Question about my case (ahmedqman)

Male pelvic pain, prostatitis, IC
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Question about my case (ahmedqman)

Post by ahmedqman »

Hello,

I was diagnosed with prostatitis in 2005. The urologist did a urinalysis (came out negative), a uroflow, and a cystoscopy (to rule out stricture, and he found inflammation in the prostatic urethra), and prescribed levaquin for a month. I've also been on Cipro. I haven't been responding to antibiotics.

However, my urologist did not culture my EPS, which a lot of people seem to think is essential in making a differential diagnosis between Chronic bacterial and chronic abacterial prostatitis.

This description of my situation ultimately leads me to a question about my situation and fertility. I heard that CBP can cause infertility. I'm doubting that I have this though, because I have not responded to antibiotic treatment. Do CBP patients normally respond to antibiotic treatment? Is it possible that I fall under the category of CP/CPPS (thus I may not have my fertility affected)? Should I urge my urologist to examine my EPS secretions, or is the information that he got normally enough to make a diagnosis and I should not really make an issue about my potential fertility.

I've had this condition for 2.5 years now (started happening at 18). My symptoms are urinary frequency (every 2 to 3 hours), inability to void bladder completely, and pelvic pain that is reduced by standing and exercising. I'm going to try Quercetin, because I'm going to work on treating the inflammation (since that's all my medical records indicate). Should I assume I fall under the abacterial category or should I continue to figure out if it's bacterial or not (due to the lack of urologists checking my EPS).

Thanks for any advice.
Age: 23 | Onset Age: 18 | Symptoms: Moderate Pelvic Pain, discomfort on full bladder, inability to void fully | Helped By: exercising | Worsened By: sitting
User avatar
webslave
Maintenance
Maintenance
Posts: 11429
Joined: Wed Oct 30, 2002 3:18 pm
Location: Please give your location so we can help better
Contact:

Re: Question about my case

Post by webslave »

ahmedqman wrote:I was diagnosed with prostatitis in 2005.
Please fill in your signature, as all new posters are asked to do.
However, my urologist did not culture my EPS, which a lot of people seem to think is essential in making a differential diagnosis between Chronic bacterial and chronic abacterial prostatitis.
If you have not responded to antibiotics over a long period, you can rest assured that your case is not bacterial. No need to worry about fertility.
HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓

Contact me at support at ucpps.men
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Re: Question about my case

Post by ahmedqman »

Hmm... so I'm going to tailor my treatment towards treating that inflammation in my prostatic urethra. I've heard a lot of success with any accredited quercetin product with people in my situation (my case seems less severe then some of the ones posted here, but it's still irritating at times). I also might try to tailor my diet towards the anti-inflammatory kind (as recommended by a cousin of mine... he's in neurology though, not urology).

Think that's a good idea? I have high hopes for this.
Age: 23 | Onset Age: 18 | Symptoms: Moderate Pelvic Pain, discomfort on full bladder, inability to void fully | Helped By: exercising | Worsened By: sitting
User avatar
webslave
Maintenance
Maintenance
Posts: 11429
Joined: Wed Oct 30, 2002 3:18 pm
Location: Please give your location so we can help better
Contact:

Re: Question about my case

Post by webslave »

No harm in trying. Welcome to the forum. :smile:
HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓

Contact me at support at ucpps.men
User avatar
neue01
Senior Veteran
Senior Veteran
Posts: 225
Joined: Wed Feb 06, 2008 6:17 pm
Location: San Francisco

Re: Question about my case

Post by neue01 »

I would check and see if you have any trigger points or tight bands in your muscles around the prostate.
Age: 33 | Onset Age: 28
Flare | Symptoms: burning after urination/defecation, post-urinary dribbling, low libido, low arousal, pelvic aches and pains.
Helped By: Physical therapy of the levator ani muscle group, Relaxation, Diet
Worsened By: Eating refined sugar and gluten, coffee, beer, stress
calguy
Senior Veteran
Senior Veteran
Posts: 285
Joined: Fri Sep 14, 2007 11:02 pm
Location: orange county

Re: Question about my case

Post by calguy »

ahmedqman, so your uro diagnosed you with CP after doing scope on you and seeing the inflammation? I'm asking because I was diagnosed with scope and uro said he saw inflammation on what I believe to be prostate ducks or urethra but I have not been able to find anyone else who was diagnosed with scope. I would definitely focus on diet and there is even an anti-inflammatory diet out there which may help. I try to eat a lot of foods they recommend.
Age 32, onset 32 Onset Aug 07- frequency was main problem in the beginning-really bad. Now 1 to 2x per night when frequency flairs up. Sore and tight lower abdominal muscles. Occasional burning after bowel movement and full feeling. What helps: Healthy diet(this is huge for me) Started drinking super greens supplament and almost going totally vegetarian to get body more alkaline, starting Prosta-Q, quercetin/zinc tablet in morning helped frequency problem I believe. Massaging abs and doing stretches helps calm down frequency when it is acting up. Wine or vodka after long day. Flexeral and melatonin at night. Swimming and light weights. .5 of Elavil every other day helps with frequency and healing process. Trying to stay positive and not stressing over this!
User avatar
webslave
Maintenance
Maintenance
Posts: 11429
Joined: Wed Oct 30, 2002 3:18 pm
Location: Please give your location so we can help better
Contact:

Re: Question about my case

Post by webslave »

calguy wrote:I was diagnosed with scope and uro said he saw inflammation on what I believe to be prostate ducks or urethra but I have not been able to find anyone else who was diagnosed with scope.
The observation of inflammation in the prostatic urethra and ducts (not "ducks") is a common finding. I had it too.
HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓

Contact me at support at ucpps.men
calguy
Senior Veteran
Senior Veteran
Posts: 285
Joined: Fri Sep 14, 2007 11:02 pm
Location: orange county

Re: Question about my case

Post by calguy »

That good to know webslave as it was a question I asked before and never got a response from others. I was going back to uro to grill him about that diagnosis so will take his word for it now. Thanks for putting that to rest. Your right again it is "Ducts" , I think I had my hockey team on my my mind while posting.
Age 32, onset 32 Onset Aug 07- frequency was main problem in the beginning-really bad. Now 1 to 2x per night when frequency flairs up. Sore and tight lower abdominal muscles. Occasional burning after bowel movement and full feeling. What helps: Healthy diet(this is huge for me) Started drinking super greens supplament and almost going totally vegetarian to get body more alkaline, starting Prosta-Q, quercetin/zinc tablet in morning helped frequency problem I believe. Massaging abs and doing stretches helps calm down frequency when it is acting up. Wine or vodka after long day. Flexeral and melatonin at night. Swimming and light weights. .5 of Elavil every other day helps with frequency and healing process. Trying to stay positive and not stressing over this!
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Re: Question about my case

Post by ahmedqman »

I seem to be having a problem swallowing the any accredited quercetin product pills (they're huge... 545 mg). Is it okay to crush them or at least divide them?
User avatar
Sleeper Service
Sage
Sage
Posts: 617
Joined: Tue May 02, 2006 3:49 pm
Location: Edinburgh, Scotland

Re: Question about my case

Post by Sleeper Service »

ahmedqman wrote:I seem to be having a problem swallowing the any accredited quercetin product pills (they're huge... 545 mg). Is it okay to crush them or at least divide them?
Yes, not a problem.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Re: Question about my case

Post by ahmedqman »

neue01 wrote:I would check and see if you have any trigger points or tight bands in your muscles around the prostate.
I'm not too familiar with Trigger Point release therapy... but I certainly will check that out. Do I just contact any old physical therapist? Do I need a recommendation from my urologist?

Thanks for any assistance.
Age: 23 | Onset Age: 18 | Symptoms: Moderate Pelvic Pain, discomfort on full bladder, inability to void fully | Helped By: exercising | Worsened By: sitting
User avatar
Jay
Retired Mod
Retired Mod
Posts: 745
Joined: Wed Mar 05, 2008 4:28 pm
Location: Florida

Re: Question about my case

Post by Jay »

If you provide your location, someone may be able to suggest a good physical therapist for you. Trigger point therapy is kind of specialized and not a ton of therapists do it. California and New York seem to be the places to be, though I have read that Bill Taylor in the UK is also good.

You could also try to just call around to therapists in your area. Anyone specializing in pelvic therapy/rehab would be a good starting point, for referrals to the right people if not for treatment.

I haven't read about anyone needed a recommendation from their urologist. Many urologists don't even know about Pelvic Floor Dysfunction or trigger point release, as that is more in the area of musculature, which is outside of the field of urology.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Re: Question about my case

Post by ahmedqman »

I'm in Orlando, Florida.
Age: 23 | Onset Age: 18 | Symptoms: Moderate Pelvic Pain, discomfort on full bladder, inability to void fully | Helped By: exercising | Worsened By: sitting
User avatar
Jay
Retired Mod
Retired Mod
Posts: 745
Joined: Wed Mar 05, 2008 4:28 pm
Location: Florida

Re: Question about my case

Post by Jay »

ahmedqman wrote:I'm in Orlando, Florida.
Hi,

I'm in Port Saint Lucie, which is about two hours from you. Unfortunately, we Floridians are at something of a disadvantage where trigger point therapy is concerned. It's even harder to find therapists who will do this internally, which seems to be a requirement for adequate treatment.

Don't take this as an endorsement, as I have not yet seen this individual, but I am soon going to visit Pamela Downey at Partnership in Therapy in Coral Gables. She specializes in pelvic floor dysfunction and other pelvic issues for both men and women, and has also written about chronic pelvic pain. I spoke with her on the phone and she seemed to be both friendly and knowledgeable. Told me that, if I was having unexplained genital pain and discomfort sitting, I was heading in the right direction by coming to see her. I know she does internal work, and I was actually warned to expect a rectal exam on my first visit!

I also know of Molly Miller, who is in Tampa. She does internal TrP work for pelvic pain, but I don't know if she only works on women or not. She was the one who referred me to Pamela Downey.

Sorry. This isn't much to go on, I know, but maybe you can take a day trip and at least get examined.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
ahmedqman
Beginner
Beginner
Posts: 34
Joined: Mon Apr 14, 2008 12:36 am

Re: Question about my case

Post by ahmedqman »

Tell me how your visit goes.
Age: 23 | Onset Age: 18 | Symptoms: Moderate Pelvic Pain, discomfort on full bladder, inability to void fully | Helped By: exercising | Worsened By: sitting
Post Reply