My progress

[angelhead]

Hi all,

I've written a few posts on this section of the site. I've been suffering with ED, low libido and a lack of penile sensation. I've had urinary problems for five years but very little pain. When the ED started two months ago it was followed by sharp perineal pain (four days worth), back ache (six weeks) and a tingling/pins and needles feeling in the perineum (ongoing). The first thing I did when I started having problems was to log on to this site and read other people's experiences. Therefore, I thought I'd better keep the community updated as to how I'm getting on.

I went to see a private Urologist as I was so worried about my symptoms. He did an MRI, rigid cystoscopy under anesthetic and took prostate fluid. He also took my testosterone levels. The only thing he found was red blood vessels visible in the bladder and thought IC was a possibility. He gave me no help or advice on the sexual problems and basically told me there was nothing he could do (not sure what he's been studying for the last however many years - the male urinary/sexual system is a fairly small area...) .

My erections, sensation and libido have started to improve and are normal on some days. The pain has gone but the tingling remains.

My GP, naturally, thinks all my problems are in my head. He thinks my anxiety has caused it. My anxiety however followed the problems not the other way around. I think it unfair that such a distressing problem should be written off so easily.

My next move is to see a rheumatologist to see if there's anything auto immune going on (I also have wrist pain and, randomly, tinnitus).

I'll keep you all posted and if anyone has any help or advice I'd be happy to hear it. If anyone wants to PM me and discuss further that's fine to.

I don't think the SP or seeing a PT is the right course of action for me but I appreciate that it works for many.

[webslave]

I think you need to see if you have trigger points. The pins and needles feeling you are having could be fasciculations.

[J Dimitrakov]

My next move is to see a rheumatologist to see if there's anything auto immune going on (I also have wrist pain and, randomly, tinnitus).

Your symptoms appear to be consistent with an emerging subgroup of patients with chronic prostatitis / chronic pelvic pain syndrome who have ED and perhaps systemic neurogenic problems. The rheumatologist looks like a logical choice although your expectations should be not be high. Perhaps a test for MBP in prostatic fluid/post-prostatic massage urine might shed some light on the underlying mechanisms

Best of luck,
JD

[jj77]

Sorry, what is MBP?

[webslave]

Myelin Basic Protein
http://www.labcorp.com/datasets/labcorp ... 032500.htm