My name is Dylan and I am new to this forum but I have been in correspondence with Webslave since the onset of my symptoms, I also spent some time on r/prostatitis but I left due to the massive amounts of belly aching and "poor me" type of men there, who would cause me to catastrophize myself.
My symptoms started 4 months ago. The first thing I noticed was sciatic like nerve pain in my penis and testes. It felt like they were on fire.
Then the urgency came, then my hips started aching, then my pelvis (pubic region and perineum) started to ache. Just like the book, the phrase "Headache in the Pelvis" 100% described what it feels like for me. The same feeling of a headache, except down below.
I of course took the urology route to no avail. Got tested for everything under the sun and was all negative. The urologist sent me on my way with nothing more than a "good luck" As a member of Generation Z, I did what we all do and took to the internet for answers, to which I found them here and on reddit. UCCPS perfectly described what I was going through.
Here is how I knew it was UCCPS. Both Webslave and Dr Wise, who I consider to be the world's premier experts on the subject both described the type of men who get UCCPS, and to the T they described me. I have PTSD from an abusive impoverished childhood, and as a result I am chronically in fight or flight, I constantly worry and presume that outcomes will end unfavorably for me. I also sat for work, 40 hours a week, in a chair, dealing with the stress of working in the defense industry.
Here's how I got better. I quit my miserable job and I found a new job at a young, hip, happy start up that has standing desks. That was the first step.
I know this isn't an option for everyone but I am 23 and have no kids. I listened to the words of Dr. Wise and Webslave to a T. I began following the tips section of this forum to a T. I stopped lifting weights and just started using a stationary exercise bike set to low resistance. (I feel like this helps loosen and heat the muscles before stretching and trigger point release, it 100% calls for a better stretch and trigger point massage) It does not have the same intensity as a run or a jog and does not cause the muscles to tighten, in fact for me personally it loosens them. I tried quercetin for 3 weeks but it made no difference, what did take the edge off my symptoms was a combination of Cialis and PEA (Palmitoylethanolamide) both of those substances in tandem take the edge off. They don't cure you, but they make the pain... less painful I guess you could say.
I am now 4 months into this curse, and I am combating it with 2 stretch sessions daily, as well as 1 trigger point release session (internal and external) I have also made a major, major, major effort to change my world view and to stop constantly worrying and stressing. See a therapist if you need to because this condition is 50% mental. I don't care what anyone says, it is for sure 50% mental.
Some days are worse than others, most days have become bearable. At the start it was crippling, now it is just a mild annoyance. I have faith that if I continue the course I am on, I will make a 100% recovery by 2023. I truly believe in my body's ability to heal. If you convince yourself you won't heal then your body won't put in the energy to heal.
I will end this post by saying : IT IS NOT AN INFECTION. If it was an infection that was left untreated for as long as most people suffer from CPPS, it would turn into sepsis and you'd die.
Also LISTEN TO WEBSLAVE AND DR WISE!!!!! Those men are the experts. You wouldn't ask a janitor how to repair a fighter jet, you'd listen to a fighter jet mechanic. Webslave and Dr Wise are fighter jet mechanics in this world, and all the other idiots on reddit and the internet are the janitors.
Good luck fellas, just don't give up and have faith.
Admin comment:
