Hello, Strobers here

[webslave]

To be honest, you need to find one who's honest with you and is open to novel treatments and then stick with him or her.

I don't think "sticking" with any uro is helpful, once the uro has investigated your case and found nothing operable. Most of the prescription drugs you may need are better sourced via your friendly local family doctor.

[Sleeper Service]

Perhaps. The situation in the UK is a little different though - your GP prescribes general medication but if you want to move things on you're refered to a Uro. Best to stick with one that knows your history and is up to date with what's going on.

[graeme]

I actually approached my Doc and even used old term to give him a chance of understanding and said "I suffer from non bacterial prostatitis. I know you don't know much about this disease and can't help but I want something for the pain".

He looked at the floor, agreed, whimpered: "Have you tried antibiotics with massage?"

I replied "non-bacterial prostatitis".

It was at this point after several years I was prescribed my first stronger-than-OTC painkiller

[graeme]

Theres a guy on the BPSA website who has this and his brother is a uro ,even though is brother (uro) knows about pt he can be of no help to his suffering brother and has told him there is nothing he can do !

If your problem is not infection they can not help and have no training in pt !

A general doctor can prescribe you the drugs for pain etc !

[superuse]

At some point, you have to cut the uro's loose (before they cut you). Then you have to buy the book on the Stanford/Wise-Anderson Protocol ahip.

BTW, what kind of work are you in (do you sit a lot?) and what physical activities (if any) do you pursue?

[carld]

Once other more serious conditions have been ruled out...Then uros are of no use to you now. Except if you have had some urological operation and have CP/CPPS. I think once you accept and go full force into the many protocols we have here...your recovery will slowly start.

[strobers]

BTW, what kind of work are you in (do you sit a lot?) and what physical activities (if any) do you pursue?

I'm a teacher, so I don't sit a lot during the day usually. Today I feel great with the exception of this little bitty twinge that I'm starting to feel in my left calf. I think I'm going to buy one of those special cushions some of you guys have mentioned here that you can get on the IC site and just sit on that even when I'm feeling good.

Regarding the other question, I play racquetball a couple of times per week, but not when I'm symptomatic. It seems to make it worse. When I'm feeling good I could play every day. It's an incredibly invigorating sport.

I bought HITP months ago and read it twice. I follow it pretty religiously. I am due for a raise in April and I think I'm going to use that extra cash to see a massage therapist once per week or so.

Uros and doctors in general suck. I live in Southern California, more specifically Orange County. If anybody knows a GOOD uro who does not practice within the confines of a box, please let me know. Same thing with a PT.

I'm glad I was referred to this forum. You guys are all right.

[scoobysnacks]

Strobers, you live in Cali. I would not delay any longer Id call Dr Wise and get into the program. His uros evaluate you and believe in the protocol, they write you a script for PT. Then you do the 6 day intensive clinic, has given me my life back. I now can treat my symptoms and continue to improve monthly....its NOT a quick fix though.

Take care,

Ss

[carld]

I live in LA and if you feel like it...you can see DR. Scott Zeitlin in Beverly Hills. He's my uro and is part of the CPCRN for CP/CPPS. 310 860 1540 good uro and is at least a researcher in this condition....but I have to tell you this is what he will do after you tell him everything. He listen's and writes down...

Do and EPS on your prostate and look for WBC count

Do an ultrasound on your bladder before you pee and do a flow reading when you piss into a machine and check your bladder after you emptied to see if you are retaining normal amounts.

Recommend a month of Cipro to see how you do and that's it...so in the end it's not going to do anything for you. You have run the table.

Maybe Calguy can give you the name of the PT in Orange county who is a good one I hear. I know someone from the board has used her...can't remember who though. I would call Dr. Wise and he can find you a PT in your area...

[strobers]

When my chronic prostatitis / chronic pelvic pain syndrome first started on April 6, 2007, I was in really good health. But from that point until now, I seem to be developing more and more other symptoms that don't seem to have anything to do with the chronic prostatitis / chronic pelvic pain syndrome per se, but fit in nevertheless to some degree.

Two months after I got chronic prostatitis / chronic pelvic pain syndrome I developed tinnitis in both of my ears and a week later the ringing in my right ear went away, but continued in my left ear.

About a month after that I started getting these weird shimmering things in my eyes. I went to see the eye doctor and he told me I have migrains, without the headache, and blisters in the back of both of my eyes that he felt were stress related.

About a couple of months after than I started getting these weird OCD symptoms that have come and gone for the last several months.

I try to stay positive, but I wonder what is going to happen next? Have any of you guys had a similar experience?

I just wish I knew what was truly happening in my mind and body and what they are trying to communicate to me.

[mbaker]

I have sciatica in my right buttock leg. Sometimes the sciatica is worse than the CPPS, and sometimes the other way around. But in your case, it sounds like you have a serious stress related issue. You should go see your doctor immediately and talk about the variety of anti-anxiety treatments that are available. We take Elavil at 10mg for pain, but that may not be strong enough for your anxiety condition. But you will never get the chronic prostatitis / chronic pelvic pain syndrome under control if you are severly stressed. This will only add to the discomfort of CPPS. There's a lot of non-medical things you can do to assist such as daily meditation, going for walks in the evening, listening to peaceful music, and so on. Basically, decrease the stress stimuli as much as possible. Drugs greatly speed this up, and can help a lot, but it's always best to not become dependent on them. But don't "tough it out". Go see your doc and get some treatment.

--mb

[kevin]

CPPS is known to overlap with certain other diseases. OCD/migraine seem to be members of that group.

This isn't necessarily cause for concern, though. I've had other symptoms come on for a while, and thought I was stuck with them. They lasted for a matter of days or weeks. The chronic prostatitis / chronic pelvic pain syndrome is the only thing that has stuck with me.

[webslave]

People need to understand that urologists are primarily surgeons with little or no interest in treating psychoneuromuscular conditions.

[rider fan]

I had my one uro assistant tell me that although I had seen him in the past, he doesn't "deal with" prostatitis anymore. Gee, thanks very much!

Agreed though that sometimes a uro is needed, at least in Canada. For example, I couldn't even get my family doc to prescribe Flexeril when I was having spasms. Had to make do with Elavil, which he loves to use for everything.

[webslave]

mbaker is right. Hundreds of years ago, men lived much quieter, slower lives than we do today. Back then, we'd see only a handful of people our whole lives (usually the same set of people), we'd do manual jobs that involved spending lots of time alone (eg farming, building basic furniture, hunting), and we'd experience far less noise than we do today. I mean, the increase in noise, haste, frequency of human interaction (which can be extremely stressful), and general tension since those days is simply phenomenal. So getting back to living in the manner of our ancestors — to whatever extent possible — is a very useful step in winding down our general state of nervous arousal.