I have tried lots of treatments and activities to get rid of my Pelvic Pain. My CPPS symptoms are currently minimal and my biggest problems now is actually pain in other parts of the body (shoulders, right foot).
This have helped me the most in the battle against CPPS:
Trigger Point Therapy
Connective Tissue Manipulation AKA skin rolling
Mindfulness
Autogenic relaxation
Relaxation of the pelvic floor (Sniff, Flop and Drop exercise)
Changes to my posture and gait
Diaphragmatic breathing
Buteyko breathing exercises
Tensing and anxiety have never been a problem for me. My main problems seems to be stress at work, poor sleep, pelvic pain posture (anterior pelvic tilt), stiff back and a breathing pattern disorder (resulting in a low level of oxygenation in my muscles).
Age: 40 | Onset Age: 33 | Symptoms: Currently mild hyperalgesia and allodynia, weak ejaculation. Previously pain in perineum, low back pain, sore thighs, pain in abdomen, feeling cold in perineum, golfball feeling, dribbling after urination, tip of the penis discomfort, erection problems, pain after ejaculation, tingling in fingers after urination, catching cold very often | Helped By: Relaxation, Trigger Point release | Worsened By: Stress, Ejaculation, Bowel movement, Cold weather, Sitting for extended periods.
Have received diagnose Myofascial Pain Syndrome, CPPS is just a subset of my problems. I have found well over 200 trigger points distributed in all parts of my body - from head to feet - luckily most of them latent. Root cause is poor posture with anterior pelvic tilt and stress at work.
I'm currently doing 1, 2 of your list and trying to learn to relax the PFM. Whats the sniff flop drop??
Did you gradually get better month by month with flares or did you have some breakthroughs?
I'm nearly 3 years in and have been doing my protocol daily for the last six months.
Frequency was the first thing to improve, can now sleep all night with only little discomfort in the morning.
Flares are now mainly a burning sensation and some tip of the penis pain / sensation especially after urinating.
I've got some sensitive TP near the prostate and high up on the anterior wall that I'm currently working on.
Skin rolling was a big step - can't believe how my abs went from being bruised when I first started to now fully free and supple over 3 months of daily work.
Any advice appreciated.
Thanks :)
Age: 41 | Onset Age: 39 | Symptoms: urge to urinate, sore tight left groin, left sided pelvic / leg and knee pain, tip of the penis sensation, some burning sensation | Helped By: baths, PT, massage, foam rolling, rest | Worsened By: tiredness, stress, stretching | Other comments: trying lots of things hoping I'll find something that works. Seems to be slowly improving but its a long road. Keeping positive and determined to improve symptoms and hopefully make a full recovery.
I'm curious, is the pain in other parts of your body cutaneous, deep, or both?
Age: 26 | Onset Age: 23 | Symptoms: Neuropathic-like pain and hyperalgesia (lateral/anterior thighs mostly, but distributed throughout body); Pain (penis shaft, right side, when erect for long or excess masturbation) | Previous Symptoms: Pain (testicles; penis underside, mostly near base and running up urethra, sharp/burning; perennial region, dull; ejaculatory; post-ejaculatory); Urinary (moderate incomplete voiding; moderate frequency and pain on bladder filling); Sensations (cold in head of penis) | Helped By: Stretching (especially hip rotators and flexors); Yoga (especially lunges, warrior 2, and pigeon) Trigger point release (abdominals; iliopsoas; gluteus muscles and piriformis; bulbospongiosus & ischiocavernosus; thigh adductors); Meditation (mindfulness); Walking & Aerobic Exercise | Worsened By: Stress, anxiety, too much alcohol, lack of sleep, sitting at length | Current prescriptions: nortriptyline (10 mg, 1x at night; for CNS sensitization and IBS) Previous prescriptions: hydroxyzine (10 mg, 1x at night; for urinary symptoms/mast cell stabilization; useful), clonazepam (0.25-0.5 mg, 1x at night; for anxiety/CNS sensitization; useful for short time)
Caedar wrote:I'm curious, is the pain in other parts of your body cutaneous, deep, or both?
I have experienced all kinds of pain; deep, superficial, intense, aching, stabbing, burning, you name it. For every pain I have always found a trigger point or two that reproduced the pain.
The worst trigger points to work with is the ones on the soles of the feet. The most painful ones have been in the Interossi muscles (foot), Infraspinatus (shoulder), Vastus lateralis (thigh) and Puborectalis (pelvis).
The worst symptoms was caused by trigger points in sternocleidomastoids; head and neck pain, double vision, tearing of the eyes, reddening of the eyes, sore throat, increased mucus production and stiff neck (not all symptoms at once luckily).
The biggest challenge was to treat my right shoulder after two years of pain, I found 40 trigger points in 20 different muscles all associated with the right shoulder.
Age: 40 | Onset Age: 33 | Symptoms: Currently mild hyperalgesia and allodynia, weak ejaculation. Previously pain in perineum, low back pain, sore thighs, pain in abdomen, feeling cold in perineum, golfball feeling, dribbling after urination, tip of the penis discomfort, erection problems, pain after ejaculation, tingling in fingers after urination, catching cold very often | Helped By: Relaxation, Trigger Point release | Worsened By: Stress, Ejaculation, Bowel movement, Cold weather, Sitting for extended periods.
Have received diagnose Myofascial Pain Syndrome, CPPS is just a subset of my problems. I have found well over 200 trigger points distributed in all parts of my body - from head to feet - luckily most of them latent. Root cause is poor posture with anterior pelvic tilt and stress at work.
I have become gradually better and better with some smaller breakthroughs along the way. I have had two major flares and both have been triggered by the appearance of a perianal hematoma caused by constipation.
I have not suffered from any urinary symptoms like increased frequency.
Age: 40 | Onset Age: 33 | Symptoms: Currently mild hyperalgesia and allodynia, weak ejaculation. Previously pain in perineum, low back pain, sore thighs, pain in abdomen, feeling cold in perineum, golfball feeling, dribbling after urination, tip of the penis discomfort, erection problems, pain after ejaculation, tingling in fingers after urination, catching cold very often | Helped By: Relaxation, Trigger Point release | Worsened By: Stress, Ejaculation, Bowel movement, Cold weather, Sitting for extended periods.
Have received diagnose Myofascial Pain Syndrome, CPPS is just a subset of my problems. I have found well over 200 trigger points distributed in all parts of my body - from head to feet - luckily most of them latent. Root cause is poor posture with anterior pelvic tilt and stress at work.
