UCPPS - Prostatitis, Interstitial Cystitis Forum

Tylerk -

Thanks for the words of encouragement. It has been a week since no contact, and I pray to god that I never see her callerID on my phone every again. She is a constant stalker which i think makes me live in fear that she will show up one day and my apartment.

Anyway, I have started my diet today and I went to the gym for the first time in a good 3 months. I'm trying really hard to cope with it.

I stopped my Elavil 2 days ago, and I got EXTREMELY depressed last night, to the point of horrible thoughts (catastrophic ones)... I quickly took a 10mg before sleeping and I felt a little better today. I'm at the rock bottom of life right now, thinking I still have some really bad disease or HIV.. I wish it would just go away, with time I guess...

I know that all our pains are from anxiety and depression.. we need to learn to be supportive to each other.

Update:

It's been about 3 weeks since contact of my X.. I'm slowly getting over her abusiveness, although I must admit I am still scared to go out to certain places out of fear of running into her.

I am happy to report that I have stopped taking ALL MEDS, at first when I got off of the Elavil, I was extremely extremely depressed and anxious. I went back to catastrophic thinking that I had some disease like HIV or whatever..

How I'm dealing with my anxiety:

As soon as a thought comes up that I have something - I quickly change the tune in my head and think of something else, I DO NOT GOOGLE! that is the worst thing to do. I am practising being happy, talking to friends, and trying not to be alone. I really enjoy working now and I love to be here because it keeps my mind off of things.

I am still really really nervous that one day I'm going to get a call from the X, she really traumatized me... I think with everything that is happening, I am taking the time to relax and not think about my past. Its really tough, but I have to say that it's starting to work slowly.

I am doing a little bit of self massage, not much. And most importantly, sex/masturbation is kept to a bare minimum for now. I'm beginning to feel better slowly.

Update:

My anal/rectal pain is slowly disappearing. I am not taking any medication, or supplements. I am focusing on being a happy person, smiling, laughing and not thinking the worst about everything. I do have to note that I also am refraining from ejaculation. The other day after I had an ejaculation, my penis started to sting, as well as areas in my pubic region which were "stinging" me.

Slowly but surely I am overcoming this!

From my experience the pain-free sex is the last major symptom to disappear.

For me, I just started feeling better day to day. I was able to go out and live normal life and that was enough for me. I didn't even think about sex.

Then all of a sudden one day I noticed that I started being attracted to women all over again. My libido was back! Just keep up with the protocol and focus on being happy. You will get over that last hump.

My libido is back, completely.. that's for sure. I want to hump every woman I see practically lol.. I attribute that to getting off of Elavil and Rapaflo. I also attribute it to not having a hostile relationship.

I however do notice that I don't get as hard as i used to. But honestly that comes with age. Even though I'm only 28 I think there is a large number of people my age who can't get as hard as they used to... Not a big deal for now.

Thanks davyboy :)

Note that one of the possible bad side effects of Elavil is impotence and decreased libido
viewtopic.php?p=34059#p34059

Yep, I stopped Elavil 2-3 weeks ago though :)

last night I went to the gym, don't laugh at me but I have to share.

I was really getting sick of my weight gain, it's a big deal for me. Ever since I was in my teens I always wanted to stay in shape, be fit etc.. After I developed chronic prostatitis / chronic pelvic pain syndrome I let myself go completely. Gained 25lbs, lost a lot of what I worked for as well. I think this got me depressed - well I know it did. I've been on a calorie controlled diet for the past week, and I started to smoke a joint of marijuana right before the gym, and get on a treadmill for an hour. It's really amazing feeling, I put on some good music, and let myself jog/walk uphill. I ended going for close to 4 miles, sat in the sauna for 30 minutes, then I played some basketball for an hour. Today seriously feel like a million dollars. My pain is 99% GONE. I'm going to try this again tonight, it helps get everything off my mind. I stay positive and tell myself I'm going to beat this dumb condition, and no one will stop me! BE STRONG!

I'll keep you guys updated as I continue to get better each day.

Checking in, letting you guys know I'm not taking any drugs still, and I'm feeling close to 80% - 85% better.... Life is getting good again, slowly.

I'm spending time with friends, family, and trying to force myself to LAUGH as much as I can. It really helps!

Great to hear your doing better with NO meds S P!

I know the feeling about weight gain as I am still afraid of any strenuous activity. Oh how I miss the sweet leaf....

I am also happy I am not taking any meds too..

I still have a "numbing" dull feeling in and outside the rectum. I have my days... sometimes I can feel 100% fine, no pain, no dull numbness, nothing what so ever. This will last 4-6 hours. But most of the time I do have that dull numbing feeling... I'd say I'm about 85%-90% right now. No other symptoms.

Does anyone else get that?

Tylerk: Dieting without exercise is not an excuse Weight loss is 80% diet and 20% workout. I went on a real calorie controlled diet, lost 9 lbs so far. I feel better and better each pound I lose.

Keep you guys posted. I'm thinking of going back to see Dr Zeitlin just so he can do an exam and tell me how my pelvis feels with DRE.

Guys, great news. And as usual I will keep you all informed.

I believe that I am at the best I have ever been since coming up on this horrible condition. I will share my inputs, and the things I've done to overcome it all.
Before reading below, I would suggest that you all read my symptoms and/or condition in some sort of brief way so that you can compare if you'd like.

I am about 4-5 weeks now where everyday has been a blessing. I can't thank god enough for blessing me with the resources and ultimately healing.

I am going to list things that I have done since January 1st 2013 until now. In January I was a complete mess, and I took action to make things completely different. This is NOT in any particular order.

1. I ended a 4 year hostile relationship. I had a extremely stressful and anxious relationship where my x-gf of 4 years treated me like complete garbage. I was cheated on, back stabbed, screamed at for being who I am (with the pain)... had NO friends or family I could talk to... I basically was in JAIL!
2. That all ended, I have to say that it was probably the hardest thing I've ever gone through in my life (aside from CPPS). It wasn't easy, but I got through it. I am still in A LOT of emotional pain, and I still think about my x pretty much all day everyday, but then again its only been about 4 months so I hope that it will go away as each day goes by.
3. I LOST A TON OF WEIGHT! I truly truly believe that this might be one of the top issues. To date since I started dieting around Jan, I have lost 25lbs. I feel so good about myself, and that I can fit in my clothing once again. I am getting compliments and it just feels good to look good, feel healthy etc..
4. EAT HEALTHY! Can't stress that enough... Since I've lost weight, my symptoms have dropped drastically. I also have limited calories and have not been eating junk food.
5. Lay off all the meds. I don't take ANYTHING what so ever. I used to be on cocktails of meds and supplements, and I made the commitment to stop it all.
6. Trying to re-kindle with old friends. This made me a happier person inside to be able to just talk to my friends, be happy, laugh a lot.. Any moment you get (even if its fake or exaggerated), LAUGH as much as you can. Make sure that when you are laughing, you are pushing out of your rectum almost like trying to push out feces type of workout. This helps relax and calm down those tense muscles in that area.
7. Last but not least, if you sit all day (like me) GET A NEW OFFICE CHAIR!!!!!!!!!!! I purchased a regular 'executive' style office chair which forces me to have my entire back against the back support of the chair. This also raises my buttocks and puts almost no pressure on my rectum/perineum. I also have a foot rest, so I keep my foot above ground, which also lifts my buttock, again taking more pressure off my rectal area.

Possibly related/unrelated things:

1. I haven't had sex in 4 months (this was not really with choice or no choice, it was more for myself to find out who I am and get over my emotional issues without the need to just go around having sex with others. I feel that when I find the person I love I will have sex with her, and that's what I want right now.)
2. I will say it because I want everyone to know, I do smoke marijuana regularly to help me not think and forget about everything, as well as help me sleep at night.
3. I was taking some Adderall for stimulation and focus, I took it probably for about 2 weeks at most every other day. This made me focus on work, and made me really really happy as a person. I did not take a lot, but when I did I felt unstoppable and completely euphoric. I believe that may have helped me a lot.
4. For weight loss and appetite suppressant, I am taking the following:
   1. Green Coffee Bean extract
   2. Hoodia Extract
5. I try to visit the Jacuzzi as much as possible for 15-20 min a night.

For those of you wondering, I did revisit Dr. Z and was given some Cyclobenzo (Flexeril) which I did take about 1 month ago everyday. I'm not 100% sure if this might have been the magic pill that broke the spasm, but if you would like you can read this article even though this does not describe what I had 100%, it's fairly close.

I will be coming on this site pretty often just to answer questions if you guys have.

For now, I can finally say that I am almost done with chronic prostatitis / chronic pelvic pain syndrome And I want to help others overcome this as much as I can.

Thanks everyone for all your help.. thanks for your support, and all the kind words all of you have sent my way during my difficult times. And most of all, it would have never been possible without Webslave and this forum.

Thanks again guys.. I wish you ALL a speedy recovery. Please don't refrain from asking me anything,

Spoke too quickly.. but either way, pain is different completely now. I got the case of hemorrhoids, 1 external and a few small internals..

I did not see a urologist for this, rather a gastro. Interesting though, because I saw my urologist 3 weeks ago and he "checked" me for hemorrhoids and said I had nothing.

In short: don't rely on your Uro to find hems, they honestly don't want to do that....

Doctor gave me a couple of home remedies, I don't know that they will work but I'll give it a try. Any suggestions?

My suggestion is to squat to defecate:

viewtopic.php?t=1254

But I don't really thing its from being constipated or anything... I think it's maybe cause I sit too much during the day