I've had more than one bout with CPPS, and doctors never did figure out exactly what was causing it (I didn't allow really invasive testing).
Last year, I developed 2 painful anal fissues, which had to be corrected via surgery. One of the fissures had been there for at least 5-6 years, off and on. It would tear, bleed, and then go "dormant."
I noticed that during this entire ordeal, I would get painful rectal spasms, but I would also get pelvic spasms. This is something I hadn't noticed before. I even posted about this a while back.
Since surgery, there has been dramatic improvement, not only with the rectum, but also with frequency, urgency, and general urinary discomfort.
So here' my theory...
the chronic fissure, which ahd been there for years, was causing small pelvic spasms. These spasms went unnoticed, probably because I wasn't looking for them, and I didn't think it was related. Obviously the rectum is right next to the prostate and bladder. If something is wrong in that region, it can easily carry over.
I also corrected a lot of my urinary problems through dietary modification, supplements, and exercise. But I'm starting to think that the fissure issues (and I had 2 -ouch!), were the primary catalyst.
You can have a fissure, and not even know it. It might bleed very little, or only occassionally.
So I recommend that the guys on this site have a colo-rectal surgeon take a look at your backside (if you haven't already). Maybe even get a colonoscopy. The source of some (or all) of your pain and misery may have nothing to do with the prostate!
I can tell you one thing... when my fissures got really bad, I would go into spasms that were so painful, I was on my back on the floor. And it was pain that radiated through the entire pelvis.
An update, and some intersting information
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The definition of pelvic myoneuropathy describes this exact scenario as a possible cause for chronic pelvic pain.
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dr. wise has an essay on anal fissures and hemmoroids at pelvicpainhelp.com and I believe it's in the new AHIP book also. he describes them as other manifestations of a headache in the pelvis and suggests a modified Stanford/Wise-Anderson Protocol for their treatment.
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