Explaining CPPS

[DavidinLA]

"I have a disease called pelvic neuromyopathy...that means my pelvic nerves and muscles are all screwed up, possibly because of auto-immune problems but nobody knows why. In any case anything, muscles or organs, below my navel will have a flare up in pain and malfunctions. Since the majority of the nerves and muscles are pelvic related, I cannot sit down long term, and that's why I need to stand up when I play with yall..just let me stand towards the back so I will not look odd".

This was what I said to my orchestra.

If I must tell someone, I'd rather say I have chronic prostatitis / chronic pelvic pain syndrome than prostatitis. The latter has too much stigma. I like the term "pelvic myoneuropathy", but I'm not sure it is a clinically recognized expression.

[webslave]

If I must tell someone, I'd rather say I have chronic prostatitis / chronic pelvic pain syndrome than prostatitis. The latter has too much stigma. I like the term "pelvic myoneuropathy", but I'm not sure it is a clinically recognized expression.

Pelvic Myoneuropathy is a descriptive expression not yet recognized in the medical profession, although it certainly gives doctors a good idea of what's wrong with you if you use it. chronic prostatitis / chronic pelvic pain syndrome is barely recognized too. Many doctors have never heard of it. Uros, if they are any good at all, usually have hreard of it.

[blacklaw]

If I must tell someone, I'd rather say I have chronic prostatitis / chronic pelvic pain syndrome than prostatitis. The latter has too much stigma. I like the term "pelvic myoneuropathy", but I'm not sure it is a clinically recognized expression.

Pelvic Myoneuropathy is a descriptive expression not yet recognized in the medical profession, although it certainly gives doctors a good idea of what's wrong with you if you use it. chronic prostatitis / chronic pelvic pain syndrome is barely recognized too. Many doctors have never heard of it. Uros, if they are any good at all, usually have hreard of it.

I found using the term pelvic floor dysfunction (the term my uro used) seems to work for most people. I found if I say prostatitis, to men, they immediately understand (which shows how wide spread this issue really is), but to women...nope...