UCPPS - Prostatitis, Interstitial Cystitis Forum

I've been always waking up with this dry/burning urethra sensation, that fades out after I urinate. Any tip?

many thanks.

Hi there,

My path has been full of ups and downs... and a puzzling adventure full of discoveries about the human body, disappointments, suffering and a teaching about how to live and... there are times when you see a light on the end of the tunnel too... I still see the light... and I have to keep looking for the light...

So after my introduction, my important questions for today are:

1. Once I feel perineal pain (like tendons or muscles in a "string" shape that are inflamed), Is this perineum pain a cause of a chronic prostatitis (like my new urologist said, without checking me up) or a cause from the overtightened muscles like I think it is ( I actually feel the muscles around the coccyx very painful to touch, which makes me trust more on the muscle tension theory).
2. Do people that suffer from prostatitis, also have pain in the muscles around the coccyx?
3. Do people with prostatitis get their symptoms worst when doing body-building exercises?

I am in a phase where I do not know if I should listen only to my new urologist, and start believing it is all about prostate, once prostate problems also affect the muscles around... However, I have a list of physiotherapist that I'm starting to contact too, I guess most of them do not have any clue about this problem...

But for now I just have to clarify this... Once prostatitis also produce perineum pain... does it also produce pain around the coccyx? is this possible?
Or because I have coccyx pain I can focus all my energies on the muscle disorder theory...

These days:
I have been doing internal massage everyday... (that helped me a lot for the last 2weeks)
I know the perineum pain is the bigger problem for me, and is because the pressure done on it when the bladder become fuller that I fell the most discomfort
I know that exercises, like push-ups or weight lifting makes me feel worst (flared me up for the last 4days)
I know I have painful muscles around the coccyx area

Sorry about my English,
cheers to y all.

1 muscles 2 yes 3 yes. You are on the right track.

Hi Webslave,

Thank you for the response.

1- Lets say, someone has bacteria in the prostate, do they feel pain on the muscles around the coccyx too?

2- just to clarify, every type of non-bacterial prostatitis is considered for you has a muscle problem?

cheers

1) No. Chronic bacterial prostatitis is well described here

2) No, not everyone. Some men have no trigger points in the pelvic floor, but still experience pain in the pelvis for neurological reasons (allodynia, wind-up, etc)

1-Today I went for the first time to a physiotherapist. . Has you can understand, it is hard to find someone here in Portugal that is aware of the Stanford/Wise-Anderson Protocol. However he was quite humble. . And he said he is going to study my case. Next session I will bring to him the Wise book, for him to see what I'm talking about. I don't think people are prepared to do internal work around here...

2-Anyway... Yesterday, I randomly saw a clinic that had in its door "pelviperineology"... Do you think that this can be a way to go... Once its really hard to find a experienced "PT" in this field.

3-Exercise always trigger my symptoms... That's why I'm still insisting in this one : Do you think that someone that has bacterial prostatitis will have a flare up with exercise, or having the symptoms triggered by this, is just another clue. . That is all about muscles and trigger points. I ask this, because my urologist was like...

ME: I brought this book with me
DOC "Why are you reading this?
ME: Do you know this book?
DOC: "yes. . Its theory is about the pudendal nerve. .
ME: "humm. . Hummm"
DOC: "you have chronic prostatitis, take this: Bactrim, something for the muscle spasms, and some anti-inflammatory, I am sure you will do fine"
ME: "I Think it as to do with muscle tension... Etc etc... "
DOC: "Yee bla bla... The spasms pharma is for that..., the pain on the muscles is because the prostate pain is irradiated through the muscles... Its like when you have pain in the stomach. . You will feel pain on the abdominals... Because the pain spreads... "
ME: " Does exercise trigger prostatitis?"
DOC: "yes"
ME: "Why?"
DOC: "Blood vessels bla bla. ... Just take this. . "


Their theory is always prostatitis... But... Ok so what... How can I prevent this discomfort doctor?
"Oww. . When the feeling comes you return here, drink water... (?!)"
... But how it came in the first place doc?. .
When will I find a Doctor that will really understand my body... Instead of prescribing stuff...

Unfortunately, in a place like Portugal you have few options, that being 1) self treatment or 2) save money and go to Stanford.

Hi again,

Do you think it is dangerous for someone who has pudendal neuralgia to do internal trigger point release on their own?

best wishes,
papi

I know I'm currently experiencing one of the worst flares of my life after doing internal trigger point work, and it seems to be mostly affecting my nerves (itching, constant feeling of having to urinate, sexual hypersensitivity, etc.) It also seems to be located around the specific trigger point I tried to treat. So from this layman's perspective, I'd be careful.

The muscle you are describing as a hard band in the perineum is almost surely the bulbospongiosus- I had tension problems with this muscle for five years...erection/post-ejaculatory pain, post-urination pain. For me, any activity which demanded a contraction of that muscle would result in an extended period of time where the muscle would be clenched and did not properly relax. I found immense relief with the proper type of EXTERNAL massage- the technique is very easy to do at home, please search my prior posts and read about it.

Do your think these flareups are always positive signs ("two steps forward one back"), once its due to massage... or it can be because of nerve pinching or something, and its not that good?...

The issue of flareup because of treatment has been discussed hundreds of times in this forum. It is a common result of beginning treatment. It even happens to me when I treat the trigger points in my shoulder and back that I get from computer work. BUT it is a positive sign that there are trigger points and that you have hit them and that you can and will improve.

Thanks ;) thats good news.

I will also stop doing gym every time I feel better... which is very stupid... because that is my major cause of flare-ups... (maybe I am actually compressing some nerve. . like the pudendal... which irritated, takes time ( a lot) to heal. . )
I will do some swimming in return...

I have reached a point. . I do not care anymore... If I need to go abroad I will go... I just need some relief from these... psychological release specially, that will come with a good treatment and a good understanding from a good professional. Its hard to find PT's in my country. . specialized in this area... For now I will keep doing internal on my own.

I have a osteopath doing external. Other physiotherapist doing whatever he can do. I don't thing I'm going back to a urologist... these guys just make us feel lost. I have to admit I am steel puzzled about why when I take Bactrim sometimes I feel better... But that must be the anti-infl reason... or other factors...

thanks for everything,
papi

Hi,

Ok, imagine you are seated on the bath and insert your finger the front in a 12 clock position. What is in that internal spot in the center, 2 inches from the entrance of the anus. It looks like its some kind of strings and I always have pain there, that eases a bit when I touch but always tends to return... I would say it is my main spot. There are other more hidden ones, I guess more internal that I think I still haven't touched them.

What is the European alternative to the Dr Wise clinic?