Prostatitis going on 2 months. My story, your advice.

[webslave]

You mention dysuria, and now pain at night while resting and waking. My guess is that you have UCPPS of the IC/PBS variety. Dysuria is a classic sign of this variant, and the link to sleep is that the bladder fills while you are sleeping. The first thing that people do when they wake up in the morning is urinate. So that's the "upon waking" link, and a few hours after falling asleep your bladder will be filling and symptoms increasing. Your symptoms indicate that you may have some bladder inflammation. Have you had a cystoscopy? Edit: yes you said you did and results were clear. Still, inflammation can be subtle. Some docs will report a clear exam if no Hunners ulcers and ignore slight redness. Or record it in his notes and not tell you.

[cam3roni]

Possible he didn't mention seeing anything. I can hold my urine no problem. When it gets filled up during the day, I dont notice increased pain. Nor do I feel pain when I pressure my bladder. My ejaculatory dysfuction (weakened, post pain) leads me to think it probably doesnt involve the bladder but rather the muscles and nerves associated with voiding/ ejaculation.


Guess its one question thats hard to know the true answer to. :/

[webslave]

I can hold my urine no problem.

Does not rule out IC

When it gets filled up during the day, I dont notice increased pain.

There is something about being upright vs. being supine that could be in play here. Some thoughts

1. Is there a nerve issue in the spine that gets tweaked when you lie down?
2. Are there adhesions in the pelvis pulling on anything?
3. Are there one or more subclinical inguinal hernias causing symptoms? (This has happened to some men, ultrasound investigation required)

[cam3roni]

1. No, this all started with chlamydia so I would think my spine is fine.
2. Again, all started with chlamydia so adhesions dont seem likely.
3. No hernias or anything to my knowledge.

Sorry for late reply. I've been trying to keep my mind off my situation as much as possible, hasnt really helped me “heal” though.

[webslave]

Well, it's a mystery then. It's pretty unusual. Try this experiment: raise the head of your bed by 8" (200mm). This will tip the contents of your bladder down onto the bladder outlet and neck and keep it moist. That's often where the inflammation is. It could be that it is getting irritated by being slightly dryer than normal. No harm in trying this.

viewtopic.php?p=43955#p43955

[cam3roni]

I will try this weekend and report back! Thanks Webslave :)

[cam3roni]

Wanted to check in and give an update on my current state:

I had an MRI ten days ago and recently received the results. The MRI indicated mild prostatitis... *sigh*, otherwise everything looked healthy. My pain levels vary hour to hour, activity to activity. At my best moments its a 1/10 and at my worst its a 5/10.
I continue to take sertraline, alfuzosin, and amitriptyline. My best guess at this point in time is that the chlamydia set off an immune reaction in my prostate that refuses to go away. Could it be prostate inflammation caused by CPPS? Maybe, don't know anymore and frankly have lost the energy to care about what's causing it.

All I can really do at this point is wait it out, which is a scary yet in some way relaxing notion. Relaxing because there's not much more I can do anymore, so at least I can stop putting time into futile efforts.

I also have a new girlfriend who is hornier than any person I've ever known, I keep the sex to twice a week though. we are having unprotected sex so hopefully she doesn't catch anything from me. It's been a few months so far and she hasn't showed symptoms of anything... yet. Thanks guys, just wanted to get my current status out there.

[Nagiller]

hi cameroni,

I'm really reserved in writing in this forum, but I never lost your thread out of sight. So especially your last post, reflects exactly my actual situation (maybe because the way we got this disaster is nearly the same).
I take no medication at all and try to handle it with my mind, some stretches/sports and a good healthy way of life (which I never came into, without this "disease")

Although I have it since 2015 the chlamydial theory comes into my mind some times. Especially because the bug is one of the smallest in nature and with his biomechanisms to deceive and stealthing, I come into such thoughts that today's science is not capable to analyse it seriously (PCR, blood, swap, or whatever) and I have everything though (I think about 7 times testing at different laboratories) only result: elevated leukocytes. But nowadays I catch myself and like you already said: I don't worry anymore about what's causing it. Maybe the inflammation vicious circle that the chlamydias or what sort ever of microbug caused the irritated immune response, but which options do we have? (and I think we here in this forum got nearly every alternative option possible on this planet)

And think further: If hypothetically some special bugs really are the cause for everything. And a special immunologist doctor would advise you to get a special regimen of ABXs for around a year or more. Maybe the bug is gone, but so is your health and that in the worst case for long term.

It's common statistics either in US or Europe, that on top of all causes for death (far above car injuries, heart attacks, or suicides...) is: medical treatment

Chill and relax!!! (even if it is hard some days :D)

PS: I also have had in the last 5 years of suffering 3 different girlfriends, and to refuse a horny girlfriend for a second or a third time in a night is frustrating, because you would like but after a third session, your next day is a flare mess. Does your girlfriend know about your story? I never made it to tell a girlfriend of mine my story, maybe because I thought it's unmanly or so...

[cam3roni]

Hey Nag,

Always nice to hear from you. Youre right about it being mentally tough to get over the active Chlamydia idea. At this point I've ejaculated inside my new girlfriend 20+ times, so you would think that even if the chlamydia was in stealth mode or whatever, that she would have been infected but she isn't. The chances of PCR not picking it up twice, almost 2 months of Zithro+Levo not working at all, and not infecting partners while still being infected is almost zero. The PCR picked it up 3 weeks after I started antibiotics, but that could be attributed to dead chlamydia cells. After that everything negative. My urine always looks clean as I get a dipstick test everytime I go to uro.

Right now, especially after MRI results confirming a slightly inflamed prostate, I have to go with the idea of it being an autoimmune issue.
I have told her that I have prostate issues but I haven't mentioned to her that it came about by Chlamydia, mostly because I'm embarrassed by it.

Maybe one day I will give her the entire story but for now I will keep it to myself.

Please stay in touch with me and this thread. I care about everyone in this community but your story hits closer to home so I always appreciate hearing from you. Thanks again.

[NeoKortex88]

Honestly I think you guys are chasing ghosts.

[cam3roni]

Honestly i think you guys are chasing ghosts.

Not chasing anything. That was kind of the point of what we were saying. Chasing anything at all has gotten us nowhere.

[NeoKortex88]

Yeah just focus on physical therapy and stretching, you will be fine guys

[cam3roni]

MRI - https://ibb.co/t8GTwC6

PCR of semen - https://ibb.co/qFZs6JF

Cystoscopy - https://ibb.co/tMqy1Pg

Hey guys, I wanted to post more results of the procedures I've had done just so people have an understanding of what results look like before you decide to spend thousands on them. Plus, I just think it's useful information.

MRI did confirm prostatitis as I've stated before, but the cause for its continuation is still unknown.

Thanks all

[Amonges]

I have to add that I have been going thru this for over 3 years now. I have done many tests with no findings of bacteria. I firmly believe this is a muscular condition that can be treated with pelvic floor trigger point both internal and external. I have found immediate relief with trigger point, stretching and practicing the mind body connection. Yes, having an infection can trigger this onset of symptoms but I don’t believe such a bacteria can live forever in the body. Forget this ghost people are chasing and turn to other options especially pelvic floor therapy. I have come a long way in fighting this, you can all too. Believe!!

[MajorSky1]

If you are at less than 3 months (which by now you may be longer), your chances of this turning chronic are much lower. Keep that in mind. If you do the antibiotics (after confirming that it's chlamydia), you should be able to bring your hyper vigilance and pain levels down with some lifestyle changes - especially forgiving yourself for your actions. Chlamydia is not some punishment for not using protection. It's a microorganism that has learned to capitalize on they type of environment that is presented with sex. It's not your fault, or anyone's "fault". It's an unfortunate byproduct. The cool thing is with antibiotics, it's dealt with.

Time to move on.

Erections at night are not only normal, they're common. But because of your anxiety level and hyper vigilance, your subconscious has convinced you that it's a bad thing. It's actually a GOOD thing to have a nocturnal erection. Having an erections will NOT impede your recover but actually will help it because it means blood flow is good into and out of that area, as well as your testosterone levels are healthy.

I have been through this whole deal. At this point, just keep doing what you can to relax the tissues in the perineum, and pelvic floor. But don't become so focused on it that you end up winding it all up. The best thing to do is distract yourself from it.

With the internal massage there comes a point where you may end up causing perpetual irritation if you keep doing it and don't really need to.
Try weening off that. It may mean taking a few weeks or a couple months of just dealing with occasional discomfort that flares up, or maybe using a finger in the shower once in a great while just to release some tightness.

A huge part of this condition is becoming hyper focused on the pain and discomfort that ends up exacerbating it, and then you have a closed loop cycle.
Any information you read here is intended to be added to your toolbox of things to help you in certain situations or types of flares. But don't obsess about any one thing so much that you let it take over and interrupt your normal daily functioning.

Sounds like you are getting it under control, and once you feel like that you start to realize that you really are in control. Then it's all down hill.
Good luck! You got this!