New - what to Start?

Male pelvic pain, prostatitis, IC
Donknuckles
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Re: New - what to Start?

Post by Donknuckles »

Can't the camera cause more problems ... Like scars etc?
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
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Mike Kavo
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Re: New - what to Start?

Post by Mike Kavo »

Yes it can but it is very rare. A skilled Urologist will most likely not cause damage at all and will discuss all this with you. They do a great job with post op pain/support etc. They do these day in day out. I personally felt I wanted a 100% chronic prostatitis / chronic pelvic pain syndrome yes or no - there was no way to get this without a scope sadly.

You know what really stands out about you? Your anxiety. Did your flare come when you were really stressed or anxious? That happens to many of us. The problem is once you work it up it is hard to shake the anxiety and hence the flare away. Wise-Anderson Protocol talks about this in detail.

Get your Uro workup done mate. If he says chronic prostatitis / chronic pelvic pain syndrome get Wise-Anderson Protocol book and then start to sort yourself out - you need to be your own boss with CPPS. I know I said no 100% cure but that does not mean many of us don't get remission (that is a bad word but it fits somewhat). Many of us, I included, get times of very low to no symptoms.

You can do all this mate we have all done it you're not alone! Speak with your doctor and family - get the support up don't be shy - if your doctor does not know your worries how can he help you with them by reassuring you? Don't let it beat you and never give in! Support helps with the anxiety so do not be afraid to vent on here or show emotion. Many guys do it and feel better to share experiences with their peers. I do it and very kind guys read and post moral support! I then feel better for days on end with the anxiety of this. There is a great community on here who fully understand what your going through. You have found us and that is half your battle to getting these symptoms under control.

I am not a doc so please all you ask on here I have answered, also ask your Urologist. I am only sharing my experiences it is not a substitute for a one on one consultation with a urologist but it is moral support I hope.
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
Donknuckles
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Re: New - what to Start?

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Thanks for the info... And yes I think I was over working at work... And getting lots of anxiety... And it seemed to get worse and worse. My wife says I'm worrying too much. But I can't stop, want to be there for my son and wife and now I feel I'll be hampered by all of this. I did take a couple of pills for depression once or twice and felt really good on those days. But whatever I have is driving me nuts. But will do the scope if needed and anything else anything that will help the road for recovery. And anything for my little guy.
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
we.the.hulk
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Re: New - what to Start?

Post by we.the.hulk »

Yo knuckles, I'm not a doctor. But, if you had a stricture you would most likely be peeing with some type of abnormality. Like spraying or split stream. And you would probably have some pain or discomfort associated with urination. So, what does your flow look like. If its rolling out nice and steady. You're probably ok. You don't have to have the cystoscopy. You can ask for a transrectal ultrasound. It will give you a nice look at the prostate, and you can urinate while the wand is inserted and you will be able to readily detect a stricture. A transrectal ultrasound is completely pain free. A small wand is inserted anally about 3 inches into your rectum. Put your finger in your rectum and thats what it feels like. This is a much better test than the cysto. Uros get off on sticking cameras into your yin yang. Makes 'em feel like they are really doing something. What they don't tell you is its virtually worthless, unless you have bladder cancer. And if you had bladder cancer, you would most likely be peeing blood. Do you pee blood? Anyway, testicular pain on ejaculation or bowel movement is referred pain from muscles in the pelvis. Get A HEADACHE IN THE PELVIS. There are nice clear diagrams. If I were you, I would abstain from all supplements for 5-6 weeks. Many supplements can irritate even normal bladders, especially during times of high stress. You sound pretty high stress. Chill out. Meditation is very important. Find away to shut your mind down each day. Sounds like you like to move. Go for a long walk and count or say a mantra, or repeat the alphabet or focus on your steps or your breathing. Get some powder free exam gloves and lubricant gel from the drug store and do a little gentle exploration in your rectum. You know, stretch the sphincter. Notice what you notice. When you are taking a shower, grab both your butt cheeks and pull outward and hold. Do each side individually. Notice what you notice. Finger roll the area around your bladder. Search the forum for the term. Pull skin up and out and feel for sore spots. You're pretty typical. Its all gonna be fine.
Age: 40 | Onset Age: 40 | Symptoms: burning urethra at first / now just urgency/frequency. tingle at penis tip inside urethra. | Helped By: running / stretching / good nutrition / vitamins /urelle /Xanax | Worsened By: stress/anxiety
Donknuckles
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Re: New - what to Start?

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My stream is fairly good. I don't believe I'm spraying... Not sure what that would look like. But no split stream. Takes about 3 to 5 seconds to get started. It doesnt shoot out like it use, that may be age? Seams like a medium stream. Not really any pain when I pee. I'm guessing it would be really painful? With the urge to go sometimes it seams like a weak stream you know? Anyways thanks for the info? I've been taking ester-c zinc and vitamin b complex that should be cool right ? Thanks for the info
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
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Mike Kavo
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Re: New - what to Start?

Post by Mike Kavo »

No a stricture can cause ZERO pain during urination but it can also be agony. Ask your Uro he will confirm they come in all shapes and sizes in different people.

A split stream is a hall mark though. Basically when you pee it goes everywhere (oh you would know!). But the location may not give you a huge split stream at all but a slow dribble stream and a feeling you can't get the urine out. It is not black and white unfortunately.

Again speak with your Uro say it freaks you out your comfort zone big time and you know what the scope is looking for may be indicated on less invasive procedures and you want them first. Get them done have a sit down with him. Think I got anything worth a scope now? No looks like CPPS. Right read Wise-Anderson Protocol then go from there.

It will stabilise this for long periods even if it is CPPS! You said your willing to do anything to get better for your family that positive attitude is step one!!! Stick with it and don't get into bad what if's that may never occur by reading about all these other conditions. Let your Uro diagnose you then move on from there. Take it step by step.

None of us on here can diagnose you! None of us have medical ability so keep that in mind when using the internet - my entire ability is reading the dummies guide to anatomy, google, uro visits and Wise-Anderson Protocol - I am out after that in medicine. So what do I know? ;) Push your Uro tell him you need a diagnosis ASAP. Then come back and chat with us for support when you can say yes or no to our club. :)
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
we.the.hulk
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Re: New - what to Start?

Post by we.the.hulk »

The 3-5 seconds that it take you to begin urination, this is tense pelvic muscles attempting to relax. The pelvis has to relax for micturation to begin. Hallmark of CPPS. Seems like it would be a good idea for you to start stretching internally. See what that feels like.

Urologists are worthless for CPPS. I haven't read anywhere on this site where a urologist was helpful. If you have a stricture or some other abnormality then maybe they can help. I don't trust 'em.

Anyway, you sound pretty anxious. The bladder is the organ of anxiety. Do what you can to settle down. Meditation, meds. Elavil and hydroxyzine eliminated all nocturnal urination for me. I sleep for 10 hours now without getting up to pee. I spent 7 years getting up 3x a night to pee, thinking it was normal because I had a couple beers at night. That's the insidiousness of this condition.
Age: 40 | Onset Age: 40 | Symptoms: burning urethra at first / now just urgency/frequency. tingle at penis tip inside urethra. | Helped By: running / stretching / good nutrition / vitamins /urelle /Xanax | Worsened By: stress/anxiety
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Mike Kavo
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Re: New - what to Start?

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Yeah Uros are pretty bad for chronic prostatitis / chronic pelvic pain syndrome and getting worse. They look for bloody EVERYTHING under the sun before they say chronic prostatitis / chronic pelvic pain syndrome and waste a lot of time and effort. Still the problem is early days what do you do? You can't diagnose on a forum so Uros have to do it. How they do it is all wrong.

As for treatment they don't have a clue they range from nothing to pain control to all out chemical warfare with just a few, a very few, doing Wise-Anderson Protocol.

Yep bad all bad.
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
Donknuckles
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Re: New - what to Start?

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So I had a urine flow test today and 10 is good mine was a 2... And my bladder is not emptying... So they want to do the scope next week. Guess I'll tuff it out. So I guess I could have a stricture of some sort? Anyone else have weak flows? Not emptying the bladder? Guess I'll man up.
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
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Mike Kavo
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Re: New - what to Start?

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No never had a flow like that. I have chronic prostatitis / chronic pelvic pain syndrome and my flow is normal and my bladder always empties. I guess they did ultrasound on you also. I am assuming he said he wants to look with the scope and told you that after those tests?

In my opinion your chances of a stricture just went up yes, but I am not a urologist. If you do have one you need it repaired. Your kinda young for other Urological issues out with this and CPPS.
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
Donknuckles
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Re: New - what to Start?

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Thanks for all the info... Any help to relax me about thinking about the scope. How long does it take. Ect. Anyways... Thanks again.
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
Donknuckles
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Re: New - what to Start?

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Could it still be like bladder muscles?
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
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Mike Kavo
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Re: New - what to Start?

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Not long and it is not a big deal - really! Bruise-like pain after, controlled with meds, 2-3 days and I never knew I had had one. You won't even need a stay unless he finds a stricture, then you might need an overnight stay. But as you failed urine analysis and ultrasound you need a scope now as something is not right. chronic prostatitis / chronic pelvic pain syndrome people don't fail them. More investigation but your getting there...hang in there you will make it!
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
Donknuckles
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Re: New - what to Start?

Post by Donknuckles »

Did you have in the office?
Age: 39| Onset Age: 34 | Symptoms: fill need to urinate frequently-getting up 4+ times a night-feeling in penis after urinating that makes me think I need to go agian-sitting down can give me the feeling I need to go | Helped By: Standing up-Walking-Being with people/and not sitting down | Worsened By:sitting down | Other comments:
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Mike Kavo
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Re: New - what to Start?

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No in the UK they use day surgery suites at a hospital. You just drive in get a bed or room then they give you a gown while reminding you all clothes off. You will get chat and pre meds with docs. Then you go in and get put to sleep. All very easy. When you come out if the doc had to do something he may have a temp catheter in you. You will be asleep so you will not feel it. They come out easier than they go in and will allow healing if he had to do something. You may not be alone usually many guys are in on the same day. So can be kinda funny as none of them want it. The one in the UK I was in had a 4 bed recovery room all of us had the scope one after the other...was very funny actually all 20-40 in age range. Usually they will tell you the news post op and follow up in clinic. If they don't do anything and you're not anxious they will let you home a few hours later. After a day or so the bruising goes away.
Age: 32 | Onset Age: 22 | Symptoms: Pain | Helped By: Sleeping, Relaxation, Exercise, Stretching, Tramadol (Bad Flare Only Generally Prefer No Chemistry), Good Diet, Quercetin, Fish Oil | Worsened By: Stress, Too Much Ejaculation, Protection Response
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