not stressful..

I left my last job and took a 2 months vacation, that's when it got worst... I think that working that keeps my mind off the pain like some sort of distraction. If my condition is caused by stress or anxiety, that's certainly not coming from my job.

In May of this year after having this crap for a year I switched jobs. Much less stress and less demanding and even more money. No real change in symptoms so far. I just get relief when I don't work at all. Weekends, vacations, etc.

treynor33 wrote:There is absolutely no way that anyone could convince me that if I didn't work this would get worse. On weekends, days off and vacations it is hardly a thought.

I tend to agree.

I took a weeklong vacation to the Colorado Rockies in September, and for the most part, felt very little pain. I even was able to take a two hour horseback ride - I was feeling sore toward the end of the ride, but the pain vanished quickly after dismounting.

At work, I'm in front of a computer all the time. I alternate sitting and standing, but by day's end, I'm a' hurtin'.