Major flare up after intraprostatic injection (Dr Song)!!

[fjt]

I've recently started PT (internal and external) and had some good progress for about a month. Then about a week ago it hit me again like a ton of bricks. Symptoms are really bad now and don't seem to be settling down at all. The symptoms are as follows: tightness and pain in the rectum (left side). I also have itching and burning sensation. This sensation is the worst in my left testicle, epididymis, anus(left side) and radiates down my inner thigh (left). All my symptoms are in the left side of my body. Even during the PT I can feel the right side feels normal. The therapist told me that the left side feels a lot "different" to the right side. The burning and itching is VERY bad at the moment. This symptoms started after I received an intraprostatic injection (don't ask). I am very very worried about it.

So, why did this flare up occur now and not when I first started PT? Whats with this itching and burning and why did it start after that injection? Has anyone experienced similar symptoms?

I've been doing the stretches and they seem to have helped a bit but the itching and burning get really bad while I am stretching. Sometimes I even feel worse afterwards. The stretches helped more for the tightness and pain in the rectum (near the coccyx).

Any opinions or suggestions will be much appreciated. I need help! Its so bad I am going crazy!!

[webslave]

This symptoms started after I received an intraprostatic injection (don't ask).

I'm afraid I'm going to ask. Please give all details, including name and location of doctor. Die hele waarheid, asseblief.

[fjt]

It was Dr Song. I think you've probably heard of this guy: http://www.prostatitiscure.com. I had chlamydia that I could not get rid of via oral antibiotics. I thought this was the cause of my symptoms (and so did the other doctors I saw). He got rid of it but I am much worse now than before.

Dit is die waarheid. Ek wil daardie doos bliksim!!!

[webslave]

Let this be a lesson to the people who support intraprostatic injections. I think it is a dangerous and usually unsuccessful treatment method. You are not the first person to complain about long lasting negative consequences.

I'm not sure why you have this sudden flare in pain after the injections, in much the same way as the other patients I mentioned did. I can only suppose that a physical injury took place during the treatment, perhaps damage to a nerve. You may have to wait a long time for the symptoms to subside.

Read these:
viewtopic.php?t=1819
viewtopic.php?t=2874
viewtopic.php?t=2467

Ek is jammer om dit te hoor. Die soort skuim is orals. Moet versigtig wees.

[webslave]

You may find this interesting too:

To: "ucpps.men Webmaster"
Sent: Thursday, February 21, 2002 12:31 PM
Subject: Re: Quackery

I'm 33 years old and I have symptoms of frequent urination during the day and during the night since 1995 - 1996. In 1998 I went for the first time to an uro. He said to me that I had chronic prostatitis and that there was nothing to do. He gave me some antibiotics for few days, I felt better (for some weeks) and I stopped thinking of it till 2001. I had no pain, I seldom had a little pain in the pubic region but for few hours, a day at maximum, it depended on what I drunk and ate, I suppose, and I didn't have any sexually-related symptom.

In the first months of 2001 I was navigating on the Internet and I met the

Code: Select all

www.prostatitis2000.org (inserted as code to prevent direct link)

site, and dr. Guercini that promised to cure chronic prostatitis. I told to myself: let's try... It was the biggest mistake of my life.

Dr. Guercini by e-mail said to me that I had to do some culture tests, and I did them. All the cultures and the PCR tests were negative, but I had a positivity: the IgA anti-Chlamydia in my semen (not the Chlamydia, the IgA only). He told me that I had Chlamydia in my prostate and that I needed three injections to cure the chronic prostatitis. I thought that in 3-4 weeks I would have forgotten my symptoms, and I went to Rome for the first injection.

The first injection was made of Zylocaine, gentamicina, bentelan, and was pain-less, as dr. Guercini told me. I didn't think of my prostate in the 2-3 days after the injection, but I noticed that my penis was very very quiescent: I didn't have an erection, even when I woke up in the morning or in the night. I alarmed myself when I realized, after 3 days, that I couldn't have an erection at all, and that I had a big lack of sensitivity in my penis, that was enormously contracted, so contracted to seem "hard". I phoned to dr. Guercini and I asked him what had happened, and he told me that it was all in my head... I told him that he should have to visit me again to see what had happened, and that I was not going to have an other injection before understanding my new symptoms. He told me: if you don't want to have the second injection, don't come to Rome, come back when you'll feel better, when you'll have won your fear... Some days later a great pain in the perineum appeared, so great that I couldn't walk.

Now, I have the same symptoms of frequent urination (the urinary flow has become weaker), and, since the day of the injection (about ten months ago) , I have erectile dysfunction, lack of sensitivity in my penis, and pain in the perineum. Other uros visited me, and noticed a very inflamed prostate, but they can't explain the lack of sensitivity. They are very concerned about me, and they can't say if the injection has increased an existing infection/inflammation, or if something has been damaged by the injection itself. I'm going to do some further examinations to understand better my situation.

So, I recommend all the prostatitis sufferers: DON'T TRY THIS DANGEROUS THERAPY! DON'T TRUST ANYONE WHO PROMISE YOU SOMETHING THAT OTHERS UROS CAN'T PROMISE.

That's all... I assure you that all I said it's absolutely true. If you can suggest something to try to solve my problem, you're welcome. Thank you very much for your attention.

[fjt]

Yeah the guy in Rome. One of the other patients at Song's clinic also went to that guy. He was also worse off afterwards.

I dont think its nerve damage since I dont have any numbness anywhere. I've had this checked out. The treatment was a very stressful experience so maybe the whole thing just contributed to my pelvic floor issues. I'm just desperate to find people who had a similar experience to mine and perhaps offer advice (aren't we all!!!).

I spoke to Dr Wise on the phone recently and when I mention Dr Song he said: "Oh yeah...that guy". "That guy" indeed. I've found a few others who do similar procedures. The difference with Song is that he doesn't actually inject into the prostate. He injects into the tissue surrounding the prostate and uses some kinda enzyme to make the "magic potion" penetrate the prostate. He's very successful at getting rid of any kind of infection but he also boasts no side effects with this treatment. Nonsense!!! Two of us had side effects. The other guy is much worse off than I am! No ones symptoms seem to go away though. Maybe he just tells people what they want to hear??

Moral of the story: Stay away from this guy and this kind of procedure!!!

After starting PT + relaxation and seeing a good response (except for this damn flare up) I am convinced this will help. Dr Wise said my symptoms sound "good" and that there is a good chance they will be able to help. I am considering making a trip to California. Dont feel like doing a 6 month experiment with a PT who's never done this kinda treatment before (even though we saw some improvement initially)

[webslave]

On a positive note, trigger point therapy, if it's working, can cause a flare-up early in the treatment. So this could actually be a good sign.

[CppsDad]

I agree with Webslave. Your flare-up could be a good sign you are making progress.

I don't think that it is a requirement that you have a flare-up after your first treatments. Some muscle tissue is hard to get to, covered by a thick, hardened wall of muscle. It can take a few therapy sessions to reach these spots (unless you want to break through the muscle tissue with painful force). Sometimes patients can discover trigger points months after starting treatment; these trigger points were not accessible in the beginning of therapy. Your muscle sinews (sp?) overlap in multiple angles (although generally facing the same way), so you have to break through the tough ones to reach some of the trigger points. All of these tough spots can contribute to symptoms and reduce blood flow, so it is good to get them all, slowly and thoroughly. This explanation, BTW, is how my PT explained things to me.

Mike

[fjt]

Thanks guys. I think the last 2 posts make a sound argument. Its hard to think that way when you are in this much pain though. The burning in my testicle has subsided a bit today and I'm generally feeling a slightly better. Lets hope it continues. If I can get back to where I was 2 weeks ago I will be jumping up and down!! This has been one of the worst flare ups I've had so far. Bugger!!!

[CppsDad]

This has been one of the worst flare ups I've had so far. Bugger!!!

Don't waste the flare-up. If you are going to be in pain, make it count. Work it hard! In the beginning I spent too long waiting for flare-ups to calm down before proceeding with more therapeutic treatments. Once I decided to push through no matter how bad things were, I started getting better. If you are on the right track with this flare up and your treatments, don't hesitate to keep things up. If you are wrong, and your treatments have nothing to do with the flare-up, then working harder at the treatments won't make things worse since they have no relation to the pain, and you haven't lost anything.

Mike

[conradin]

You live in South Africa and ended up going to China for treatment. This shows how expensive the illness is, and how desperate sufferers of this illness is. chronic prostatitis / chronic pelvic pain syndrome sux.

[robertpagen]

Marilyn Freedman, the excellent PT here in New York is South African, (I love her accent). Any way she visits there once or twice a year for extended stays so perhaps you could coordinate with her a meeting if there are not other PT's in South Africa. She is on Larch Drive in Great Neck NY.


[post edited by Admin for content - please do not post comments that insult or denigrate other members, or deride their decisions or mistakes. We've all made mistakes.]

[fjt]

Ok so I've managed to make some good progress using relaxation. The burning sensation has almost cleared up completely. The other symptoms remain but I can deal with them. However, I went back for some more PT today for the first time since the beginning of last week(I was in too much pain since then). It feels as if some "damage" has been done. It feels like the burning is coming back. I am devastated. Any ideas what is going wrong? Should I perhaps look for another therapist?

[james-d]

I don't read this as much as I used to since I am feeling damn near 100%.

I had several rounds of injections a few years back that worked very well for me.

Like any treatment - it is not for everyone.

I would not recomend it for anyone who is hessitant about it.

(I know nothing about the Dr you refrenced - I followed Dr. Bahn's protocol as noted on http://www.pioa.org/prostatits.html after my local Uro spoke to his office to get the details about the treatment).

So - I can't speak to the differences in the type of treatment that we had.

But - I feel it pushed me over the hump to good health that I have been enjoying for a few years now.

I have no disernable symptoms at the moment and hope to stay that way forever.

If it creeps back - my Dr. and I have a plan to repeat my injection protocol described in other posts (and I hope I never have to - because it is a bit uncomfortable).

I just wanted to be sure to put the other side of the coin into this post as well.

No treatment works for everyone.

This one did work for me - and I am happy with the results.

-Jim

[LightningTree]

What I would personally recommend, for the moment, is that you continue the PT, focus on relaxing your muscles throughout the day.

Did your PT mention any muscle groups in your body that seemed particularly tight? How is your flexibility? Can you sit with your legs crossed? Can you sit "Indian style"? How is your hip flexion? How is your back? What about your abdomen?