Bright urine & flares

Male pelvic pain, prostatitis, IC
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GP2
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Bright urine & flares

Post by GP2 »

I am flaring today & my urine is back to clear coloured. I know when I am not flaring my urine is bright yellow. This happens due to the inflammatory cells being released in the urine I know that - hence the bright colour.

Now I'm wondering if in fact my good progress over the last 10 days or so is simply down to quercetin / my phytotherapy regime?

I hope not in a way because that would mean the underlying dysfunction is very much still there and that I'm just treating the symptoms.

I dont think this is the case but it is hard to estimate. Could a gluten free diet for those who are intolerant cause inflammatory cells to be released & consequently cause bright urine?

Also, is bright urine an indication of progress for men who are partaking in the SP? Do inflammatory cells get released in your urine as a result of any successful treatment (not just phytotherapy) i.e. stretching, TP work?

I still think stretching, meditation, a GF diet, TP work (albeit occasional at the moment), anxiety management is helping me a lot. I sometimes just find it hard to estimate what is working & what is not. :roll:

I know you have to give it all time & be patient & I will. Its just weird how I'm flaring badly today after some remarkably pain free days. No stress / anxiety (bar subconscious last night in the bar perhaps), perhaps gluten but dont think its a dietary flare. chronic prostatitis / chronic pelvic pain syndrome is hard to predict I know. Its just that sometimes my flares really puzzle me when they are so out of the blue!

What are your experiences people in the know?

Thanks for listening

Greg
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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alprost
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Re: Bright urine & flares

Post by alprost »

GP2 wrote:I am flaring today & my urine is back to clear coloured. I know when I am not flaring my urine is bright yellow. This happens due to the inflammatory cells being released in the urine I know that - hence the bright colour.
This is probably due to the fact you are taking supplements of B vitamins -when the excess is excreted in your urine, this is a common observation.
This is not Medical advice - Consult your Doctor!

Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.

****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!

Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
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Post by scoobysnacks »

Bright urine = dehydration many times or extra supplements in the stream as pointed out.

Clear = hydration.

I would think maybe your lack of symptoms and clear urine is due to ingesting enough water to keep the urine unconcentrated. When you dont ingest enough water, it gets more potent, and thus causes burning. Just a thought.

Keep hydrated, too.

Regards,

Ss
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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alprost
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Post by alprost »

scoobysnacks wrote:Bright urine = dehydration many times or extra supplements in the stream as pointed out.
Dehydration always causes urine to darken in colour, not brighten. If it is bright it is much more likely to be the supplements.

If this regularly coincides with a worsening of symptoms, it might be a good idea to give the supplements a miss for a few days to see if this helps. The chances are if you eat a good diet you will get all of the b vitamins you require.
This is not Medical advice - Consult your Doctor!

Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.

****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!

Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
GP2
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Post by GP2 »

Just to clarify - I flare when my urine is clear

Thanks Alan

the thing is I'm gluten intolerant. I'm sure of that now. An awful lot of people with celiac / gluten intolerance have absorption problems and I believe that that is the case with me. I have massive problems when I stop taking calcium & magnesium for a couple of days. Same with Vit B. Vit B12 is vital for some celiacs because it is often not absorbed properly.

I believe that gluten intolerance has contributed maybe massively to my CPPS. Not only did it directly cause years of chronic IBS which caused rectal tightness & stomach clenching (due to the pain in my tummy) it also can influence your nervous system so much that anxiety / depression can be the result. I am not saying that gluten has caused all my problems and I know that my anxiety / upbringing / genetic disposition would have possibly caused chronic prostatitis / chronic pelvic pain syndrome regardless of a gluten intolerance. However, when you look at how gluten affects the intolerant individual it is alarming & over time it only gets worse!

I have had - IBS, muscle weakness, nausea, eye twitches, mouth ulcers, peripheral neuropathy, fatigue, eczema, balance problems, possibly anxiety for years all I believe caused by gluten.

Am I already feeling more alert, sharper & calmer than I ever have done!

This is just the start - schizophrenia, dementia, CFS, anemia, fibromyalgia, stomach cancer have all proven links to gluten intolerance. Visit celiac.com & you'll see what damage gluten has done to many people who were wrongly diagnosed for years.

To be honest even if I wasn't gluten intolerant I would consider getting off gluten. It really isn't good for humans & is more commonly untolerated than you might think!

Greg
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by carld »

Greg I was curious, are you taking any antihistamines?

Also glad you are off gluten, it really does effect many people. I'm trying to slowly back off of it for the reason that we humans were not meant to ingest it period. Even if I don't have major reactions to it. I still think it plays a roll in my health. Peace...


Carl
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Post by GP2 »

Carl,

I occasionally take citirizine (basic generic cheap version) but I really couldn't tell you if they help me. I perhaps should incorporate them into my treatment plan particularly as I have diet issues.

I have been very dedicated with the GF diet. Funny because I wrote a post recently where I was concerned at my issues with a lack of self-discsipline. I've proved that I can be disciplined. I thought that Id bemoan no more beer & bread but I just remember that health is more important! Plus I'm getting into my cider now :wink:

I wouldn't try too much at once though Carl. You seem to be doing well on the SP where as my trigger point work is on the agenda but not until I get more established on the GF diet. The GF diet knocks your system about for months until you stabilize so for now this is my priority although I stretch every day, see a PT once a month, practice meditation. In time I may have to up my game with the SP I realize that. But my belief is that I'm going in stages towards full health -

1. Anxiety / stress relief - A lot of success. My therapist thinks I'm done now seeing her & I really feel more whole than ever before :P
2. Lifestyle changes - only drink once a week, rest & reading time more often, church work, (I have been lazy with my exercise protocol though :oops: )
3. Stretching & meditation - not the complete SP but a good start & slowly getting these habits to be a constant part of my life.
4. Gluten / wheat elimination
5. A more comprehensive SP.

My theory is that I couldnt manage all these things at once & that it would have overwhelmed me. I also believe that with a healthier body (without gluten poisoning me & less stress through meditation/stress relief) the SP will be more effective when I give it a proper (not half-hearted) attempt!

Be well!

Greg
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by carld »

That's wonderful Greg!!! You are very much on the right track. It's very inspiring. You are going to do very well, because for us, anxiety is the fuel. As a matter of fact, anxiety is the fuel for every person's illness.

I look at all my friends that still party real hard, drinking 12 packs at a sitting etc...I ask them and myself, what is it that they are masking to have to slam themselves all the time. It's not like it was when we were kids pounding beers, smoking pot, or just partying real hard. We were always able to recover, but you grow up. It doesn't mean you have to be a stiff...Just learn to deal with your issues is the way I see it. CHEERS MATE! as you UK folks say. In Los Angeles we say right on Bro!!! Later...


Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Check the cider

Post by Richie »

Booze = high followed by crash and anxiety for me about 24-48 hours later. The anxiety is not really noticeable but ITS THERE IN YOUR SUBCONSCIOUS.

You mentioned you were at the bar. Just a guess.

I can absolutely count on a flare up 24-48 hours from drinking.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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Re: Check the cider

Post by carld »

Richie wrote:Booz = high followed by crash and anxiety for me about 24-48 hours later. The anxiety is not really noticeable but ITS THERE IN YOUR SUBCONSCIOUS.

You mentioned you were at the bar. Just a guess.

I can absolutely count on a flare up 24-48 hours from drinking.
I just try and stay away from booze right now. I did have a 1/2 glass of wine on valentine's day. Felt great!!! So If I just have a drink from time to time, I can really enjoy it. :wink:
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Post by Ginty »

I agree with the carld Greg, this is very inspiring stuff, well done.

You really do sound similar to me in your symptom profile and you are inspiring me to give the wheat/gluten elimination a real shot. In the past I've only half-heartedly done it and I did have some success.

Also I think I get the clear urine thing when flares are at their worst as well, almost like my body can't hold water.

You know I'm peeing like I've been drinking pints of water all day when in fact I haven't. Also at these times my health anxiety also seems to be at its worst because I remember in the past being convinced that this was a sign that my kidney's were shot and could not process water or something.

So as ever it is good to hear that maybe someone has something similar.

Cheers,
Stephen
Age: 29 | Onset Age: 18 | Symptoms: burning thighs, lower back, increased urination, cloudy urine | Helped By: sorting my head out (Generalized Anxiety Disorder (GAD)), forgetting about it | Worsened By: wheat, stress/anxiety
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Post by Plato »

GP2,
You saying you have flares when your urine is clear made me remember something: a doctor once told me that if you drink too much water and pee too much, your urethra will burn from too much water, which, incidentally, is the same reason why diarrhea often burns. I've noticed that my urethra burns with too little water because of all the supplements I'm taking, and with too much, too. I have no idea if this is applicable to you, but thought I'd mention it.
Age: 29. Onset: 28 (June 2006). Pain in pelvis between scrotum and anus. Burning sensation in urethra. Sometimes urethra is inflamed. Quercetin helps a lot, as does heat.
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Post by carld »

Plato wrote:GP2,
You saying you have flares when your urine is clear made me remember something: a doctor once told me that if you drink too much water and pee too much, your urethra will burn from too much water, which, incidentally, is the same reason why diarrhea often burns. I've noticed that my urethra burns with too little water because of all the supplements I'm taking, and with too much, too. I have no idea if this is applicable to you, but thought I'd mention it.
Very interesting point. I always thought the diarrhea burns were from having to wipe your self after so many bathroom visits. :wink:
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Post by Gav »

carld wrote:
Plato wrote:GP2,
You saying you have flares when your urine is clear made me remember something: a doctor once told me that if you drink too much water and pee too much, your urethra will burn from too much water, which, incidentally, is the same reason why diarrhea often burns. I've noticed that my urethra burns with too little water because of all the supplements I'm taking, and with too much, too. I have no idea if this is applicable to you, but thought I'd mention it.
Very interesting point. I always thought the diarrhea burns were from having to wipe your self after so many bathroom visits. :wink:
My experience of clear urine and burning in the urethra is the same as Plato here. The burning can occur through too little or two much drinking. Also I have to agree with a post above that says pee gets bright yellow with supplements and it gets darker when dehydration sets in. That's exactly how I experience things.

Also, the burning from diarrhea is definitely because you are outputting a lot. I have IBD and have to empty when having a colonscopy (which is always pleasant), so get to have that lovely laxative the day before and the burning you get from using the toilet so often can be "interesting" to say the least!
Age: 41 | Onset Age: 30 Symptoms Initially: Urine frequency, Rectal Pain, Bladder Pain, Penile Pain, Numb Inner Thigh Pain, Constipation, Fever. Symptoms now: None | Helped By: Resolution of phimosis /Elavil, Stretches. Worsened By: Stress Stress Stress!
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