Doing a research on the forum, I've found many threads about ED but most of all were a bit pessimistic. I admit to be quite scared, my erection has not been the same for some time, I still can have sex but it's more problematic than before. So I'd like to know if there are people who got their erection back after attending the Stanford/Wise-Anderson Protocol. Any new on the subject is very appreciated.
Thanks.
a question about erectile dysfunction
a question about erectile dysfunction
Age: 28* | Onset Age: 24, with mild symptoms* | Symptoms: penis and bladder burning, anus and rectum burning* | Helped By: B12 supplementation* | Worsened By: got worse after antibiotics cycles
oh YA, for me, it felt like weak electrical shock when I walk. Not all the time though, this symptom comes and goes along with other chronic prostatitis / chronic pelvic pain syndrome symptoms.jj77 wrote:Other question: is pain in the penis a common issue in CPPS?
Age: 38 Onset: April 2006 Current | Symptoms: Update, doctor found no hemorroid but pruritus ani. Was doing very good for a while but lately are having more flares. | Symptoms: raw, irrated feeling, spams in balls and bladder area. Drugs: Omega 3 oil only and just started Prosta-Q in Feb 2008, currently not taking Prosta-Q. Treatment: relaxation, AHIP stretches, the book EVERYDAY ZEN, Worsened by: Coffee (not 100% sure)
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LightningTree
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jj77,
CPPS is a syndrome, and not a disease, meaning that it has an unknown cause and is identified by a group of symptoms. In this case, that symptom class is chronic pelvic pain.
If you mostly have ED, and experience pangs in penis from time ot time, like an electrical shock, then I would suggest that this is not CPPS. Instead, I would argue that it is ED.
There are members here with ED. Maybe they have a comment, but I can personally offer no advice. I have no experience with erectile dysfunction and CPPS. My symptoms have been purely pain related. In fact, pain is the primary factor in my CPPS, and I have never had erectile problems, although I have had uncomfortable erections and significant pain after ejaculation.
Just want to make that clear before we continue.
Your profile suggests you pain in the glans and rectal pain. This is fairly common. Although, I think you will find many members have penile pain along the urethra in the penis (the tube in your penis that urine and semen come from) and also towards the tip of the penis (in the glans). My experience with pain there was a consistent burning with intermittent rippling sensations and feelings of intense numbness and cold. This lasted for 4 months and occurred occasionally for at least a year. The urethral burning came and went over 2 years, with most of it in the first year.
I had rectal and perineal symptoms for a year.
I can tell you that when I started to recover, I could 'feel' the blood 'gurgling' through my penis when I had an erection. This was not normal. Since I have further improved, this 'gurgling' went away. I'm assuming this was improving blood flow through either angiogenesis or the opening up of compressed blood vessels, but I don't really know. This might relate to physical ED.
Have you done the nighttime tape experiment? Place tape around your penis when you go to bed and see if it is broken (by an erection) when you sleep. This can indicate whether you can physically get an erection or not, since they happen spontaneously while you are asleep.
CPPS is a syndrome, and not a disease, meaning that it has an unknown cause and is identified by a group of symptoms. In this case, that symptom class is chronic pelvic pain.
If you mostly have ED, and experience pangs in penis from time ot time, like an electrical shock, then I would suggest that this is not CPPS. Instead, I would argue that it is ED.
There are members here with ED. Maybe they have a comment, but I can personally offer no advice. I have no experience with erectile dysfunction and CPPS. My symptoms have been purely pain related. In fact, pain is the primary factor in my CPPS, and I have never had erectile problems, although I have had uncomfortable erections and significant pain after ejaculation.
Just want to make that clear before we continue.
Your profile suggests you pain in the glans and rectal pain. This is fairly common. Although, I think you will find many members have penile pain along the urethra in the penis (the tube in your penis that urine and semen come from) and also towards the tip of the penis (in the glans). My experience with pain there was a consistent burning with intermittent rippling sensations and feelings of intense numbness and cold. This lasted for 4 months and occurred occasionally for at least a year. The urethral burning came and went over 2 years, with most of it in the first year.
I had rectal and perineal symptoms for a year.
I can tell you that when I started to recover, I could 'feel' the blood 'gurgling' through my penis when I had an erection. This was not normal. Since I have further improved, this 'gurgling' went away. I'm assuming this was improving blood flow through either angiogenesis or the opening up of compressed blood vessels, but I don't really know. This might relate to physical ED.
Have you done the nighttime tape experiment? Place tape around your penis when you go to bed and see if it is broken (by an erection) when you sleep. This can indicate whether you can physically get an erection or not, since they happen spontaneously while you are asleep.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
tip of penis pain
I got a new pain today.
The tip og my penis is really sore and tender when I squeeze it.
So the pain is not deferred pain
Does this sound a chronic prostatitis / chronic pelvic pain syndrome pain?
gifford
The tip og my penis is really sore and tender when I squeeze it.
So the pain is not deferred pain
Does this sound a chronic prostatitis / chronic pelvic pain syndrome pain?
gifford
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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LightningTree
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Hey gifford,
Pain in the tip of the penis can be part of CPPS. But not necessarily. chronic prostatitis / chronic pelvic pain syndrome has more to do with whether the pain is chronic in nature, generally 6 months or more.
But with CPPS, as you probably know, it is common for the pain to move around. If you recently got pain up there, it might be a good idea to see your Urologist, anyway, just to check for a UTI or STD. However, it would not be uncommon for someone with chronic prostatitis / chronic pelvic pain syndrome to gain pain in the glans (around the top of the penis). And that pain can be pretty bad, like an intense burning.
As for whether pain in the tip of the penis can be referred or not, I'm not certain. But I do know that my referred pain on the pelvic floor responded to pressure from sitting.
Pain in the tip of the penis can be part of CPPS. But not necessarily. chronic prostatitis / chronic pelvic pain syndrome has more to do with whether the pain is chronic in nature, generally 6 months or more.
But with CPPS, as you probably know, it is common for the pain to move around. If you recently got pain up there, it might be a good idea to see your Urologist, anyway, just to check for a UTI or STD. However, it would not be uncommon for someone with chronic prostatitis / chronic pelvic pain syndrome to gain pain in the glans (around the top of the penis). And that pain can be pretty bad, like an intense burning.
As for whether pain in the tip of the penis can be referred or not, I'm not certain. But I do know that my referred pain on the pelvic floor responded to pressure from sitting.
Last edited by LightningTree on Thu Sep 07, 2006 8:51 pm, edited 2 times in total.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
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Sleeper Service
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LightningTree
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Thats interesting and convincing, Sleeper. Thanks for the info.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
tip of penis Pain
What is different about this pain in the tip of my penis is that it only hurts when I touch it or my penis rubs against soething. This is unlike other chronic prostatitis / chronic pelvic pain syndrome pain I have experienced. If pain is a result of chronic prostatitis / chronic pelvic pain syndrome (tension , muscle pain) wouldn't I feel pain at other times than just when I touch it?
Gifford
Gifford
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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LightningTree
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Two things:
1) chronic prostatitis / chronic pelvic pain syndrome isn't necessarily caused by muscle pain and tension, that is just a theory. So if a symptom doesn't fit the popular theory, that doesn't mean it isn't part of CPPS.
2) It could be part of CPPS. I have had pain that only hurt when pressure or touch was present.
But as it is a new symptom you should probably see a doctor to make sure it isn't something different. It could be something different, something important, and something you should get treated.
1) chronic prostatitis / chronic pelvic pain syndrome isn't necessarily caused by muscle pain and tension, that is just a theory. So if a symptom doesn't fit the popular theory, that doesn't mean it isn't part of CPPS.
2) It could be part of CPPS. I have had pain that only hurt when pressure or touch was present.
But as it is a new symptom you should probably see a doctor to make sure it isn't something different. It could be something different, something important, and something you should get treated.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
penis tip pain, one year aniversary
It looks like that my penile pain that was sore to the touch and sore (not burning) when I urinated was perhaps from my CPPS. It only lasted one day. and left left as abruptly as it came. Really strange. Only change I have seen in 6 months. Tomorrow is my one year anniversary of the onset of my CPPS. My pain is much less now but I always have a constant discomfort in the form of either penis base pain, testicle pain or a feeling of urgency 24/7. Enough to keep me from sleeping at night. Even sleeping meds no longer work. Typically I don't sleep at all for 3-4 days and then crash for about 8- 10 hours from exhaustion. This has been by far the worst year of my life and I am not optimistic that things will change since not much has changed in the last 6 months in spite of relaxing,exercises, PT 21-2 x/week.
Just venting.
Gifford.
Just venting.
Gifford.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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LightningTree
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Thats ok, Giff, feel free to vent, thats important to do.
Two things:
1) You have improved since a year ago
2) I felt the same way at the 1 year mark. I was still questioning whether I was really getting any better or not.
You've got a while to go yet, buddy, so hang in there. Stay mobile and make sure to relax when urinating. Keep up the relaxation work and the stretching.
As for sleep meds, if they are causing you troubles, talk to your doc. They do stop working after a while and many kinds make you dependent on them.
Two things:
1) You have improved since a year ago
2) I felt the same way at the 1 year mark. I was still questioning whether I was really getting any better or not.
You've got a while to go yet, buddy, so hang in there. Stay mobile and make sure to relax when urinating. Keep up the relaxation work and the stretching.
As for sleep meds, if they are causing you troubles, talk to your doc. They do stop working after a while and many kinds make you dependent on them.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
Dr. Guercini observes that, in his experience, venous incompetences appear to be more frequent in chronic prostatitis / chronic pelvic pain syndrome patients than in people who lament other problems, ED included.
I know his status is quite controversial here, but I'm wondering if this can be appointed at muscle tension...
I know his status is quite controversial here, but I'm wondering if this can be appointed at muscle tension...
Age: 28* | Onset Age: 24, with mild symptoms* | Symptoms: penis and bladder burning, anus and rectum burning* | Helped By: B12 supplementation* | Worsened By: got worse after antibiotics cycles