Was: Feeling Hopeless...Now: Feeling Hopeful
-
bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Thanks for the words of empathy Carl.... this past week I've completely immersed myself in work, waking up at 6am, getting to work as soon as possible and staying late... consequently I've been eating like crap, sitting for long periods of time at my computer and doing nothing in the way of following my protocol except stretching at night... the irony, or confounding part, of all this is that my symptoms have been getting progressively better... go figure? Could it simply be that I'm occupying my mind on other things and ignoring my symptoms? Or is it possible that my hyper-constant-awareness of, and hyper-sensitivity to, my symptoms is responsible for making them worse and that by removing this component I've eliminated the source of some of the pain? Certainly things to mull over.... on the marriage front things were a bit warmer this week, which also helped.... take care.
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
Your welcome BB, wish I could give some sound advise for your marriage. I really hope you can both lovingly work it out for the sake of your children and your relationship.
I would think it's not uncommon when you become distracted that symptoms and as I call it hyperfocusing will subside or decrease.
Be careful that you don't over do you work and not become present for your family. Not my business, but you can get distracted by jumping into your family life as well and be there for them also, and not be aware of your symptoms that way as well.
I would think it's not uncommon when you become distracted that symptoms and as I call it hyperfocusing will subside or decrease.
Be careful that you don't over do you work and not become present for your family. Not my business, but you can get distracted by jumping into your family life as well and be there for them also, and not be aware of your symptoms that way as well.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
-
bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Thanks again for the advice and kind words Carl... in the midst of all the turmoil at home, my wife and I somehow had sex a couple days ago and forgetting to really ease my pelvic muscles at the time of ejaculation, I've thrown myself back into a flare... as I type this, that old burning sensation has revisited me with a vengeance and so I'm back to baths and more stretching and eating better and moment-to-moment relaxation... the actual ejaculation was quite painful... a sharp pain followed immediately by burning at the tip of my penis (doesn't that sound pleasurable?)... I really must find a way to quiet things down in my life... I mean really quiet things down both in the way I think (an intense focus on all the things I don't have or haven't achieved) and in the way I work or the way I avoid working at certain things, the way I keep so many of my feelings and thoughts and fears from my wife... otherwise I fear I'll be on this roller-coaster for quite a lot longer.... I really envy those men on this website who have made these healthy changes in their lives and have surrounded themselves with loved ones who will support them through the ups and downs of this condition... I'm afraid I've used up most of the empathy/compassion/support in my marriage by being too withdrawn, too self-absorbed, never present... Perhaps I'll be one of those people who in a couple years write about how they've taken charge of their lives, made lots of healthy changes, started over again with a new partner and are 90% symptom-free... Of course the thing about those people is the pain (not just physical) of change and self-awareness they had to go through to get to that point.... I'm getting close to bottoming-out, which is probably the first step....
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
Sorry to read about the flare - but at least you know what caused it and it will also quieten down again in time. Frustrating though.
It must be difficult doing this without the full support of home - I know how lucky I've been with my wife and I don't underestimate the strength that has given me.
I'm sure that in 18 months time though we will see you posting here, not about your own symptoms but responding and offering advice to posts that start "I don't know if this is an appropriate use of this forum or not.... I've been suffering from prostatitis for the.......".
Richard.
It must be difficult doing this without the full support of home - I know how lucky I've been with my wife and I don't underestimate the strength that has given me.
I'm sure that in 18 months time though we will see you posting here, not about your own symptoms but responding and offering advice to posts that start "I don't know if this is an appropriate use of this forum or not.... I've been suffering from prostatitis for the.......".
Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
-
LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
BB,
Yeah, sorry about the flare. That kind of coming and going happened with my brother. The trick is to stick with the program in the long haul.
Yeah, sorry about the flare. That kind of coming and going happened with my brother. The trick is to stick with the program in the long haul.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
-
bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Thanks as always for the kind words Scotsman and Lightning Tree... I'm still bummed out in general and so forgive me for using this post to vent about depressing repetitive stuff.... my latest flare has flared out a bit and the pain has diminished... there's also been more peace in my home and my wife and I have been making an effort to talk, go out and become friends again... as far as my CP goes, I'm stuck in maintenance mode; I'm pretty much symptom-free for an hour or two in the morning (even when I take my usual trip to the washroom in the middle of the night)... gradually through the day the symptoms increase, especially when I find myself in long meetings sitting on a hard chair, until they become quite distracting and intense during the drive home and during dinner until I stectch, take a hot bath and a valium.... I guess I should call it a maintenance cycle because I'm doing just enough to keep the pain from debilitating me but not enough to make any substantial long-term gains... I still haven't tried physio and I'm still carrying on an endless internal debate about whether or not I can afford to see Dr. Wise... I'm again petrified of masturbating or having sex because the last time, even while consciously relaxing my pelvic muscles before, during and after ejaculation, the whole "event" (it happens as often as an eclipse so I think my sex life has now reached "event" status) was painful and left me reverberating in acute pain for about a week..... not that it matters much given the increasing lack of sensation in my cock...I wonder when I'll really dedicate myself sincerely to a journey to find peace and relief in my life?.... I used to think my CP was the worst thing in the world when all I had was frequency issues; now I have almost normal frequency (though still a weak stream) but an everpresent intense buring sensation that makes me long for the days when all I battled was the constant urge to have a piss... anyway, I'm seeing a shrink, stretching, trying to relax as much as possible and not taking any painkillers; I guess if my outlook was a bit better I would recognize the gains I've made...
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
-
bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Haven't added to this thread in quite a while.... it was very helpful when I first joined the forum (in fact it was my therapy and I'm forever indebted to those who took the time to help me with kind words) but now I find it more helpful to read the other posts and the advice of those who have been around longer than me, chiming in whenever I think I have something useful to say.....
The reason I'm posting today is that my symptoms have become somewhat predictable and tolerable and I think I know how to avoid making them worse... I stretch every day, run a few times a week, continue to do moment-to-moment relaxation, take a hot bath every night, see a shrink, watch my diet, take vitamins etc... my big problem is that every time I masturbate or have sex, my symptoms flare up for at least 7 days (intense burning in the tip of my penis and perineum, all the muscles feel constricted to the point where I can't empty my bladder... the pee dribbles out)... I know how to relax all my pelvic muscles during sex and especially during ejaculation and do not thrust but just let things happen... however the ejaculation itself hurts like hell and then the symptoms start to build....
Currently it's been 2 weeks since I've ejaculated and my symptoms are minimal, even with gaps when I feel almost normal...
I'm wondering if I should ejaculate every other day for a while and see if I can simply clean things out and work through the flare (this is something I've always wondered because I used to do it every day without a problem) or if I should even try to ejaculate every day... then sometimes I think I should just stop having sex or masturbating altogether but this is a big loss for me...
Any help, suggestions, advice would be greatly appreciated.
The reason I'm posting today is that my symptoms have become somewhat predictable and tolerable and I think I know how to avoid making them worse... I stretch every day, run a few times a week, continue to do moment-to-moment relaxation, take a hot bath every night, see a shrink, watch my diet, take vitamins etc... my big problem is that every time I masturbate or have sex, my symptoms flare up for at least 7 days (intense burning in the tip of my penis and perineum, all the muscles feel constricted to the point where I can't empty my bladder... the pee dribbles out)... I know how to relax all my pelvic muscles during sex and especially during ejaculation and do not thrust but just let things happen... however the ejaculation itself hurts like hell and then the symptoms start to build....
Currently it's been 2 weeks since I've ejaculated and my symptoms are minimal, even with gaps when I feel almost normal...
I'm wondering if I should ejaculate every other day for a while and see if I can simply clean things out and work through the flare (this is something I've always wondered because I used to do it every day without a problem) or if I should even try to ejaculate every day... then sometimes I think I should just stop having sex or masturbating altogether but this is a big loss for me...
Any help, suggestions, advice would be greatly appreciated.
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.
-
scoobysnacks
- Retired Mod
- Posts: 696
- Joined: Tue Jan 20, 2004 4:51 am
- Location: USA
- Contact:
You symptoms are classic for CPPS, and its a classic sign you have it when it hurts like shit to orgasm and then orgasm flares you.
I do not recommend daily ejaculation.
Are you doing internal work with someone? For me that has been vital to getting rid of this.
Regards,
Ss
I do not recommend daily ejaculation.
Are you doing internal work with someone? For me that has been vital to getting rid of this.
Regards,
Ss
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
Definitely look into trigger point release and physical therapy if you haven't done so already. I would suggest reducing the frequency of ejaculation (personally I only test those waters once or twice a month to see where I'm at). No need to eliminate it, just take it easy on those poor muscles
I'm not a doctor, yet.
Age: 19 | Onset Age: 17 | Symptoms: Various waning uncomfortable sensations, urgency and frequency. Also this mean anal fissure that doesn't want to heal up. | Helped By: Stanford/Wise-Anderson Protocol, chilling out, fun, relaxation, stretches. | Worsened By: Too much effort, exercise, ejaculation, uncomfortable situations.
Age: 19 | Onset Age: 17 | Symptoms: Various waning uncomfortable sensations, urgency and frequency. Also this mean anal fissure that doesn't want to heal up. | Helped By: Stanford/Wise-Anderson Protocol, chilling out, fun, relaxation, stretches. | Worsened By: Too much effort, exercise, ejaculation, uncomfortable situations.
-
bellowbellow
- Intermediate Member
- Posts: 67
- Joined: Tue Dec 26, 2006 2:59 am
- Location: Toronto
Thanks Scoobysnacks and Scott.... ejaculation is the worst trigger for me and almost always causes a flare.... what I've never tried is to regularly ejaculate (usually I just stop because of the flaring of burning pain) ... so I'm going to try something different... perhaps not everyday but every other day... I'm trying it now... I've been feeling so clenched up in my pelvis and so congested but I'm going to persist for a while anyway.. at least a couple weeks... I'll let everyone know how this works out... given the persistent pain cycle I find myself in, I feel I don't have much to lose at this point...
With respect to your question about trigger point work... no-one in Toronto does it so I'm on my own.. I haven't felt confident or knowledgeable to do it myself yet... perhaps soon...
With respect to your question about trigger point work... no-one in Toronto does it so I'm on my own.. I haven't felt confident or knowledgeable to do it myself yet... perhaps soon...
44 years old. Chronic Prostatitis (onset age 38) for 6 years. In the midst of worst flare-up of my life. Tried all conventional methods without success. | Symptoms: Severe burning on tip of penis, burning between rectum and scrotum. Meds: Hytrin, Atavan, percocet (all at night). Natural Meds: Quercitin, Vitamin C and E and B Complex, Niacinimide, Salmon Oil, Garlic supplement, cranberry extract, concentrated liquid chlorophyll. | Helped By: warm baths, stretching, running. | Worsened By: not sure but suspect unhealthy eating, stress, negative thoughts.