Please help!

Male pelvic pain, prostatitis, IC
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CppsDad
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Post by CppsDad »

First off, please remember that all my opinions are speculative. Nothing is for certain, and you should always rule out all other causes of your pain. You can make your own judgments reading other posts, but we are, after all, just a web site. No one here as evaluated you directly, nor are many of us qualified to give you an answer to the source of your pain.
Its a HUGE relief to hear that no damage is permanent. I really hope so. I've started doing the stretches and they are helping me IMMENSELY. I will keep you all updated with my progress. I am feeling very positive right now.
Remember that healing from chronic prostatitis / chronic pelvic pain syndrome is a two steps forward, one step painfully back kind of recovery. Optimism is good, as is any improvements you make, but you will see huge swings in both directions as you recover. This I can guarantee. For almost everybody, the one step back phase is brutal. It's bad enough to make you doubt that you are recovering, because you will either feel worse than you do now, or it will hit you right after you thought you were over the hump. Use positive gains as motivation. Don't let the fear of flare-ups from treatment hold you back, but don't forget that they WILL happen, even to the best of us, and even to those of us who are well in our recovery stages.
One year!!! Sounds like a really long time to me.
Recovery from chronic prostatitis / chronic pelvic pain syndrome can take anywhere from months to years. This is often correlated to how long the person waited to start treating their symptoms in the first place. 7 months (in your case) is not a long time (many of us suffered for years before finding out about AHIP). I'd say you have a good chance of being on the shorter end of recovery. But no matter how long it takes, you'll probably see some sort of improvement in a short time, probably after a bad flare-up caused by your treatments. How big, we can't say. For me, a small improvement was better than nothing, and enough to keep me going. And in my opinion, this time frame starts the moment you actually commit to the entire treatment. A lot of us stretched for a while, then tried some therapy, then did some pelvic floor relaxation. And we got no where. I can't stress enough how all of these things are needed at the same time (not always in equal amounts at all stages) to get recovery going.
I am getting married in 3 months from now! Should I postpone my marriage? May be I should wait and see how I improve over a month or so and decide from there.
Hell no. Recovery from chronic prostatitis / chronic pelvic pain syndrome is a way of life. Stretching, taking care of your body, reducing stress, these things are a way of life, not a quick diet. You'll be doing a lot of these things forever. Holding back on your life now just so you can do some extra stretching sounds crazy to me. My wife was one of my biggest supporters, and one of my biggest inspirations to doing the hard work it took to get better. But who am I? I'm just a web forum contributor! Seriously, don't do anything drastic like call off a wedding. In my case, moving my wedding wasn't possible. Maybe it is in your case, but there are other issues with postponing weddings? Aren't there? I don't think my wife would have liked that.

Once you get in the therapy, and start tackling this, you'll feel better about things quickly. Just doing something positive to help yourself is a great step, and allows you to take charge, and not be such a victim to this condition.

I'm glad your stretching feels better. You need to dive into this full force, and hold nothing back. You got to hit it from all angles, because you just don't know where your pain is coming from (which muscles, trigger points, or tender areas). So you have to do all you can, do all the stretches, therapy, etc... Buy a Theracane for your external trigger points (pictured above). It's a GREAT tool. It helped me get over the worst of my perineal and ejaculatory pain (due to abdominal and perineal trigger points).

Mike
This is NOT medical advice. I am NOT a doctor.

Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
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joehansen12
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Post by joehansen12 »

Remember that healing from chronic prostatitis / chronic pelvic pain syndrome is a two steps forward, one step painfully back kind of recovery. Optimism is good, as is any improvements you make, but you will see huge swings in both directions as you recover. This I can guarantee. For almost everybody, the one step back phase is brutal. It's bad enough to make you doubt that you are recovering, because you will either feel worse than you do now, or it will hit you right after you thought you were over the hump. Use positive gains as motivation. Don't let the fear of flare-ups from treatment hold you back, but don't forget that they WILL happen, even to the best of us, and even to those of us who are well in our recovery stages.
You are so right. After 2 days of feeling completely normal. I experienced the same excruciating pain in my pelvis and a lot of penis discomfort on Saturday. It brought my feet firmly back to earth.
But no matter how long it takes, you'll probably see some sort of improvement in a short time, probably after a bad flare-up caused by your treatments. Once you get in the therapy, and start tackling this, you'll feel better about things quickly. Just doing something positive to help yourself is a great step, and allows you to take charge, and not be such a victim to this condition.
I went to my firsty therapy session with a local PT. He did an ultra-sound, applied some heat and then deep massaged some points in my lower back area and side of my buttocks with his elbows. He said that I have lots of tight muscles there and I should be alright after 4 to 6 sessions. I feel a bit sore in the areas where he worked on. But he told me to expect the same. My next visit with the PT is on Thursday.

I must emphasize that I DID NOT get the same pelvic pain symptoms when the therapist was working on me. The only pain I experienced was local. Is this the right kinda therapy that would help me? What about internal trigger points etc? They don't seem to be doing any such thing! Where do I go from here (I live in Utah)?
I'm glad your stretching feels better. You need to dive into this full force, and hold nothing back. You got to hit it from all angles, because you just don't know where your pain is coming from (which muscles, trigger points, or tender areas). So you have to do all you can, do all the stretches, therapy, etc... Buy a Theracane for your external trigger points (pictured above). It's a GREAT tool. It helped me get over the worst of my perineal and ejaculatory pain (due to abdominal and perineal trigger points).
I just ordered Theracane. Should be with me in a week's time I guess. Lets see how it works!

Thanks CppsDad. Your words are beyond encouraging. :)

Sincerely,
Joe.
  • Age: 26yrs.
  • Onset: Nov 2005.
  • Initially: Lots of penal pain, , urinary frequency, urgency, painful erections.
  • Now: Intermittent Penal pain, constant buttock pain while sitting, painful arousals, pain after ejaculation.
  • Medication used till Apr 2006: Cipro, Ceftum, Doxycycline, Gatafloxacin, Lamifloxacin, Prosta-Q
  • Current Medication: nil;
  • Things that make me feel better: stretching, walking, therapy, hot showers
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CppsDad
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Post by CppsDad »

Internal trigger point work is a must for many of us. I don't have a recommendation, but perhaps someone else does. Post a different message looking for a PT in Utah who might help. At some point, you'll want your fiance involved in the internal work, as she can do it for as long as you need it for free. Many of us need internal work for only a short period (months), and then can reduce the frequency of treatments. (I haven't done internal work in 6 months). But a willing partner is a great advantage in beating CPPS.
This is NOT medical advice. I am NOT a doctor.

Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation