UCPPS - Prostatitis, Interstitial Cystitis Forum

Very little because I have almost no sensation on my glans penis.

When did you have your last full workup by a urologist?

MY last complete work up was 20 years ago. I am a physician and without any doubt I know that I experience the erectile dysfunction, low libido, and decreased sensitivity of my penis only when I am experiencing pain in my suprapubic area, testicles, tip of my penis, and perineum. I am certain that the affect on my potency is not psychological. As I mentioned before, when I have these flares I cannot even get morning erections or erections with masturbation. I feel that there 2 schools of thought regarding chronic prostatitis(CPPS) and erectile difficulty, and those schools of thought are, some believe that CPPS does not affect potency and libido, then there's a minority who thinks there is a connection, but most likely psychological. I can not disagree more, this is not in my head. The pain at the tip of my penis, and decreased blood flow I have flowing through my penis is real.

There's definitely a physical connection. At my worst, I also experienced low libido and soft erections, so I know all about it.

The only way to regain potency is to overcome the condition. As a physician, you should be able to afford the Wise-Anderson Protocol, not so?

Edit: I see that further up in this thread you stated that are booked in to the clinic in February. Just be patient (pun not intended)

I am scheduled to go in February 14-20. I am a bit skeptical, but I pray to GOd that it works.

Works for the majority, and the more intelligent and committed patients do better, so you could be odds-on to succeed.

webslave wrote:Works for the majority, and the more intelligent and committed patients do better, so you could be odds-on to succeed.

I haven't read your full story, and indeed, for 20 years impotency may be a bit of another animal. But after reading enough stories of careers ruined with pain, $2000 chairs, disability at least one tri- athlete completing his MS and PhD in a beach lounge chair (and interviewing successfully for a job in said lounge chair — on oxcyontin — yeah I know this guy's resume must be incredible). Methadone, Morphine MScontin and much worse from pain, the impotency, especially in your 40's -50's seems to be the least of it. Yeah, I know, the stubbed toe and tooth abscess is a big deal until you find out about the cancer... etc. Its just human nature.

I think Howard Stern said something of the sort several times (paraphrasing) "I've been married 23 years, I have a little **** anyway, after this long I need a marching band, devices using 10 D cell batteries and a helluva shopping trip to get a rise out of her"

Of course pain **and ** impotence would be a double bitch, or much more pain after would be a single bitch. (or a double bitch, or a double bitch with asterisk*). We can face it... this does suck.

Dockuda , what is your medical specialty?

I've corresponded or read the experiences of about 5 over the years , not including med students in internships. They mostly all agree, with their (125?) years of experience (mostly gp's) they have rarely seen anything like this and would have referred a patient like themselves as a "headcase" and a psychiatrist. In most cases their reputation with their colleagues and fellow Dr'sbought them a little more understanding and perhaps 20 extra weeks before the -- headcase . Most meet my profile at the bottom. Hard to believe but I don't makes em I just reads em.

-j

Dockuda how did things go for you?

THings still aren't better. I have resorted to Cipro and Quercetin along with trigger point therapy. I don't get any morning erections, decreased libido, and no pleasurable sensation from my glans penis at all. If I orgasm, it is felt from the area of my prostate. I am quite frustrated, but hopeful

Cipro won't do you any good beyond the short-term, and--trust me--you don't want to have to deal with the side-effects of using it for too long. There are entire communities dedicated to the damage that long-term fluoroquinolone use can do.

Are you sure all of these symptoms are caused by CPPS? It's entirely possible that some of it could be hormonal, especially considering you're an older man.

Hi dockuda I also have your symptoms. I have 31 years and have had this problem for about 10 years now. Sometimes the erections are good (sometimes great) but usually are not. And also the same thing like you - having problems with glans sensation. I've called up dr. Wise on the phone about that subject and it seems like glans sensitivity is not very high on the CPPS symptoms list.

For that reason I also did a full MR of the body and they found some problems in the neck and in the lower spine. I also did EMG of nerves and they found some nerve damage from spine to legs and pelvic region.

My PT said that it all might be due to the problems in lower spine. He also said my muscles are extremely tense in the pelvic area and spine. So he is doing external trigger point therapy.

I am doing the internal one. I didn't go to the clinic because I am from Europe but I got all the equipment from dr. Wise. I am doing the protocol about 1.5 years now and things are looking better but not fully. I think I am about 65% better. Morning erections were very frequent for a long time (since 1 month ago) but again it depends on how I am hurting or not. The same as you.

When I flare up the sensation is much lower. 2 weeks ago I was very pleased because sensation was much better. Now its bad again.

It is nice to hear from a person with similar symptoms. What I would suggest to you is also to check up on your nerves and spine problems. From my experience and from my research it seems that our problem (CPPS) has many component - muscles, spine problems, nervous problems and we have to work in several directions like streching, anti inflammation like quercetin, internal, external trigger point, spine adjustment, maybe changes in posture etc...

I have also noted that certain exercises increase my symptoms like climbing, running etc.. Marihuana is also very bad for me. Alcohol is good for some reason...

Thanks Mirogold for your response. I haven't checked this site in a while but out of desperation and in search for a little inspiration, I thought I'd check the site and see if anyone had posted. Fortunately you had and that gives me a bit more encouragement. I'd like to stay in contact if that's ok...my email is dockuda1969 at gmail d0t com
Thanks a million

Hello Guys,

I have posted several times before, but I was wondering, for those of you who experience the symptoms of ED, decreased libido and decreased penile sensitivity, has anything changed? Has anyone seen significant improvement and if so what was your treatment? I do experience pain in my lower back, perineum, supra pubic, and tip of the penis. All my symptoms of pain are felt on the left side. Oddly enough there is no pain on the right side. What frustrates me the most, and keeps me up at night, is the low libido, and inability to get an erection. I don't even have the pleasure of experiencing a nocturnal or morning erection. My wife is very understanding but I am at my wits end with this. I recently started seeing a pelvic floor therapist in Savannah Ga., for about a month now. I haven't seen a tremendous improvement yet. So has anyone out there been able to solve this puzzle; JUst searching for hope

So did you attend the Wise Anderson clinic in February as you said you would?