Possible Help for CPPS in Toronto

bellowbellow · Post by **bellowbellow** » Tue Apr 24, 2007 5:50 pm

I managed to get a referral to the Murray Koffler Urologic Wellness Centre at Mount Sinai Hospital and had my first visit, which included a physical exam (blood, urine, pros. fluid) and a thorough history; they're also going to review all of the tests my uro has done over the past few years. What was most promising about my visit was that the uro who examined me was a strong proponent of the SP and was encouraging patients to read HITP... he referred to my condition as chronic prostatitis / chronic pelvic pain syndrome (first time I've heard those words from a uro!) and he indicated that they are now doing trigger-point release, among other non-traditional treatments, in their Prostatitis Clinic, which I will be attending following my next appointment with the uro... the centre itself is state-of-the-art, absolutely beautiful... anyway; at least they're speaking SP language... I've had my hopes raised and dashed many times over the past 6 years, I'm fairly guarded about any new treatment foray I make, however I thought I'd share this positive experience and I'll keep everyone updated.....

Howden · Post by **Howden** » Tue Apr 24, 2007 7:58 pm

Hi bellow. You're on to a good thing. I have been attending the Koffler Clinic (so different than the usual crowded, too clinical uro's offices). Very thorough, very helpful. Always a warm reception. It is through the Koffler, and the Mt. Sinai Wasser Pain Centre that I got to try most of the therapies we read about on this site. I also got some relief from them. The Koffler and Wasser Clinics are associated, referring patients to each other. I went to the Wasser Pain Clinic, because three years ago it was the only pain centre that referred to 'CPP in men' in its descriptive. It was actually the doctors at the Wasser Clinic who referred me to the Koffler. And it was through one of the nurse practitioners at the Wasser that I found the SP and this site. I had internal trigger point therapy at the Wasser, and it was working. Unfortunately, I had as much of the physio's time as she could afford to give to one patient. She advised me to continue working on myself, but my key tp is deep and I cannot reach it properly. I will eventually try to see the physio again, but in the meantime I'm still chasing that elusive and independent Toronto physio who does internal work; she must be out there somewhere. I wish you good luck at the Koffler. By the way, as I said, my internal tp was done at the Wasser Clinic. If you get internal tp at the Koffler please let me know; that would be a different physio.

bellowbellow · Post by **bellowbellow** » Tue Apr 24, 2007 8:39 pm

Will do....

SickofCP · Post by **SickofCP** » Wed Apr 25, 2007 8:08 pm

I am glad that things have changed there since I went there 3 years ago. At that time they knew nothing of the SP, and gave me a confused look when I asked about physical therapy of the pelvic floor.

However, since DW knows nothing of these therapists (and knows Toronto well, being from the area), I would be skeptical at their skill level. I know nothing of these therapists at Mount Sinai, but I do know that the therapists in Ontario that do internal work are generally osteopaths. I don't believe that PT's are licensed in Ontario to do this. Osteopathic therapy tends to be much too gentle to deactivate stubborn trigger points. They do gentle tugging at the muscles. If somebody can tell me that I am wrong, I would be pleased.

They also get very focused on Kegels, biofeedback, and the likes. These therapies are not helpful to someone riddled with trigger points in their pelvic floor.

Howden · Post by **Howden** » Wed May 09, 2007 7:35 pm

Hi SickofCP. I believe you're right when you say internal work is the domain of osteos and not of physios in Canada. I can only assume that a hospital based physio has some sort of dispensation if he/she is working under the supervision of a MD. I don't really know. She was helping though; I had about 6 weeks on two different occasions. During that time she checked for trigger points, but was working on only one of them. I had known before I saw her that I had a tp in that spot and felt it was, if not the only tp, it was certainly a key one. There has to be someone in this province who can help, so I keep looking.