Is CPPS progressive

[Sleeper Service]

Here's the NIH/NIDDK survey conducted by Dr Nickel and others:

http://www.blackwell-synergy.com/doi/pd ... 02.03007.x

This was a survey of patients with chronic prostatitis / chronic pelvic pain syndrome against a control group measured over a year. Of the respondents about 40% reported no or very few symptoms after a year - usually, but not always, the ones with shorter duration symptoms (average just over a year). The remaining 60% reported that things were pretty muich the same, perhaps slightly better maybe suggesting a slow, steady improvement.

The paper also draws attention to the NIH Chronic Prostatitis Cohort study which is designed to look at hundreds of patients over three years. Interim data suggested after a year that 50% improved, 37% remained stable and 13% worsened. I do not have final data for this study.

CPPS is an illness which anecdotaly waxes and wanes so it may be the case that people feel OK sometimes and awful at others. However, the balance of these reports seems to suggest that it gets better over time or at least stays relatively stable in most cases. Remember, these are just snapshots after a year and we read of cases that take two, three or more years to resolve. Dr Shoskes article on the 'hardcore' (i.e. symptoms of 3 to 4 years or more) patients he saw reports a significant improvement in 50% and a modest improvement in another 30%.

I would also be interested as to what treatment the Uro in question undertook. Did he give up after antibiotics and alpha blockers if they didn't produce results thus giving a misrepresented figure of 50/50? It woud be interesting to know this as most Uros seem to advise that it tends to get better with time.

[mach5]

I dont think the uro was keeping good statistics. From what I gathered, was some peoples symptoms became more freq or/and painful, and some peoples symptoms got better or even disappeared.

I guess my point in the comment was, either or could happen. But myself, like most of us here, believe in being pro-active (which doesnt necessarily mean worrying about it, because that doesnt help), but looking for solutions to make things better.

For me, I am a believer in the Stanford/Wise-Anderson Protocol, and making some big changes in your life/ lifestyle.

[garyholc]

Well for me, this thing is progressive as this week I've been in agony. Today has been theworst pain I've had ever. can't pinpoint where it is coming from but my entire front region is just pain and a burning feeling in the rear. And I was doing so well I thought

Hard to stay positive and happy when you can hardly walk! Still refusing the pain killers at the moment, but on a scale of 1 to 10 I'd say I'm up to a 4/5 at the moment, I dread to think how much worse it can get pain wise.

Seriously now considering going to see Bill up in Scotland and/or just forking out and going for the SP, after all, whats a few grand compared to your future quality of life....

[DavidinLA]

Well for me, this thing is progressive as this week I've been in agony. Today has been theworst pain I've had ever. can't pinpoint where it is coming from but my entire front region is just pain and a burning feeling in the rear. And I was doing so well I thought
....

According to your signature, you're still in your first year. I had my most serious flare ups six months after it started. After the first year, the flares started being less intense, were more spread out, and were less time in duration. In addition, I often had rectal pain the the entire first year, but it seldom occurs today.

Seriously now considering going to see Bill up in Scotland and/or just forking out and going for the SP, after all, whats a few grand compared to your future quality of life....

Correct. I just want to make sure I will benefit before I spend the money so that I don't waste it.