CPPS treatment in India
CPPS treatment in India
Hello - I am wondering if there are people in this forum from India suffering from CPPS? I am looking for information on doctors and hospitals in India where they can properly diagnose chronic prostatitis / chronic pelvic pain syndrome and rule out any other problems. Please share your experience regarding your treatment in India. I would also like to know information on Physical Therapist who are familiar with myofascial therapy.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
Re: CPPS treatment in India
Prsteels,
I read your previous post and wanted to reply but was caught up in my own flare. I apologize for that. I am now residing in Bangalore, India. I was in US however when this thing started and had to leave that country.
As far as medical care is concerned in India, per my research I am afraid we don't have too many facilities which treat CPPS. I have gone through the web sites (urology dept web page) of many popular hospitals here in Bangalore and they all claim to treat Chronic Prostatitis but I suspect their treatment plan involves extensive use of anti-biotics and other stuff. The only office I can think of which may be of help is an Interstitial Cystitis center in Ahmedabad. The center is run by Dr. Nagendra Mishra. You can google him to get the name of his clinic. Now, you may or may not have IC but I am hoping he might be able to guide you on finding a doctor in your region/area who is familiar with CPPS/IC. He gave me a name of a doc in Bangalore.
As far as PT for chronic prostatitis / chronic pelvic pain syndrome in India is concerned, we have as much luck as finding a doctor who is familiar with CPPS. I go to a PT center called RECOUP here in Bangalore. They are familiar with Myofascial release, but the person who does doing PT is definitely not good. He can hit the spots sometimes though. I asked him about other therapists in Bangalore who are familiar with therapy for pelvic pain...he said he doesn't know. May be he didn't want to give out names on fear of losing clientèle and I haven't found anyone using Google. Interestingly, I was going through a document written by Dr. Mishra about IC treatment procedures in India and it was mentioned that PT option as a treatment is not popular in India.
Hope this helps. Please feel to contact me if you need further information. I know I have listed my email address in one of my previous posts somewhere on this forum.
Good luck,
- B
I read your previous post and wanted to reply but was caught up in my own flare. I apologize for that. I am now residing in Bangalore, India. I was in US however when this thing started and had to leave that country.
As far as medical care is concerned in India, per my research I am afraid we don't have too many facilities which treat CPPS. I have gone through the web sites (urology dept web page) of many popular hospitals here in Bangalore and they all claim to treat Chronic Prostatitis but I suspect their treatment plan involves extensive use of anti-biotics and other stuff. The only office I can think of which may be of help is an Interstitial Cystitis center in Ahmedabad. The center is run by Dr. Nagendra Mishra. You can google him to get the name of his clinic. Now, you may or may not have IC but I am hoping he might be able to guide you on finding a doctor in your region/area who is familiar with CPPS/IC. He gave me a name of a doc in Bangalore.
As far as PT for chronic prostatitis / chronic pelvic pain syndrome in India is concerned, we have as much luck as finding a doctor who is familiar with CPPS. I go to a PT center called RECOUP here in Bangalore. They are familiar with Myofascial release, but the person who does doing PT is definitely not good. He can hit the spots sometimes though. I asked him about other therapists in Bangalore who are familiar with therapy for pelvic pain...he said he doesn't know. May be he didn't want to give out names on fear of losing clientèle and I haven't found anyone using Google. Interestingly, I was going through a document written by Dr. Mishra about IC treatment procedures in India and it was mentioned that PT option as a treatment is not popular in India.
Hope this helps. Please feel to contact me if you need further information. I know I have listed my email address in one of my previous posts somewhere on this forum.
Good luck,
- B
Age: 33 | Onset Age: 28 | Symptoms: Initially Tingling/urge to urinate feeling in tip of penis urgency mainly. Currently: Symptoms have flared up since early 2015... Only change has been discovery of a TrP right inside navel which is confounds doctors & PTs alike :) Multiple Ultrasound of Bladder, Abdomen & TRUS normal. Urine culture reported normal. | Helped By: Internal Trigger Point work, hot baths, Baclofen, light exercise regimen. | Worsened By: Stress/anxiety, constantly thinking about it, ejaculation, bowel movement, improper sitting posture
Re: CPPS treatment in India
Burner2K - thanks for your reply & the information. Hope you are feeling better. My brother who has been diagnosed with Chronic Prostatitis is in Bihar and I myself in US. I believe that due to lack of proper medical infrastructure in Bihar, my brother has not been diagnosed properly. Though most of his symptoms are related to CPPS, I just want to be sure & rule out any other similar issues such as IC. Could you recommend any hospital in India where at least I can be sure they can diagnose the issue and rule out anything but CPPS? I was reading one of your earlier post where you mentioned a PT named Deepak from RECOUP. I was hoping you would have a positive experience there but I guess I was wrong.
My brother has given up hope in India and I was planning to get him to USA for diagnosis. Since you have been here could you please make some suggestions? Do I take him to Dr. Wise or should I see local urologist and rule out other issues (such as IC) before seeing Dr. Wise? I am hoping some cost would be covered by his Visitor's Insurance. Looking forward for your reply & again hope you feel better.
My brother has given up hope in India and I was planning to get him to USA for diagnosis. Since you have been here could you please make some suggestions? Do I take him to Dr. Wise or should I see local urologist and rule out other issues (such as IC) before seeing Dr. Wise? I am hoping some cost would be covered by his Visitor's Insurance. Looking forward for your reply & again hope you feel better.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
Re: CPPS treatment in India
Prsteels,
I am sure there are others (senior members) on the forum who are apt for answering questions about health care for chronic prostatitis / chronic pelvic pain syndrome in US. And I have in been India for less than 3 months now. I am not in a position of giving you accurate picture about health care in India for chronic prostatitis / chronic pelvic pain syndrome as well. If your brother wants to try his options in India, based on what I have read, he could contact Dr. Nagendra Mishra. Please see this website for information. www.interstitialcystitiscenter.in. Apparently he is a pioneer for IC treatment in India and is well regarded internationally.
I haven't been to the clinic in Santa Rosa, CA and its hard for me to say anything about the clinic. However, you can go through the various stories of people who have attended the Clinic and benefited a lot from it. I was told Dr. Wise is not a type of guy who would entice patients for the sake of money. Another doctor for IC, I would like to recommend based on my information is Dr. Christopher Payne at Stanford Medical School. He has correctly diagnosed a lot of patients as having PFD who were misdiagnosed as IC. I was trying to get an appointment with him but due to miscommunication from my doctor's office to his office, it went no where. I can also attest to magical touch of Tim Sawyer, the PT who treats at the clinic in Santa Rosa. I have had the fortune of having two sessions of PT under him and he is just amazing. He knows where to dig in internally and how much pressure to be applied. I came out of his office a happy camper.
If it really turns out that he has chronic prostatitis / chronic pelvic pain syndrome problem and if he planning to return back to India, attending the clinic might be worthwhile. He will get to know how to use their special wand for internal work.
You might also wanna check IC Network and International Pelvic Pain Society websites for list of doctors & Physical Therapists respectively in your area for IC and CPPS.
I don't know Sir where in the US your live, but if you were living in a rural place like I was on the Eastern Shore, local urologists aren't gonna be of much help. I have been to more than 5 different doctors (2 GPs & 3 Urologists) in & around that location and none of them gave me a proper diagnosis or help.
Yep, the PT who works for Dr. Deepak at RECOUP sucks. Check out my latest post on my thread...a little rant on him.
I hope this helps your brother in making the right decision. You know whats really unfortunate, chronic prostatitis / chronic pelvic pain syndrome is not rare in India. But just like your brother, doctors are not aware of the correct treatment protocols.
Good luck.
- B
I am sure there are others (senior members) on the forum who are apt for answering questions about health care for chronic prostatitis / chronic pelvic pain syndrome in US. And I have in been India for less than 3 months now. I am not in a position of giving you accurate picture about health care in India for chronic prostatitis / chronic pelvic pain syndrome as well. If your brother wants to try his options in India, based on what I have read, he could contact Dr. Nagendra Mishra. Please see this website for information. www.interstitialcystitiscenter.in. Apparently he is a pioneer for IC treatment in India and is well regarded internationally.
I haven't been to the clinic in Santa Rosa, CA and its hard for me to say anything about the clinic. However, you can go through the various stories of people who have attended the Clinic and benefited a lot from it. I was told Dr. Wise is not a type of guy who would entice patients for the sake of money. Another doctor for IC, I would like to recommend based on my information is Dr. Christopher Payne at Stanford Medical School. He has correctly diagnosed a lot of patients as having PFD who were misdiagnosed as IC. I was trying to get an appointment with him but due to miscommunication from my doctor's office to his office, it went no where. I can also attest to magical touch of Tim Sawyer, the PT who treats at the clinic in Santa Rosa. I have had the fortune of having two sessions of PT under him and he is just amazing. He knows where to dig in internally and how much pressure to be applied. I came out of his office a happy camper.
If it really turns out that he has chronic prostatitis / chronic pelvic pain syndrome problem and if he planning to return back to India, attending the clinic might be worthwhile. He will get to know how to use their special wand for internal work.
You might also wanna check IC Network and International Pelvic Pain Society websites for list of doctors & Physical Therapists respectively in your area for IC and CPPS.
I don't know Sir where in the US your live, but if you were living in a rural place like I was on the Eastern Shore, local urologists aren't gonna be of much help. I have been to more than 5 different doctors (2 GPs & 3 Urologists) in & around that location and none of them gave me a proper diagnosis or help.
Yep, the PT who works for Dr. Deepak at RECOUP sucks. Check out my latest post on my thread...a little rant on him.
I hope this helps your brother in making the right decision. You know whats really unfortunate, chronic prostatitis / chronic pelvic pain syndrome is not rare in India. But just like your brother, doctors are not aware of the correct treatment protocols.
Good luck.
- B
Age: 33 | Onset Age: 28 | Symptoms: Initially Tingling/urge to urinate feeling in tip of penis urgency mainly. Currently: Symptoms have flared up since early 2015... Only change has been discovery of a TrP right inside navel which is confounds doctors & PTs alike :) Multiple Ultrasound of Bladder, Abdomen & TRUS normal. Urine culture reported normal. | Helped By: Internal Trigger Point work, hot baths, Baclofen, light exercise regimen. | Worsened By: Stress/anxiety, constantly thinking about it, ejaculation, bowel movement, improper sitting posture
Re: CPPS treatment in India
I am confused about IC versus CPPS. Is chronic prostatitis / chronic pelvic pain syndrome for men as IC is for Women http://ucpps.men/1/? Most of the symptoms looks common to me. I am in Saint Louis, MO. If anyone can recommend any doctor in or around Missouri that would be great.
Thanks.
Thanks.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
Re: CPPS treatment in India
Mr Steels,
I don't know if you had a chance to read 'A Headache in the Pelvis' by Dr. Wise. If you haven't, I strongly urge you or your brother to read the book. I would answer a lot of your questions and mostly importantly offer hope to him. It gives an idea of the things involved in treatment for this condition. Most symptoms of IC & chronic prostatitis / chronic pelvic pain syndrome overlap. IC is usually regarded as the compromise of the inner bladder wall lining which inflames the bladder wall and thus the symptoms. For explanation on CPPS, there are an excellent set of articles on the main page of this site (https://ucpps.men). Please read them...
Sorry, I have no idea about doctors near St. Louis.
I don't know if you had a chance to read 'A Headache in the Pelvis' by Dr. Wise. If you haven't, I strongly urge you or your brother to read the book. I would answer a lot of your questions and mostly importantly offer hope to him. It gives an idea of the things involved in treatment for this condition. Most symptoms of IC & chronic prostatitis / chronic pelvic pain syndrome overlap. IC is usually regarded as the compromise of the inner bladder wall lining which inflames the bladder wall and thus the symptoms. For explanation on CPPS, there are an excellent set of articles on the main page of this site (https://ucpps.men). Please read them...
Sorry, I have no idea about doctors near St. Louis.
Age: 33 | Onset Age: 28 | Symptoms: Initially Tingling/urge to urinate feeling in tip of penis urgency mainly. Currently: Symptoms have flared up since early 2015... Only change has been discovery of a TrP right inside navel which is confounds doctors & PTs alike :) Multiple Ultrasound of Bladder, Abdomen & TRUS normal. Urine culture reported normal. | Helped By: Internal Trigger Point work, hot baths, Baclofen, light exercise regimen. | Worsened By: Stress/anxiety, constantly thinking about it, ejaculation, bowel movement, improper sitting posture
Re: CPPS treatment in India
I am a veteran of this and moved from US to india.
I also talked to recoup etc
Pls send email at [email protected]
I may have some good and some not so good solutions.
I also talked to recoup etc
Pls send email at [email protected]
I may have some good and some not so good solutions.
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
Re: CPPS treatment in India
Ramana - I have emailed you. Thanks in advance for your help. Looking forward for your reply.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
Re: CPPS treatment in India
Hope you're doing a lot better, been a while since I've heard a peep. I guess since you are out in India you are well out of the bedridden stage.ramana wrote:I am a veteran of this and moved from US to india.
Get well
--jjf
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Re: CPPS treatment in India
Hello - I went to Medanta Hospital in Delhi & saw Dr. Ahlawat who performed biopsy & cystoscopy. According to him there is significant swelling in bladder & prostate. Report says I may have Chronic Cystitis. Prescribed meds are not helping. See my cystoscopy & biopsy report. Can someone please help & suggest what I should do next.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
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webslave
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Re: CPPS treatment in India
The biopsy was completely unnecessary and would almost certainly not have been done in the West. The report simply shows an unremarkable case of bladder neck and lower bladder inflammation. I'm not sure why they keep calling it "bullous" (i.e. blistered) — that's a very unusual finding. Did you see any of the images? Ask to see any images taken. Unless there are obvious, large lesions like blisters present, giving the bladder wall a cobblestone appearance, this is a rubbish diagnosis.
You must stop medicalising the condition and visiting surgeons (urologists are essentially surgeons) in the hope of improvement. The fact that you are in a country like India, where treatment standards are not the best, just complicates things.
You must stop medicalising the condition and visiting surgeons (urologists are essentially surgeons) in the hope of improvement. The fact that you are in a country like India, where treatment standards are not the best, just complicates things.
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Re: CPPS treatment in India
Webslave - thanks for your reply. Could you please suggest alternative treatment. I am visiting US - should I see any doctor or a physical therapist? I am willing to spend up to $5000 from my pocket for any treatment in US. What should I do next?
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
Re: CPPS treatment in India
I do have a CD of the cystoscopy performed. I am not sure what to look for in there. I will try to post it on net for your suggestion.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)
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webslave
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Re: CPPS treatment in India
Another urologist would be pointless. I suggest the Wise-Anderson clinic for someone with a long-standing problem like yours.
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Re: CPPS treatment in India
I have posted the CD images of Cystoscopy at Google docs https://docs.google.com/leaf?id=0B2_eMV ... y=CI77oOwM . It is a ZIP file that you will have to download & uncompress. If you could take a look & suggest that would be great.
Age: 40 | Onset Age: 37 | Symptoms: pains throughout the penis, Testicular pain, perineum pain, burning/irritative urination, poor urine stream, constipation, lower back pain, pain in knees. Diagnosis:Chronic Prostatitis. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), bladder and renal ultrasound (normal), Cystoscopy (normal)