Best Treatment for "golf ball in the butt" pain?

[kdow]

For the last year or so I've mostly dealt with inflamed urethra pain. This has been successfully treated with Celebrex, any accredited quercetin product and a regulated diet (no gluten, low sugar/carb). However, I occasionally will wake up with a few days or so of that bad muscle pain in the rectum area (I've heard it described as "golf ball in the butt" pain). What is the best treatment to specifically target that pain? I've done a lot of PT through the years with moderate success, but I was wondering if there was a med that could target that pain for just a few days at a time? Is that pain something that is likely helped by the Celebrex, any accredited quercetin product and other anti-inflammator/mast cell blocking meds? Or is this pain not caused by inflammation/mast cells?

Thanks a lot for your help!

[scotsman]

Internal physiotherepy (triggerpoint work) removed the golf ball in the butt pain for me. Have you had any internal PT done?

[kdow]

Yes. I went to the Stanford/Wise-Anderson Protocol about 4 years ago and did/had PT done religiously for the three years following. It definitely prevented the pain from being the max, but it never got rid of it completely. Then one day I woke up and it was gone, but I had terrible urinary/urethra inflammation pain. It makes it tough when the pain moves every year or so. Once you get a handle on one thing, it switches on you. Right now it seems the pain may be switching again back to the rectal/perineum area. If the any accredited quercetin product was helping with the urethra pain, should I continue to take it while the pain is in the rectum?

Thanks for your reply. I've had a struggle with this. Sometimes I could say I'm 70% improved, but then the pain switches and I feel like I'm back at square one. So overall, after 5 years or so, I'd say I'm just 25% improved. Any additional thoughts would be greatly appreciated.

[webslave]

There may be an allergy component, is my thought. I am symptom free until I start eating some members of the Grass family: wheat, corn, etc

Do you have any history of allergy? Does any member of your related family? It may be worth getting some basic tests from an allergist.

[kdow]

You nailed it on the allergy idea webslave. I am 100% convinced that the urethra pain is controlled by what I eat, and the butt pain is in part controlled by what I eat. But the PT helps take the edge off the butt pain too. I have cut out all gluten, but still eat corn. Maybe I should cut that out too for a while.

I've gone in for the first round of comprehensive allergy tests - all negative. Do you have any specifics that are not covered in the generic tests that I should look at? I also biopsied for Cealiac – negative. No allergy history in the family or me that i know of.

So far it seems spicy, sugar, and starch (mostly potatoes) foods cause me more pain. But for years I thought garlic and onion increased butt pain, but some have said those improve symptoms - I'm confused on that one. As other people have written about, it is tough to nail down what food is problematic, because sometimes it seems pain kicks in 2 hours after eating, and others 15 hours after eating. Any thoughts on improving my ability to isolate those problem foods even more? Any other thoughts?

Thanks a lot for your help webslave.

[Jay]

Corn might be worth cutting out, might not. The human digestive tract doesn't process it very well, and also, it's starchy. If you have troubles with starch, corn could be a contributor.

As well, onions are tough on the gut when raw. Cooking them makes them a bit less difficult to handle. Personally, I'm very allergic to them, in the vomiting sort of way!

[webslave]

This is such a complex topic, and identifying problem foods needs careful detective work. I heartily recommend the Brostoff book in this regard:
https://www.amazon.com/dp/0892818751

You owe it to yourself to read that book.

[kdow]

I will take both sets of advice. Thanks both you guys!

[Sherradin]

I find my pain is controlled by a low salicylate diet I react to NSAIDs and asprin drugs and that is also in food in differing amount. If you are interested google RPAH Allergy Diet. It was designed in Australia. Have you ever reacted to blood thinners? If I use Neurophin my pain goes through the roof burning nerve endings react to the asprin/salicylates in it. Mine started with urethral pain and I got it under control with that diet. Now my bladder reacts to food. I have to be very strict but it is the way to control the pain for me.

[alprost]

I will take both sets of advice. Thanks both you guys!

I would also look at how effective your self treatmemt of trigger points is - how confident are you that you have 'got' them all? If you are missing any key trigger points, this is also a very likely reason why you are experiencing ongoing symptoms.

[kdow]

Yeah, I'm definitely back doing some good trigger point PT.

The diet info definitely relates to my symptoms. I have never had blood thinners, and asprin only once or twice. Can you test for salicylate intolerance, or is it just trial and error? The sugars, fruits, spices, alcohol, coffee, etc... all get me. Pretty much everything on the RPAH list. Sheridan, what are your safest foods you know you can go to, especially in a flair-up time? For me it seems to be rice, chicken, and cheese.

[Sherradin]

My diet that is the safest is

• Breakfast oats and milk/eggs and parsley/buckwheat pancakes
• lunch rice pasta with lettuce, mungbeans, celery, brown beans, cottage cheese, flax oil and sea salt/ or whole meal bread with chicken and lettuce and butter
• dinner white fish, brown rice, chokos, green beans cabbage or brussel sprouts

... all very boring but it works for me. now I am doing the trigger point and stretches and meditation I learnt as well I am improving little by little each week... I am recording it.

If you want to do the elimination salicylate diet google it at try for a couple of weeks you will know if it helps fairly quickly. Good luck... the quickest way to test though is take some aspirin and see if you react... but that's too painful for me.

[kdow]

That food list is real helpful. Thanks! I'm 100% gluten free right now, which I think is true for your list also.

[Sherradin]

I was gluten free for along time but I find I can tolerate whole meal bread without additives. Just be careful of some breads as they contain a preservative that is known to make the elderly wee all night..its called 282 here I think.

I am finding as my myofascular gets more supple I am slowly tolerating more foods. But being very good for three months to give the Wise Protocol the best test. Trying to have it as the only variable to prove what works.

Just keep it bland. Good luck!

[webslave]

282 is calcium propionate.