So far he is fairly reluctant to talk about the issue, or even think of the possibility that he has CPPS. I really hope he doesn't, but the odds aren't in his favor. He has testicular pain, exactly how my chronic prostatitis / chronic pelvic pain syndrome started. He saw the GP today, and was given anti-inflammatories for a few weeks. I doubt anti-inflammatories will do anything other than hide the symptoms, although he is convinced the doctor found the problem and fixed it. I don't like to be a doomsday predictor, so, as posted many months ago, I'm staying kinds of hands off until asked for advice.
I am like many of you: I wish I had someone tell me what treatment options to try 4 years ago. But for some reason, my brother is not. I think this is a hindsight thing.
Grrr!
Mike
Family History Argh!
-
CppsDad
- Retired Mod

- Posts: 956
- Joined: Sat Nov 20, 2004 7:24 am
- Location: N. America
Last edited by CppsDad on Fri Jan 20, 2006 4:42 am, edited 1 time in total.
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
-
conradin
- Experienced

- Posts: 147
- Joined: Mon Nov 24, 2003 10:19 pm
- Location: Oakland, CA
Perhaps we need to start a poll to see if chronic prostatitis / chronic pelvic pain syndrome is family related.
Age:37 | Onset Age: 34 | Symptoms: Pain on Right Leg, Fireball, Urethral and Testicular Pain, Urgency, Bladder lost control, Lower and Upper abdominal Pain, Perineum Pain, Nausea, ED, Pain during arousal, Ejaculation Pain, Lower Back Pain , Fatigue, Short term memory loss, anxiety, bowel pseudo-obstruction/IBS, bloating, unable to pass gas, intestinal burning sensations. | Helped By: Stanford/Wise-Anderson Protocol, Elavil, Valium, Stretching, Skin Rolls, Donut Cushion, External Trigger point | Worsened By: Sit for more than an hour, Caffiene, Sex, Bowel movement, Symptoms come without warning.
-
CppsDad
- Retired Mod

- Posts: 956
- Joined: Sat Nov 20, 2004 7:24 am
- Location: N. America
I think twins share many personality traits, as well as similar muscular features. That would certainly seem to make a twin more susceptible if his brother was a chronic prostatitis / chronic pelvic pain syndrome sufferer. I'm sure genetics can play parts in this too, in that we can be genetically predisposed to have certain anatomical traits, or psychological traits (especially if raised in the same environments).
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
-
treynor33
- Senior Veteran

- Posts: 281
- Joined: Wed Jun 02, 2004 3:37 pm
I understand the scepicism. I always have been too, once I learned more about this crap. However I talked to him again last night, and here is what he says. About 6-8 times over a 20 year period he would have symptoms similiar to a bladder inefection and have trouble urinating etc. Uro always did a culture and it always came back dirty. He would put him on Cipro or in the early days some other abx he can't remember, and after a week he was all good again. No pain down the legs, back, testicles etc. This started when he was about 45 and ended when he had his prostate removed at 65 due to prostate cancer. Now he never had a sit down job during that period. So maybe it was muscle related and he just never aggrivated it all day like I do sitting here in front of my computer.webslave wrote:Highly unlikely. Ask him if he had pain and other symptoms like yours. Chronic bacterial prostatitis is usually almost symptom-free.
He is totally amazed with my troubles and can't understand it like most people. But because he had some similiar troubles at least he can understand some of what I am going through.
Age: 45 Onset: 43. | Symptoms: Tightness, spasms, burning and pain in the perineum. Occassional mild pain after urination in the perineum. Helped by: Cardura, quitting caffiene, relaxation, fiber, stand up workstation and some PT a year ago. Makes Worse: ANXIETY, ULTRAM, going to work, sitting or squatting too long, constipation (big problems), stress, and sometimes unexplainable.
-
webslave
- Maintenance

- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
That's interesting, because that does sound like real chronic bacterial prostatitis, which is, as I said, fairly rare. Typically there is not a lot of pain, but instead occasional UTI-like episodes which are totally aborted with antibiotics. The chances of him having that and you having CP/CPPS must be very small.
Good News! The great ProstaQ is BACK at last! You must try it.
| HAS THIS SITE HELPED YOU? Say Thanks by donating. Keep the Forum alive on the Internet! PayPal link at end of page ↓ Contact me at support at ucpps.men |
-
treynor33
- Senior Veteran

- Posts: 281
- Joined: Wed Jun 02, 2004 3:37 pm
Yeah that is why when it first came on, exactly like his always did, I was rather confident that it would subside in a week or so like his. That is what confuses him. Mine started very similar to his suddenly one night but never totally stopped. And why I stayed on ABX a lot longer than I should have (like most of us I guess). I suppose I was just the LUCKY one with the muscle issues instead of the infections 
Age: 45 Onset: 43. | Symptoms: Tightness, spasms, burning and pain in the perineum. Occassional mild pain after urination in the perineum. Helped by: Cardura, quitting caffiene, relaxation, fiber, stand up workstation and some PT a year ago. Makes Worse: ANXIETY, ULTRAM, going to work, sitting or squatting too long, constipation (big problems), stress, and sometimes unexplainable.
