:icon14: Please continue to keep us updated and consider writing a success story thread as well about your recovery.
Richard.
BNI Bladder Neck Incision
Yes, excellent news and delighted that you've made such massive leaps forward in your recovery since you first appeared on our forum :icon14:
Please continue to keep us updated and consider writing a success story thread as well about your recovery.
Richard.
:icon14: Please continue to keep us updated and consider writing a success story thread as well about your recovery.
Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Sleeper Service
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- Location: Edinburgh, Scotland
Thanks guys!
And more good news: I do not have retrograde ejaculation either!
I emailed my Uro and he said this was OK - although there is a high risk of retro it doesn't mean the op failed. As my urine flow is still strong it looks like I just got lucky on this one!
And more good news: I do not have retrograde ejaculation either!
I emailed my Uro and he said this was OK - although there is a high risk of retro it doesn't mean the op failed. As my urine flow is still strong it looks like I just got lucky on this one!
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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Astrotitan
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- Joined: Sun Oct 30, 2005 8:05 am
- Location: Australia
That's great news, sleeper.
I was told that there is 15% chance for retro and that it is not an indication of unsuccessful surgery.
Keep us informed on how things go.
I was told that there is 15% chance for retro and that it is not an indication of unsuccessful surgery.
Keep us informed on how things go.
Age 43: Onset June 2005, Initially: perineal pain, discomfort in penis, very sensitive, sometimes burning. Red around the urethra on penis. Increased urination during night, problems with stream, sometimes constant urge to urinate. Exercise and moving around and laying down helps. Sitting down and squatting makes it worse. Improved to about 85-95%. Symptoms usually mild pain near belly button and slight urge to urinate.
I had surgery for a urethrial valve (skin flap). I still have prostatitis, but that is mild compaired to living with a major bladder restriction. If a person has very weak flow it will greatly magnify the flare symptoms as your bladder has to push very hard to move urine past the restriction. This can lead to some big problems. If a person has a very weak stream, get a cystoscope done as a starting point, and correct the obstruction.
I am not a doctor. Good luck.
I am not a doctor. Good luck.
Age: 40's | Onset Age: 32 | Symptoms: Golf ball, urgency & frequency, discomfort sitting | Helped By: Trigger point work, fish oils & Prosta Q | Worsened By: Stress
That is great Sleeper!!!
Makes me wonder about my uro as he said I would definitely have retro if it was done "properly". Maybe credentials aren't always enough? He is chief of urology but is also "old school" so to speak. I would guess he is early-mid sixties.
Makes me wonder about my uro as he said I would definitely have retro if it was done "properly". Maybe credentials aren't always enough? He is chief of urology but is also "old school" so to speak. I would guess he is early-mid sixties.
Age: 44 | Onset Age: 41 | Symptoms:Onset-ache in testicles, golfball in rectum, pain in rectum, lower back pain, flank pain, urine retention present-abdominal pain (maybe IBS) with constipation, chronic urine retention | Helped By: hot bathes, massage
| Worsened By: stress, sitting, caffiene, beer, dairy, chocolate, running, yoga
| Worsened By: stress, sitting, caffiene, beer, dairy, chocolate, running, yoga
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Sleeper Service
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- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
Six weeks in and things are much the same - flow rate still excellent and other symptoms a little improved. I think I set myself back a bit by trying to do too much exercise too soon though - on Sunday last I was working on my eliptical trainer and felt a burning pain near the wound site.
There was a bit of blood in the urine (not excessive, just darker coloured than it should be) the next day and as a result my urethra and baldder wound side have been stinging and itchy.
My brother - who is a medic - was visiting yesterday and I told him about it. His response was "You twat! When they say lay off heavy exercise for 6 weeks that's what they mean!". He 'phoned his wife (also a medic) and she said he should slap me for being so stupid!
Ah well, live and learn. I see my Uro in two weeks to update. Judging by articles on TUIP/BNI I'm about where I should be just now. TUIP takes longer to show symptomatic improvement than TURP so it'll be a few weeks or months yet until I see the full benefit.
Almost forgot to mention, there's another delightful symptom I have - which is common to TURP/TUIP/BNI - and that's a frequent feeling that I need to take a dump. Apparently this is a good sign as it indicates everything is reshaping but it ain't half annoying!
No more exercise for me in the meantime!
There was a bit of blood in the urine (not excessive, just darker coloured than it should be) the next day and as a result my urethra and baldder wound side have been stinging and itchy.
My brother - who is a medic - was visiting yesterday and I told him about it. His response was "You twat! When they say lay off heavy exercise for 6 weeks that's what they mean!". He 'phoned his wife (also a medic) and she said he should slap me for being so stupid!
Ah well, live and learn. I see my Uro in two weeks to update. Judging by articles on TUIP/BNI I'm about where I should be just now. TUIP takes longer to show symptomatic improvement than TURP so it'll be a few weeks or months yet until I see the full benefit.
Almost forgot to mention, there's another delightful symptom I have - which is common to TURP/TUIP/BNI - and that's a frequent feeling that I need to take a dump. Apparently this is a good sign as it indicates everything is reshaping but it ain't half annoying!
No more exercise for me in the meantime!
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
Glad to hear you are doing well outside the over doing it.
Cheers...
Cheers...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Astrotitan
- Experienced
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- Joined: Sun Oct 30, 2005 8:05 am
- Location: Australia
Well, I have decided I will book myself in for a BNI. I am seeing the URO in two days time and I will talk options with him, not that are any options left. Xray Urodynamics from a year ago show bladder neck obstruction. The Flomaxtra's effectiveness that I am on is very sporadic. When it works I have next to no symptoms but when it doesn't work it's bad, mainly get bladder pain due to the bladder working extra hard to push urine out and when it does the bladder goes into a spasm. Occasionally I get irritation in the urethra due to urine squirting out at high pressure out from the bladder neck against the walls of the urethra. When I feel this happening I know I am in for a bit of a spell.
I will keep you all informed on my progress.
I will keep you all informed on my progress.
Age 43: Onset June 2005, Initially: perineal pain, discomfort in penis, very sensitive, sometimes burning. Red around the urethra on penis. Increased urination during night, problems with stream, sometimes constant urge to urinate. Exercise and moving around and laying down helps. Sitting down and squatting makes it worse. Improved to about 85-95%. Symptoms usually mild pain near belly button and slight urge to urinate.
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Sleeper Service
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- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
Hope it goes well, Astro.
Just had my 8 week review with my consultant. Obstructive symptoms are pretty much gone - flow remains strong, no intermittency or hesitancy. Irritative symptoms are still there but gradually reducing. My consultant says this is normal - it can take up to a year for symptoms to clear completely. In the meantime I've to begin bladder retraining.
I have an irritation in the urethra which is due to swelling around the incision in the prostate - my incision was actually a unilateral TUIP rather than a mild BNI (the cut extended from just below the urethral orifice to just above the vermontanum and was deep in to the muscle and fossa) so this is normal and should hopefully clear up over the next few months.
Finally, I'm going back to work on 14 May after over a year's absence. Can't wait!
Just had my 8 week review with my consultant. Obstructive symptoms are pretty much gone - flow remains strong, no intermittency or hesitancy. Irritative symptoms are still there but gradually reducing. My consultant says this is normal - it can take up to a year for symptoms to clear completely. In the meantime I've to begin bladder retraining.
I have an irritation in the urethra which is due to swelling around the incision in the prostate - my incision was actually a unilateral TUIP rather than a mild BNI (the cut extended from just below the urethral orifice to just above the vermontanum and was deep in to the muscle and fossa) so this is normal and should hopefully clear up over the next few months.
Finally, I'm going back to work on 14 May after over a year's absence. Can't wait!
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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Astrotitan
- Experienced
- Posts: 115
- Joined: Sun Oct 30, 2005 8:05 am
- Location: Australia
I have booked myself in for BNI early december. My URO said that during the time I am waiting my wife and I could try for our next child. He said its better this way rather than going thru all the hoops doing it the hard way in case I get retro. Alpha blockers have kicked in again and seem to be working so my symptoms are not to bad. Just have to make sure I cut back on the alpha blockers when my wife is ovulating.
Age 43: Onset June 2005, Initially: perineal pain, discomfort in penis, very sensitive, sometimes burning. Red around the urethra on penis. Increased urination during night, problems with stream, sometimes constant urge to urinate. Exercise and moving around and laying down helps. Sitting down and squatting makes it worse. Improved to about 85-95%. Symptoms usually mild pain near belly button and slight urge to urinate.
Good luck with trying for your next child. I find my greatest strength and determination to get well from this condition is motivated by being with my children.Astrotitan wrote:I have booked myself in for BNI early december. My URO said that during the time I am waiting my wife and I could try for our next child. He said its better this way rather than going thru all the hoops doing it the hard way in case I get retro. Alpha blockers have kicked in again and seem to be working so my symptoms are not to bad. Just have to make sure I cut back on the alpha blockers when my wife is ovulating.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
Ten weeks in and my symptoms continue to change, mostly for the better.
At the moment my main symptoms are an ache in the glans and feeling of needing to make a bowel movement when I pee. Frequency is about once every two to four hours unless I bolt a large coffee or two in which case it's about once every hour to an hour and a half until the caffeine gets through me. I sleep through the night and no longer have to try and force everything out before going to bed. Ejaculate is normal most of the time although I've had one partial retro.
I'm back at work (just half days for now) and find that the busier I am the less noticeable things tend to be. Symptoms tend to get worse as the day goes on but never approach what they were like pre-op.
The ache ranges from barely noticeable (particularly from, say, getting up until about lunchtime) to annoying (usually about 5-8 p.m.) I did ask my Uro about this ache (which at the time was a sharp pain and a feeling of having a pea stuck in my glans) and the full bowel feeling and he felt that my prostate was probably irritated by the surgery and the previous year and a half of symptoms. He feels it should go down as the time goes by - even in fairly straightforward cases it can take up to three months or so to settle and I'm just over the two month mark by a week. He did mention it can sometimes take up to a year for things to settle down though.
So, not too bad at the moment. Just need to be patient and take my vits.
Will keep you updated. Hopefully a success story is just around the corner but I'm not going to tempt fate. I've had a year and a half of this crap (and, in all honesty, a lot more years of minor symptoms that I just didn't recognise) so I can handle a some more months of it.
In general, feeling a lot better. I would say I've gone from a 5 to just over a 2 on the IPPS QoL scale.
At the moment my main symptoms are an ache in the glans and feeling of needing to make a bowel movement when I pee. Frequency is about once every two to four hours unless I bolt a large coffee or two in which case it's about once every hour to an hour and a half until the caffeine gets through me. I sleep through the night and no longer have to try and force everything out before going to bed. Ejaculate is normal most of the time although I've had one partial retro.
I'm back at work (just half days for now) and find that the busier I am the less noticeable things tend to be. Symptoms tend to get worse as the day goes on but never approach what they were like pre-op.
The ache ranges from barely noticeable (particularly from, say, getting up until about lunchtime) to annoying (usually about 5-8 p.m.) I did ask my Uro about this ache (which at the time was a sharp pain and a feeling of having a pea stuck in my glans) and the full bowel feeling and he felt that my prostate was probably irritated by the surgery and the previous year and a half of symptoms. He feels it should go down as the time goes by - even in fairly straightforward cases it can take up to three months or so to settle and I'm just over the two month mark by a week. He did mention it can sometimes take up to a year for things to settle down though.
So, not too bad at the moment. Just need to be patient and take my vits.
Will keep you updated. Hopefully a success story is just around the corner but I'm not going to tempt fate. I've had a year and a half of this crap (and, in all honesty, a lot more years of minor symptoms that I just didn't recognise) so I can handle a some more months of it.
In general, feeling a lot better. I would say I've gone from a 5 to just over a 2 on the IPPS QoL scale.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
Cheers sleeper, way to hang in there. Seems like your quality of life is slowly improving.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
Thanks - I've spoken to my Urologist who feels that some of the remaining symptoms could be down to an attack of prostatitis. I've to give it a couple of weeks and if no change we'll try antibiotics.
Normally I wouldnt' be too sure of this, but my prostate has had a deep incision in it and isn't too happy as a result. In the meantime I will try Quercetin for its anti-inflammatory properties (which is what the ABX will be for I imagine).
EDIT: Have ordered a months supply of any accredited quercetin product (plus I get 30 any accredited quercetin product for free!). $70 - about £37 so not too bad.
Normally I wouldnt' be too sure of this, but my prostate has had a deep incision in it and isn't too happy as a result. In the meantime I will try Quercetin for its anti-inflammatory properties (which is what the ABX will be for I imagine).
EDIT: Have ordered a months supply of any accredited quercetin product (plus I get 30 any accredited quercetin product for free!). $70 - about £37 so not too bad.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
Sleeper what were your original symptoms? Your profile is now post-op and it doesnt mention how you felt before.
Age:33 | Onset Age: 30 | Symptoms: burning urethra after urinating, followed by rush to urinate again, frequency, pain under left testicle, perineum pain. | Helped By: NSAID's, Hot Bath | Worsened By: Stress, Sitting and unknown reasons (seems to come every 2 weeks).