new member, old suffererer

[billy79]

Hello First a warm hug to everyone who contributes to this forum. I mean that from the bottom of my heart. Since I joined this forum for about two months ago, I finally believe I can get my life back. Or at least improve it.

So a bit of introduction; I'm a 32 year old male. I've been suffering from chronic prostatitis / chronic pelvic pain syndrome ca seven years. The last year symptoms has worsened. I have a history of anxiety and almost chronic stress, due to my natural personality type and my ADHD, (Got diagnosed half a year ago. Ahh finally some answers to my chaos). I have a long history of contracting my pelvis under pressure. I also think my shy bladder suffering plays a role in this.

Needless to say I've been in the "uro world", seeing docs and docs trying almost everything.

Now I am able to relax more, and giving myself permission to do so without feeling guilt. Recently bought the 5fth edition, and Paradoxical Relaxation, and book with shy bladder syndrome.

Questions:

1. I found better relief (no symptoms while on it) from Clonazepam than valium, and I don't feel the same hangover. But its a potent drug, do I benefit from something less strong? Is it to much to take about 3mg a week? ( I know Dr questions - but its a lot of things they don't now)

2. There are no skilled Doctors in the way presented in this forum, Do I still benefit from an internal exam of my pelvis?

3. Trigger points

After I perform it at my best ability, I get flare ups that seems to be a bit too much. The veins around my penis hurts more and even one of my testicle, even though I don't normally have pain there. I go and pee for about six times within an hour I get anxiety, like my body is saying; "what you did now? Its wrong!" I notice a thin string about 10 cm in which is painful, and I'm worried that its attached to the bladder or some other and thing, its difficult not to touch it if I'm aiming for some sore places deeper in.

4. I've been experiencing with different anal play before. Maybe I have damaged some tissue? Although I think my symptoms came before that. Should try to relieve it with zinc lotions or something? Maybe do nothing at this time? -that I'm doing more harm than good? I don't dear to repeat the TP the following day because as I said, it seems it turns so much more wild and intense than from others in the forum. Although sometimes I found relief. But I don't quite see the pattern. Is there a way to find out that I benefit from TP or not? Some "No! Stop!" signs that I should be aware of?

Hopefully I have the money to visit the clinic a year from now.

I am a forgetful and unfocused person, So I apologize if this is already answered other places. I've been searching the forum for a while, but I doesn't all enter my brain if you understand

Wow this turned out to be long post

Answers will be much appreciated

Sincerely Karl

[webslave]

1. I found better relief (no symptoms while on it) from Clonazepam than valium, and I don't feel the same hangover. But its a potent drug, do I benefit from something less strong? Is it too much to take about 3mg a week? ( I know Dr questions - but its a lot of things they don't now)

Klonopin is potent stuff, but 3mg/wk is well within prescribing limits. Long term use (months) is not strictly advisable, and some men who do this have problems when they try to stop. I'd recommend using it now and then when the anxiety builds up.

2. There are no skilled Doctors in the way presented in this forum, Do I still benefit from an internal exam of my pelvis?

No. Having someone who knows nothing about TrPs do an intrarectal examination is pointless. However, a uro may want to do a DRE to check for abnormalities, and that's fine.

3. Trigger points

After I perform it at my best ability, I get flare ups that seems to be a bit too much. The veins around my penis hurts more and even one of my testicle, even though I don't normally have pain there. I go and pee for about six times within an hour I get anxiety, like my body is saying; "what you did now? Its wrong!" I notice a thin string about 10 cm in which is painful, and I'm worried that its attached to the bladder or some other and thing, its difficult not to touch it if I'm aiming for some sore places deeper in.

How are you treating trigger points, and where are they?

4. I've been experiencing with different anal play before. Maybe I have damaged some tissue? Although I think my symptoms came before that. Should try to relieve it with zinc lotions or something? Maybe do nothing at this time? -that I'm doing more harm than good? I don't dear to repeat the TP the following day because as I said, it seems it turns so much more wild and intense than from others in the forum. Although sometimes I found relief. But I don't quite see the pattern. Is there a way to find out that I benefit from TP or not? Some "No! Stop!" signs that I should be aware of?

If you are doing your own intrarectal massage and TrP treatment, without any guidance or training, be careful. I do not advise it, to be honest. You could damage the membranous urethra or use too much force, or not enough, merely irritating the TrPs and not resolving them. I suggest that until you can get to see a proper therapist, rely more on other techniques, like stretching, external massage and TrP treatment, relaxation techniques, quercetin, etc.

Hopefully I have the money to visit the clinic a year from now.

[carld]

Welcome,

You can also read my starter list in my signature...You will recover and live a good life!!!

Best

[Jay]

Hi,

Just wanted to add that I take .5mg Klonopin 1x/day, 7 days a week, as part of my pain management cocktail. Helps with my anxiety, too. I've been on that dose for years without any need to adjust. 3mg/week seems like it would be safe (and I'm sure you wouldn't be prescribed that amount otherwise).

[gmccormack]

Jay you didn't build up a tolerance to the Klonopin yet?

I get great relief from it like billy, but am always afraid to take it because of fear that it won't have the same effect the next time.

[Jay]

As far as I can tell, I have not, but it's different for every person.

I've basically had the same medication regimen for the past three or so years. There were some dosage increases toward the beginning, but only one or two. Actually, I cut my Tramadol back by 50mg last year.

[webslave]

With benzos, some men find problems when they try to stop. It's not an issue for everyone though.

[Jay]

With benzos, some men find problems when they try to stop. It's not an issue for everyone though.

Quite true! I knew there were risks involved when I went into pain management, but I think it comes down to making a quality of life choice. You really have to find a physician whose guidance you can trust when it comes to these decisions.

[billy79]

Super, thanks to all replies. Today I started with Lyrica, hopefully that will gimme some relief.

[Jay]

I'm on Lyrica, too. Give it some time to get going. It might take a few weeks, as I recall, and some dosage adjustments until your doctor is satisfied.

Good luck!

[billy79]

actually I felt relief almost right away. If it improves it would be fantastic. No loss of libido too. With klonopin it decreased, also the following day