My Story - 4yrs of CPPS and 2yrs of CFS/ME, 31 yrs old, UK based

Male pelvic pain, prostatitis, IC
HClark
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Joined: Sat May 18, 2024 1:52 pm

Re: My Story - 4yrs of CPPS and 2yrs of CFS/ME, 31 yrs old, UK based

Post by HClark »

@mjh2020. Thanks for all your posts above. All really helpful. I feel like I’m on a similar journey to you. I have been to F-Act earlier this year and found it really helpful. Their feedback was similar for myself. I had a good summer but have relapsed badly since. I got too confident when things improved and dropped some of my vigilance around regular stretching and dietary triggers (alcohol mainly). My bad. I’m booked to see the colorectal consultant you mentioned above (Saddiqi) in a couple of weeks so see where that takes me. Just wanted to ask how you were getting on and to say thanks for posts.
Age:49 | Onset Age:46| Symptoms:Dysuria, post-ejaculation pain, genital pain, suprapubic pain | Helped By: walking, stretching, avoiding alcohol| Worsened By:sex, alcohol | Other comments: have tried all anti-depressant based pain killers and opioids without success, Pregabalin worked but terrible withdrawal symptoms.